So I have chiari, autonomic dysfunction(tachycardia), occipital neuralgia, raynauds phenomonon, ehlers danlis and traces of lupus in my labwork....I can't take anymore dxs...my rheumatologist perscribed all these brace for me(back, right knee, wrists to elbows etc...) but I can't aafford to get them right now. But will before my hearing. Also my feet are flattening, weird huh. So I have to get soles for my shoes. Have pinched nerve in left shoulder and wrust have option for shots but idk about that, so I told dr I will thunk about it...in pt and counseling and gettin fed up with it all. Sone days my tachycardia is soo bad I can't go anywhere..
Hi Dana...I know what u mean,....I have many of them as well no AD dx this far, but TC< EDS< Hashimoto's<Cervical Spinal Stinosis<DDD<GERD< Hiatal Hernia<....the list goes on.....so, I do know how u feel, and I was told as a child my feet were flat...thanks EDS....I was given orthodics and could not tolerate them sitting let alone try and stand with them...just felt like rocks in my shoes....I do not use them....just more pain for me....
The braces are to help with the subluxations and joints popping out of joint completely....I know it will help with all the other pain u have as our muscles overcompensate and try to hold us together....I just do not get the costs if they r needed y must they be so much....crazy....
I know u do not want another DX, but the more u and ur Drs know, the better treatment u can get so u can get to feeling better.....
We fall into that domino effect....once u knock over one, all the rest go along with it....
Hang in there ((hugs))