Problems at Home dealing with Chiari

[tattie197635]

I haven't been on here is a long while, but I needed vent with people that understands this condition. I have not been able to work and make a living the way I want to, and having three kids that makes it hard at times. My middle daughter 16 years old was yelling at me saying how horrible of a mother I am, because I can't work....she said that if I truly cared I would get out there and do what I need to do. Boy did that hit the core of my heart, this was two days ago and she isn't speaking, she feels like I don't care about their well being anymore and that's NOT TRUE!

It made me feel less of a mother and my kids are my everything, I tried to explain to her about me applying for disability and the long process it takes. I know I can't work anymore, as I type this, my head is hurting, I had MRI done in Nov. and they said everything looked fine except some narrowing in my neck and shoulders, my PM doc said she didn't understand why I was having any pain at all. Now I am starting to get a fullness feeling in my head and ears, blurry vision occasionally, and the vertigo problems as been there. So I got in touch with the Wisconsin Chiari Institute and sent them a copy of my MRI and insurance, I'm hoping dr. Heffez see's more than what my general doc seen. This makes me just want to give up at times and say I throw in the towel, but I know I can't I want to be productive in society and what I'm dealing with just won't let me.

Maybe one day my daughter will understand, but as of now it makes me feel so so bad. I've cried enough, I'm tired of crying. Oh I didn't mention that I had x-rays done on my back and I have two disc in my lower back that are bad and I can't stand more than 7-10 min without the pain...So I'm dealing with back pain as well....Sorry It's Very long just needed to get this off my chest.

[frankie_rush]

Hello,

I know how kids are, they can be mean and don't even know why.  Even if she did know the reason she probally don't understand all the way.  Once she full understands it will be different.  My mom fell and hurt her back really bad and couldn't work.  I didn't understand but when I did it made alot of sense the way they acted.

[tattie197635]

Thank You so much Selma, your so right she is a teen, my DD has no clue of what I'm going through, but the words she say's to me hit the core of my heart, trying to make me feel guilty...and it works! I love my children and if I could work I would believe me.

But your encouraging words have help me realize that she is at the age to push boundaries and she pushes more than just being upset about my Chiari. The stress just from my DD is overwhelming to deal with, but I'm going to continue to Pray that things get better....your so appreciated Selma.

[selmaS]

  Hi Tattie...long time...so sorry this is the circumstance that brought u back....but do not rush into a surgery bcuz of what ur DD is saying, that is a teen...and they say many things they really do not mean...it is just part of this age to push boundaries...

Keep in mind surgery is not a cure...and some can end up  with more issues post op...so make sure u have testing for ALL related conditions as they can affect how u feel and heal post op.