Ok, first up, an update since it has been a very long time since I have been on here. I started having the black outs after the decompression and they were eventually diagnosed as psychogenic blackouts resulting from my PTSD. I now have a service dog to help me with this which has been amazing. As far as Chiari related symptoms, I still have the usual ups and downs, especially with the cold fronts, but overall, not too bad.
The main reason for this thread now. January 7 I started with a severe headache and lower back pain. I pushed through until the next morning when I started throwing up. My wife rushed me to the ER and I was told I was in kidney failure. 30 years old and kidney failure, yeah. 4 days in the hospital, numerous bags of IV fluids and no answers, I was sent home. All tests and scans that were run showed that everything was clear/normal besides the levels related to the kidney function.
Today I was brainstorming with a friend about meds for this and headaches and she asked me about the MTFHR gene mutation. I have had the test in the past and it showed that I have the double gene mutation. In doing research, I found medical studies showing a direct link to the homocysteine levels and the GFR levels for the kidneys. As this is not a normal blood test, it was not tested for while I was in the hospital.
I'm just taking a shot in the dark, but does anyone have any insight or information into this?