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620923 tn?1452915648

Unofficial Symptoms List ~~

Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chiari related that fall thru the cracks...lets make a list of all the symptoms not on the Official lists.
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1179332 tn?1297478990
Yeah...well I started and they just kept coming...

I remember b4 I found this group I would goggle these things trying to figure out what was going on with me and I couldn't really find anything (especially for the vision stuff and the vibrating). So...I'm hoping that when someone else does, it will bring them here.

What do you think about putting this all together when the thread is done as a list on the health links?
Helpful - 0
1 Comments
im 63 female and 5 years prior a syrinx got in my brain, the pain brought me to the hospital after screaming in bed all morning, the worst1  I think they drilled a small hole in temple area I just remember screaming 'cannabis' on the gurnee and woke up.  It was like super Mario bros was up in brain on a tiny ladder with a drill and he drilled straight thru the middle of the brain and kept on going and moving the ladder, that's what I imagined, but the syrinx was real, i would give drill up signal with hand and when drilling started I'd put hand down and said 'drilling'.  Then a year ago one got in my corraded and spent a week banging for a week, didn't go to hospital.  I have cayenne pills and they'd stop stroke, I didn't use them
620923 tn?1452915648
COMMUNITY LEADER
that was my intent.....  : )

great chiari minds think alike : D
Helpful - 0
1041839 tn?1278681846
Loss of hearing or you hear somebody talking to you but the words just dont seem to make it to your brain. Somedays i think my kids are talking in another language!

Oh, and that walmart or any big store thing we talked about. Getting confused and tunnel vision, and i think there were more associated with that.
Helpful - 0
1041839 tn?1278681846
Loss of hearing or you hear somebody talking to you but the words just dont seem to make it to your brain. Somedays i think my kids are talking in another language!

Oh, and that walmart or any big store thing we talked about. Getting confused and tunnel vision, and i think there were more associated with that.
Helpful - 0
1240947 tn?1268575220
My favorite is if you touch the left side of my face-especially if you lightly run a finger over my cheek-it'll paralyze the entire left side, even down the side of my neck. I'll cringe, and the ringing in my left ear goes CRAZY(!) Also, and I have no idea if it's part of the Chiari or not, but if I grip something (like the other day when I was chipping ice), I can NOT open my fingers back up. I physically have to get someone else to open them for me. Weird? Or "common"?
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER
It is the florescent lighting....they do mention black and white checkerboard floors, but those lights in the stores r really bad.
Helpful - 0
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