Aa
Aa
A
A
A
Close
Avatar universal

Thanks for your help and more questions

Hello all again thanks so much for your comments.  I appreciate everything.  Within in the last couple of days I have lost complete control of my legs I have fallen 4 times, I walk kind of like I/m intoxicated.  We ended back up in the emergency room  because that 's where my neurologist told me to go .  Anyway he sent me home with a wheelchair saying there is no more they can do for me.  They said the 5mm Chiari is nothing and they should of never told me about it, meanwhile they can't explain the loss of motor control and severe neck ache.  He talked about putting me on topomax.  Will that help?  I've looked into Mayo Clinic in Rochester Mn, but can't get in their atleast for a month.  Meanwhile am I crazy to be`worried about my legs and thinking this is related to my chiari?  So far my teaching career is put on hold and my family (5year old twins) are confused about what is happening to their mom.  Thanks again for all your help.
take care
Mel
3 Responses
Sort by: Helpful Oldest Newest
620923 tn?1452915648
COMMUNITY LEADER
The Wisconsin Chiari Center is centrally located, in Milwaukee, Wisconsin.

http://www.wichiaricenter.org/

I am not sure, but chiari is determined on CSF flow and if the cerebellum is crowded.Symptoms are the other consideration in which the drs use  more so then just the herniation size.

"selma"
Helpful - 0
Avatar universal
Hi Selma,
I have only had an MRI done of my head.  Where is the clinic in WI, would they even consider a 5mm Chiari.  My current doctors do not think I need more tests.  There latest theory is conversion reaction.  Thanks for your help.
Mel
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER
HI Mel...I am sosorry...what a scarey  time u r having.....
I have to ask, were u checked for tethered cord or a syrinx...sorry I can not remember ur info......

But chiari related conditions like tethered cord can cause the symptoms ur chiari may not.

U do have a Chiari clinic in WI...did u try there?

"selma"
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1671273328
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease