i need a dr!

[beckyrudy]

i was diagnosed with chiari when i was 17 when i went to a dr for migrains, but my dr. said it was not serious and said my problem was low b12. well i will never see that dr again because after 3 years of b12 shots and supliments, my migrains have only gotten worse, i get 1 to 3 or 4 a week and now im getting strange and severe arm pain ear ringing thumping, and so much more. the dr never even asked me if i had any other symptoms or anything and i knew nothing of the disease. after alot of research im certain my problem is chiari and after homeschooling my senior year of high school and losing verious jobs and even a fiance because of the constant migrains and pain i want a real dr and an answer! the problem is i cant seem to find a dr. in il and even if i did i have no health insurence...what should i do? i just want a normal [painfree] life!

[beckyrudy]

thanks very much for the recamendation, wisonsin is not far for me at all and ive heard other good things about the wisconsin chiari center, ill be sure to ask for Dr. Heffez. as soon as i get this isurence thing sorted that is
thanks!

[beckyrudy]

thanks selma its great to know im not alone and i have gone through my state and because im not dieing or pregnant they wont help me at all..but thanks very much for the link ill check it out!

[zipperbob]

Hi becky.. I have researched many top rated d.r.'s for the same problems you are having.. tho mine were set off by an auto accident reciving a chiari compression.. after a misguided first choice I dug deeper and found d.r dan heffez at the wisconsin chiari center. He did my 2nd surgery and I feel better than I have in 3 years.. headaches are few and manageable.. tingleing gone from left arm.. ears are still ringing but I'm going to check for tennitis for that.. it is extremely annoying! Give d.r. heffez a call and ask the hard questions I think you will like him.. wish I found him first!

[selmaS]

  Hi and welcome to the Chiari forum.

  First, contact ur state http://www.hfs.illinois.gov/programs/  and see if u can get a medical ins program u can afford...all states have something to help those with out ins.

Second- here is a list of Chiari drs for u to research.....some may be able to help u regardless of ur  ins situation, but note u may have to travel to get to one-http://www.medhelp.org/health_pages/Neurological%20Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186

It is sad we all have similar stories, and no one seems to listen or connect it back to chiari.....just know u r not alone, we r here to help as much as we can, even if it is just to listen : )

  "selma"