I haven't been on here is a long while, but I needed vent with people that understands this condition. I have not been able to work and make a living the way I want to, and having three kids that makes it hard at times. My middle daughter 16 years old was yelling at me saying how horrible of a mother I am, because I can't work....she said that if I truly cared I would get out there and do what I need to do. Boy did that hit the core of my heart, this was two days ago and she isn't speaking, she feels like I don't care about their well being anymore and that's NOT TRUE!
It made me feel less of a mother and my kids are my everything, I tried to explain to her about me applying for disability and the long process it takes. I know I can't work anymore, as I type this, my head is hurting, I had MRI done in Nov. and they said everything looked fine except some narrowing in my neck and shoulders, my PM doc said she didn't understand why I was having any pain at all. Now I am starting to get a fullness feeling in my head and ears, blurry vision occasionally, and the vertigo problems as been there. So I got in touch with the Wisconsin Chiari Institute and sent them a copy of my MRI and insurance, I'm hoping dr. Heffez see's more than what my general doc seen. This makes me just want to give up at times and say I throw in the towel, but I know I can't I want to be productive in society and what I'm dealing with just won't let me.
Maybe one day my daughter will understand, but as of now it makes me feel so so bad. I've cried enough, I'm tired of crying. Oh I didn't mention that I had x-rays done on my back and I have two disc in my lower back that are bad and I can't stand more than 7-10 min without the pain...So I'm dealing with back pain as well....Sorry It's Very long just needed to get this off my chest.