Need answer about MRI findings please!

[outdoorgal35]

Not sure where to start so please bear with me as I try to make sense. I have suffered with some type of head pain since I was a kid, I am 39 now..They have progressively gotten worse over the years along with severe intractable migraines, chronic neck pain, always hurts, shoulder pain, feeling of "off balance", like I could fall, the room aint spinning I just feel light headed per se, which makes me afraid to drive sometimes, muscle weakness in neck, arms, and shoulders, tingly in fingers that comes and goes, ringing in ears that comes and goes, which happens more often then it ever did, nausea, again comes and goes,insomnia, anxiety which I believe to be brought on by the pain after all these years, constant fatigue, leg pain that comes and goes, heart palpitations, crossed-eyed( born this way) which I had surgery to straighten my eye about 2 years ago, but still have double vision with hardly no vision in right eye at all, have blurry vision at times and this scares me because of how my right eye is and I have constant floaters in my left eye. I know a multitude of symptoms..I have seen a neurologist off and on for 15 years or better, never had insurance before then! One I saw for several years had me on every medicine under the sun for migraines, literally! I was a walking zombie I believe and still nothing helped, I was even hospitalized a few years back for 3 days due to a severe intractable migraine put on DHE 45 IV..it helped for a very short time, or rather it with a correlation of the other meds I was given in the hospital helped some but for a very short time. Well, I saw this doctor until I moved to another county in the state I am I was born and raised in (Alabama). Upon moving to Mobile, I seeked several doctors trying to get help, one accused me of seeking drugs, if he only knew me! I was referred to neuro after neuro here and no one would/will listen to me. They all have tried to prescribe the same drugs I have already tried for years and they never worked, and the side effects of something that didnt help were not worth it. I refused to take the medicines again because I knew what they would or wouldnt do! Don't get me wrong, I dont know everything, but I do know what I have tried and how it didnt work. Well, back in May I found a new neuro a county over from me thinking I had found a wonderful doctor..he didnt try and write me a script the first time I was there, which meant alot to me. Well, I am now aggravated with him..He does not listen to me, all he wants to do is give me steroids shots in my neck and shoulders and tell me I have a pinched nerve causing me all this pain after all these years, really? UGH! I have allowed him to give me many shots over the last few months, but they aint worth and I feel worse after getting them then I did when I got there usually. Well, I personally called my old neuro in the county I lived prior to moving to Mobile, and got them to send me my old records..I remember the neuro telling me a few years back that he had seen something on the MRI and if he sent me to a neuro they'd want to do surgery but he didnt think it was anything to worry about. Well, I believed him all these years till I got my records and began to read,,The MRI scan of the Brain states this:

There  is a slight prominence of adenoidal pad.

Cellebellar tonsils are approximately 6mm below the plane of the foramen magnum, minimally low in position. No evidence of upper cervical syrinx or significant deformity of fourth ventricle. No significant intracranial pathology is seen.

Impression: slightly low position of the cerebeller tonsils.

Ok now when I type that into yahoo/google Chiari Malformation comes up every time. Please understand these results were 10/22/2003. I have been suffering for years with migraines, neck and shoulder pain and the above. Does it sound like I have Chiari Malformation to any of yall? I'm scared, nervous, but yet hopeful I may now knwo the reason for my pain all these years.

Another MRI of cervical spine states this:

Partial straightening of the C-spine, otherwise negative.

I'm at a loss and feel like I am running out of options..The new neuro just wants to shoot me full off steroids in my neck/shoulders and has only given me 10 pain pills since I started seeing him in May. I have to go to ER and Emergency clinic by my house several times for pain shots because 10 pills since May aint going to last. No I am not a pill head, that I assure anyone, I loath drugs, but pain is pain and Lord knows we can only take so much. He has mentioned an MRI but I am so claustrophobic they will have to sedate me to ever have one, and I didnt use to be this way.

Please anyone with insight, respond. Thank you in advance.

[Marybz]

She is the leader of this forum.  S

[outdoorgal35]

Thank you for your response...I hate for anyone to hurt, just glad to know I am not alone. Doctors want to make you think you're crazy and crap, just fed up with them. Not sure who Selma is but thanks.:)

[Marybz]

You have found the right forum.  I have all your symptoms. My tonsils are 5mm below the foramen magnum.  My symptoms have gotten worse this past year, because i have bulging discs in my c-spine.  There is a list of Neurosurgeons who specialize in CM.  Selma will list them for you.

[outdoorgal35]

Yes, I have tried open ones, they aint "open" enough..I know all this seems silly but some folks fears snakes, spiders, heights, etc..I fear closed in places..thank you though for trying to help.

[lydelia]

Hey :D Have you tried asking for an Open MRI? They have ones where you don't have to go into the little tube. My sister in law has to get them that way because she is claustrophobic. :D

[outdoorgal35]

Thanks for your reply as well..I know I NEED an another MRI and already tried it twice since then sedated, but apparently not enough.. the last time I tried was probably 2 years ago..I don't know what to do..its so not easy being in a closed space. I could never have gotten in one like you, they can't even get that "mask" thing on my face before I've panicked, silly I know! I was never this way when I had my last MRI! I don't know what's happened to me. But anyways, thank you again. I will pray I can get one some how.