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620923 tn?1452915648

Unofficial Symptoms List ~~

Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chiari related that fall thru the cracks...lets make a list of all the symptoms not on the Official lists.
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Avatar universal
I am also grateful.  People i know are freaked by this surgery (and I believe that knowledge about this condition is still in its infancy), but anyone who has suffered w/it just wants the suffering to stop.
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620923 tn?1452915648
COMMUNITY LEADER

  well until I got surgery I know what that was like....so I know a little, and can not imagine going longer then I had to....meds just did not help....I am just so grateful we have an option : )
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Avatar universal
Can you imagine how people suffered w/o surgery or drugs?
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620923 tn?1452915648
COMMUNITY LEADER

  BUMP
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620923 tn?1452915648
COMMUNITY LEADER

  bumping up
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620923 tn?1452915648
COMMUNITY LEADER

I do have that some mornings not all tho.....it all depends.....I do have dry eye from my EDS dx and it flares so when it does I do have more of an issue with my vision being blurry.....

  DO ur eyes water?

   "selma"
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