It is easy to second guess our decisions...but it is not easy to stick with them....we have to believe that we are doing the right thing and not waver....that is not easy I know ...I wanted to shout "STOP" when I was wheeled into the OR....but after talking with the anesthesiologist I felt better with him as well as my NS...and I know it was a long hard road to get this far...to turn back and start over....all I could think of is why do that....so I went forward and have had no regrets.....
I got a second opinion from Chiari specialist and asked about other conditions but he said those were not present. I am using my neurosurgeon who did my back surgery last year though because he is much closer and I am comfortable with him and he did an amazing job with the last surgery. I went back and forth on whether to have surgery but it was my second opinion who said I really don't have a choice and it has to be done. Just feel like I am opening Pandora's box lol
Hi and welcome to the Chiari forum.
Do you have a true Chiari specialist? And were ALL related conditions ruled out?
If you are comfortable and confident with your surgeon then think positive.....
Most times we are not aware of what symptoms we have when we are first DX'd since we adjust and accept how we feel as " normal" since we have always felt like this...it is not until symptoms flare or worsen that we find out all the symptoms or issues we have are connected.
With a syrinx it is important to have surgery to help prevent it getting larger as it can compress the spinal cord and brain stem depending where it is located.....and left untreated it can cause perm nerve damage.
I myself did not have a syrinx but I have heard that some with a syrinx can lose sensation to feel pain in some areas so not having the same pain as others could be due to the syrinx.......my surgery was done to prevent a syrinx from forming since I did have a CSF obstruction.....
If you would like a Prayer Thread posted add your name and surgery date to the list your surgery date 2015 thread.
Wishing you all the best.