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Pictures - Please tell me what you think!
I am new to this so I don't know who sees what...I posted some new pictures if people can take a look and let me know what you think. I don't take any of the opinions as a diagnosis...just opinions. I am getting more miserable by the day with the pain. :(
Did anybody have to have an EEG at some point while trying to get things figured out?
Did the doctor mention anything about Lyme disease? It can cause a lot of those symptoms.
Sorry I realized I didn't answer all questions.... : / gotta love that memory! I haven't had my spine checked......I don't know if I am double jointed to be honest....
I have tried to Google about the BRISK reflexes but I haven't found a whole lot...some say it's really nothing...some say it can be indicative of something else neurological.....
When I read about a B12 deficiency the symptoms were very similar to mine, almost to a T.....I just hope to get this figured out...
I have tried to Google about the BRISK reflexes but I haven't found a whole lot...some say it's really nothing...some say it can be indicative of something else neurological.....
When I read about a B12 deficiency the symptoms were very similar to mine, almost to a T.....I just hope to get this figured out...
I don't know...This NL said that I do not have one...there is no way that it could be causing my symptoms because it's not down low enough to push on my spine. He said he does think it's neurological but he said my symptoms don't quite fit into one category so it's hard to say one thing exactly. I finally remembered the word he used, it was brisk. He said I have BRISK reflexes. I know he's checking my thyroid, B12 and folic acid level, inflammation in the blood....I think something else but I couldn't tell by the writing. He said sometimes your reflexes can be brisk if you are nervous or anxious but I wasn't nervous and they have always reacted the way that he indicated....he gave me Topamax which has helped so much with the head pressure already......I don't know..I guess I'll see what the blood and EEG reveal and go from there.......the weird thing is that my mom is having almost the same problems I am and she finally saw our primary care....so I don't know what is going on.......the only reason I am wondering if it's possibly inflammation in blood is because it all started right after this viral thing I had. I am just scared I will never know. My head is feeling better but I am still tipsy with my balance and forgetful/confused....but all the other neck problems still there and the pins and needles in my hands.....
My films look a lot like yours. I was diagnosed with a borderline chiari. I have been to three doctors who do think my symptoms ARE from chiari I also get burning in my toes sometimes. I also get dizziness, vertigo, ear aches, tinnitus, fatigue, confusion, pressure headaches with and w/o pain, shortness of breath. All that great stuff.
Are you double jointed? Sometimes being double jointed can mean that you have genetic connective tissue issues. People who have these issues may have different results on an MRI when they are lying down than when they are standing up. Cause when you're standing your brain will sag and your skull sinks down on your spine. They do upright MRIs. The company that does them is called Fonar.
Are you double jointed? Sometimes being double jointed can mean that you have genetic connective tissue issues. People who have these issues may have different results on an MRI when they are lying down than when they are standing up. Cause when you're standing your brain will sag and your skull sinks down on your spine. They do upright MRIs. The company that does them is called Fonar.
Have u been checked for a syrinx in ur spine? I was also told by my ns my reflexes were too good, and he believes its because the syrinx I have in my c spine has already done some damage.
I'm also getting a second and third opinion, although I believe what my ns said was tru.
Mazie
I'm also getting a second and third opinion, although I believe what my ns said was tru.
Mazie
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I took a look at the pics you posted and it definitely does look like in at least one of your pics that the tonsils are not a normal shape. It is really hard to tell though if it looks like there is any blockage. With mine, my NS could clearly show where my cerebellum was pushed up against my skull but that was with a really good, high resolution image.
I am not sure of your story? Have you been dx'd with Chiari or suspect that you have it? Has anyone mentioned tonsillar descent to you? I imagine that you are having quite a few symptoms that has caused you to try and figure out what is going on. Either way, like I said, it does look like there isn't something quite right and so I would start looking for some answers in that directions.
Good luck!
Carolyn