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Pictures - Please tell me what you think!
I am new to this so I don't know who sees what...I posted some new pictures if people can take a look and let me know what you think. I don't take any of the opinions as a diagnosis...just opinions. I am getting more miserable by the day with the pain. :(
MY opinion...get a second opinion. Like I said before, if you were told once that you had Chiari than now you are at the point of being subjected to a NL opinion. He may be going on just the herniation size alone and not even considering crowding or other factors. Again, this is really where having a CM specialist comes into play. I'm sure I told you this before but I let my NL decided for me and it cost me 6 months!!
Being hyper-reflexive indicates a spinal cord disorder!!!
I would get all you MRI pics and reports and submit them to a Chiari NS. I know how hard it is to proceed with this when a specialist is telling you that is NOT your problem, but seriously, if I had a penny for every time someone with CM was told this, I would be very rich!!!! I felt like you do that I was totally wasting the time of my NS when I went to see him b/c I was told over and over by my NL that there was nothing "neurological" wrong with me.....let me tell you, that decision to see the NS was a life changing one!! So please keep plugging ahead, let this NL pursue his other testing but in the meantime you need to be researching a NS!!
Carolyn
Being hyper-reflexive indicates a spinal cord disorder!!!
I would get all you MRI pics and reports and submit them to a Chiari NS. I know how hard it is to proceed with this when a specialist is telling you that is NOT your problem, but seriously, if I had a penny for every time someone with CM was told this, I would be very rich!!!! I felt like you do that I was totally wasting the time of my NS when I went to see him b/c I was told over and over by my NL that there was nothing "neurological" wrong with me.....let me tell you, that decision to see the NS was a life changing one!! So please keep plugging ahead, let this NL pursue his other testing but in the meantime you need to be researching a NS!!
Carolyn
I saw the neurologist today. He DOES NOT think that I have a Chiari Malformation at all. He isn't quite sure what the problem is but he is going to do an EEG and blood work. He said I could have something going on with my brain waves or maybe inflammation in my blood or could be a vitamin deficiency. The only abnormal thing about the nerve tests they do in the office is that my reflexes were OVER reflexive I guess? They reacted too much....
COMMUNITY LEADER
Wonderful that u got in sooner...good luck and do post an update : )
"selma"
I called my doctor and told him all the stuff that has developed and he called the neurologist and got me in sooner. I am seeing the neuro tomorrow...so relieved. Now hopefully I can get some answers...
Did you feel pressure in the back of the roof of your mouth? Did your throat ache when you would talk a lot?
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I took a look at the pics you posted and it definitely does look like in at least one of your pics that the tonsils are not a normal shape. It is really hard to tell though if it looks like there is any blockage. With mine, my NS could clearly show where my cerebellum was pushed up against my skull but that was with a really good, high resolution image.
I am not sure of your story? Have you been dx'd with Chiari or suspect that you have it? Has anyone mentioned tonsillar descent to you? I imagine that you are having quite a few symptoms that has caused you to try and figure out what is going on. Either way, like I said, it does look like there isn't something quite right and so I would start looking for some answers in that directions.
Good luck!
Carolyn