Unofficial Symptoms List ~~

[selmaS]

Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chiari related that fall thru the cracks...lets make a list of all the symptoms not on the Official lists.

[selmaS]

  Hi and welcome to the Chiari forum.

Many of these symptoms can be attributed to Chiari....have u been DX'd with it? .,..or related conditions? Like syringomyelia, tethered cord, Ehlers-danlos, POTS, ICP....?

Have u had a MRI of the cervical spine, or brain?

Or been checked for low levels of vitamins and minerals?

[Cathy2525]

I have always enjoyed good health and even now I am physically fit but still, after I turned 45 it has been downhill since.  My symptoms include:

pressure behind the eyes - feels like a migrane that is coming on but doesnt.  The worse part is I have somewhat blurry vision (only for reading, not distance),
much less energy,
brain fog,
wierd vision sensations - imagining a tiny light or speck (please note I recently had an eye exam and was told my eyes are very healthy),
decreased tolerance for noise,
much less energy,
joint pain....

[selmaS]

  I can totally relate to the heavy hair and painful to brush....

Most of what u listed is something many of us can relate to.

[imfrustrated1978]

Ok, here are a couple of things I have that I am not sure if it is just me or if it has something to do with what is going on.
I have MANY phobias that I used to not have,
my head hurts severly when I brush my hair
and I have long hair and sometimes it is like my hair weighs a ton and I dont have the strength to hold it up.  I have often times just cut it all off and got it over with.

[imfrustrated1978]

I have the shortness of breath when I talk,
I "float" around the stores,
ringing ears,
twitching eye,
one side of my body will be cold while the other is warm *very odd feeling by the way,
sharp shooting pain in my head and neck when I cough hard, pronunciation problems,
memory loss (I have had to reread this little sentence just to see what I have wrote and not wrote LOL it gets bad),
I forget what I am saying in the middle of a sentence.
Daily headaches (which my neuro says is migraines and that is all he is treating me for)
Neck pain
Light sensitivity
Noise tends to echo? in my head
I get a chlorine up the nose feeling alot..has anyone else ever had this happen?
Mood swings like OMG CRAZY

Ok imma read some more and see If anything else rings a bell b/c I am drawing a blank now

[jmidgorden]

I know this is old, but I have most of these symptoms minus the chlorine feeling. I also have constant dripping water like substance from my nose, trouble balancing, fine motor skills are very weak (hard to turn a door handle) which is disturbing since I'm very active and do fitness training. I have s 10 mm tonsillar drop and am confused if surgery is going to help. They tried to set me up for decompression immediately but I'm scared and confused. The Dr said that it probably won't fix any of my symptoms!!! So what's the point? I have a 9 year daughter and I'm a single mom. Is it worth th risk? What about the different kinds of surgery? I know one method is to remove the scar tissue from the cerebellum. Is that more effective the decompression alone?

[imfrustrated1978]

I am new here and haven't yet been formally diagnosed but after seeing my MRI results and reading up on Chiari I am pretty sure this is what is wrong with me.  I have read just the first maybe 15 comments here and already SHOCKED.  THIS IS SO ME!  I just thought I was weird and didnt like going places or just always felt a little odd now and then or had that weird feeling b/c the doctors always give you that :-/ look when you tell them how you feel.  But things are getting worse and my pain is hurting more and I am tired of the brush off!  Time  for me to start being a pain in their behinds!