eye appt showed "pale" optic nerves, which warants furter checking by another specialist. Nothing to be too alarmed about but eye dr isn't taking any chances considering everything else I am going through. Is there any impact to the optic nerves with chiari? I am having sinus surgery monday to eliminate the large concha bullusa to see if the help elevate facial pressure and headaches. Oct 14th i go to another NS for his opinion. I am just going to ask him about chiari and if it is even apossibility with me.
take care my friend.
lagging
It is the way they were taught in med school, that chiari is not much to worry about, so it much be something else...unless they research and focus on chiari they may not be of much help to u.
SO many of us do the same...hence y we call this ":the royal chiari run around"....
Good luck with the eye dr
"selma"
ok, i don't mean to sound like a broken record. After going to two NS and they are both telling me its my sinuses and i really fustrated. I am going to my 3rd NS in two weeks, I am going to ask him about doing a CT head scan and a MRI of my spine. Why are NS so resistant to doing more research to find out what is going on....I am stuck with this pressure headache and facial pressure daily now. My ENT is the only one who thinks its neurological, and the NS and saying i should get a new ENT. I am scheduled for sinus surgery Oct 24th to remove a large concha bullusa, but my ENT says that this can not be the cause of all my sympoths. I think when I go the new NS (who list that he treats Chairi patients) i am going to ask him to rule it out or do all the tests to rule it out. In the meantime, i have been seeing a pain mgmt doctor that is wanting to do nerve blocks, and pain injections in my neck for the c5 herniated disc. He has also put me on pain killers that do nothing for the pressure. wow, i can't believe what a mess i have become. I am also going to see my eye doctor this week for the eye pain. OMG i don't think there is a doctor i haven't been too.
Yes, I have had all of that.....and when I was much younger my Drs felt it was a sinus issue...chiari does affect our sinuses and that is y we have these pains....
"selma"
hello....just wanted to ask you did you ever suffer from facial pressure and nosil pain, eye pain...thats is where most of the sympoths come from. just curious.
Well our sinuses can be affected...I had PND big time and always was congested and felt like my lungs were filling up....now they r clear...it has stopped!
UTI's were another thing I had plenty of, but mine were also tied to chiari and tethered cord...
Antibiotics do play havoc with our system...it kills all bacteria..the good with the bad...so, I have to take DIFLUCAN every time I take an antibiotic bcuz I get a yeast infection....and it messes with the digestive track as well...since the good bacteria is killed off and not there to break down the food...it is a vicious cycle.
Good luck!!
"selma"