Unofficial Symptoms List ~~

[selmaS]

Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chiari related that fall thru the cracks...lets make a list of all the symptoms not on the Official lists.

[Viva001]

I am also grateful.  People i know are freaked by this surgery (and I believe that knowledge about this condition is still in its infancy), but anyone who has suffered w/it just wants the suffering to stop.

[selmaS]

  well until I got surgery I know what that was like....so I know a little, and can not imagine going longer then I had to....meds just did not help....I am just so grateful we have an option : )

[Viva001]

Can you imagine how people suffered w/o surgery or drugs?

[selmaS]

  BUMP

[selmaS]

  bumping up

[selmaS]

I do have that some mornings not all tho.....it all depends.....I do have dry eye from my EDS dx and it flares so when it does I do have more of an issue with my vision being blurry.....

  DO ur eyes water?

   "selma"