Hi and welcome to the Chiari forum.
I too have both....I am approaching my 1 yr anniversary of my PFD.....how long since u had urs?
Have u been to a rheumatoid dr that specializes in EDS?
I had the same issues that u mention but it was all prior to my surgery....and it went on for yrs like that and got progressively worse.I have not gone back to work since my surgery as I was told I still am not able to drive, and need 2 more surgeries for stinosis and tethered cord.
Have u been checked for other issues like a syrinx or TC?
We r happy to have u join our little family here, so sorry for the reason u had to seek us out.
Below is a link to the ehlers danlos group here on MedHelp.
http://www.medhelp.org/forums/Ehlers-Danlos-Syndrome/show/417?camp=msc&personal_page_id=1393327
"selma"