Aa
Aa
A
A
A
Close
Avatar universal

Phantom Cigarette Smoke Smell

Does anyone else experience "phantom smells"?  I smell cigarette smoke on and off (no one around me or in my home/work place smokes).  It's not all the time, but sometimes it's very strong.  I mentioned this at TCI and the MD recommended a 24 hour EEG if this keeps happening as it could be a type of seizure.  I'm having a sleep study done later this month and the sleep MD agrees and says that the EEG I'm hooked up to during the study may pick this up.  Anyone else have this?
64 Responses
Sort by: Helpful Oldest Newest
Avatar universal
I have had this for a long time but its more of a burning/singe smell I was diagnosed with chiari in may but a lot of my symptoms had been happening like many for years before and some without particularly realising were anything to worry about. I've never mentioned this to my dr or ns as its not something that happens regularly but perhaps I should after seeing this and others posts.
Helpful - 0
Avatar universal
My daughter is a young adult with autism, global delays and a seizure disorder.  The seizure disorder started first then brought on the other issues.  We have found out that just the smell of smoke or the odor  of some who has recently smoked will bring on a seizure by the next morning!  this past weekend after recently having a seizure due to hormones ( she is a female) her breath smelled like she was smoking!  We do not smoke at all and no one is allowed near our house with a cigarette due to her triggers.  Can anyone tell me why her breath would smell like this when she hasn't been around any one?  and no I do not have any of the things you all have listed as having
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

Do u have a DX of Chiari? I am wondering if this is an issue as well as ur hydration issue?

  I appreciate ur sharing what u found to help, as I am sure it may help others here as well <3
Helpful - 0
Avatar universal
My experience of this smoke smelling thing is that it is related to dehydration.  So now, as soon as the weird smoke smell starts, I know to drink an extra glass of water and increase eating crunchy raw vegetables - like salad, cucumber, peppers, or fruits. It also helps over time if I am getting enough electrolytes, vitamins and minerals.  It's as though my body just wasn't in a state that would allow it to stay hydrated.  
   I'm finding that caffeine (coffee, tea, chocolate) DE-hydrates, so drinking these for thirst will have the opposite effect.  I don't know if the smell is a lingering toxin that didn't get a chance to clear (due to the lack of fluid) or whether it is like a change in the nerve receptors.  In any event, getting more hydrated is what has stopped the smoke smell.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

What u suggest is great, and I am sure helpful to those that have a cat or someone that smokes..... or moved into a home where the previous  owner may have,,,,BUT this thread referrs to those with a neuro issue that makes u feel like u smell something that no one else can...it is not really there to remove with paint or cleaners...

What u propose is great for those in need of freshening up the air and the suggestion is appreciated : )
Helpful - 0
Avatar universal
What makes the smell of something, like cat urine or smoking odors? The smell is made of invisible gases that have vaporized from the source. These vaporized odors float in the air attaching to the suspended cation particles which act like a sponge absorbing and carrying the odors and toxins through the air we breathe. There, is a permanent solution for odor problems and poor indoor air quality repaint, the walls and add the paint additive, AirReNu
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1671273328
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease