leg weakness

[bbisweary]

Hi Everyone.  I was wondering if it is common to have severe leg weakness with CM?  I have had leg stifnness, ie, scooting, dragging a leg, etc. off and on for several years now.  But, for the last few months I have been having this weakness in my legs that causes my whole body to feel weak.  I have a small syrinx that has developed since my appt. w/ Dr. Di in April, could that cause it?  I'm really hoping I don't have something else going on.

Thanks,

Becky

[selmaS]

  The list of Drs was compiled by the members here of Drs they have been to, treated by and liked....it is as I said not a referral nor an endorsement, it is only meant to be a tool to help you get started with research.

We have many threads and links to info...so just let me know what you may need..we may have a link to help.

[Heather2414]

Oh great,thank you I didn't know this site had any doctor's for 1 lol I thought it was just a place where you can find people have the same problems with what you have and they have the same thing and are talking about it lol...

[selmaS]

  Have you looked at the list of Drs we have on here? I can not remember if there is one in or near Indiana....but I do not have one near me either, I went out of state to get to a true Chiari specialist and would do it again if I ever needed to.

I have said that line myself many times....take a look at our list and research the Drs...many of them will review your MRI's b4 you make an appointment.

[Heather2414]

Wow,that doesn't sound good lol have you helped anyone from Indiana?? Do you know of any Dr. in Indiana??? I will search for one but I just wanted to ask you since you been such a great help I really appreciate your help in all this...As you can probably guess I haven't had to much good luck with drs,lol I always said if I didn't have bad luck I wouldn't have any luck at all lol..Thanks Again and God Bless!!!

[selmaS]

  I would suggest you have a true Chiari specialist look at these images....to me an untrained person it looks like your brain stem is bent....as well as the herniation of the cerebral tonsils.....

With the brain stem being affected that too in addition to Chiari could be part of your symptoms and issues...

Since you had surgery on your back ,most Drs may refuse to see you let alone treat you as you no longer have a "virgin" back/spine....but a true Chiari specialist will still offer to help.....

[Heather2414]

Yes the surgery was back surgery but I can't say much about the dr other than now its looking really bad that I didn't need the surgery that I now have rods and a basket so I'm worried if this could had started the whole foot drop issue and they blamed it on the back and I didn't need it from that doctor...Even if the Chiari is bad enough now wise or they find out that the foot drop could had came from the Chiari it might be to late with me having disc's removed and being cut....