Looking for pain management solutions for Chiari Malformation besides surgery.

[muddlepup]

I have aquired chiari malformation and have constant pain and a neurologist that refuses to prescribe pain medication. I'm eating so much tylenol I'm going to destroy my stomach. Has anyone found a nonsurgical way to control pain?

[Initwithyou]

Neurotin helps my nerve pain, indomethacin helps the bilateral neuropathy of my feet, flexiril helps me relax to sleep and tramadol helps with the general pain; this is the "cocktail" that keeps ME working.  BUT everyone is different and must be followed closely by a doctor.

[Initwithyou]

Yes, a hot bath will really loosen tight, aching muscles as well.

[Getupgetgoing]

Heat....heating pad to back of head neck shoulders.....heating blanket for the legs....warm baths/hot showers....loose socks and therapeutic gel on my burning feet and stretches help(stretches for the shoulders/arms/wrists/hands) and I tried to avoid sitting for too long and also looking upwards brought on the pain.

[selmaS]

  Hi muddlepup and welcome to the Chiari forum.

For me personally there were no meds that helped with my pain b4 I had surgery.....Chiari symptoms cycle and can also flare so it is important to avoid activities that can cause them to flare.

May I ask what type of pain, the level it is at and what all you have going on....ie- related conditions?