nervous

[pm64]

Ive already been to 2 neurologists who say my syrinx cant be causing the pain and symptoms I have. Thursday im going to a neurosurgeon who specializes in the chiari and syrinx. Just worried I will hear the same thing again. I do have fibro also but dont think all my pain is just from that. I picked my granddaughter up yesterday just one time and that caused alot of neck pain and a headache. Ive also been getting a numb feeling in my face, sometimes the whole thing and sometimes just on one side, im also very clumsy lately and drop things. Most of my pain is in my neck, shoulders, arms, and legs, and sometimes my chest and ribs. I have gotten very weak to, even a gallon of milk is really heavy to me. Are these some of the symptoms everyone else has? I lost my password for this sight so I havent been on here for quite some time.   pm64

[selmaS]

No worries...it is just very frustrating dealing with the MRI films and the reports as the radiologists all use diff verbiage and there can be things like an artifact that shows up and it is in reality nothing....that is all I meant by my comment, sorry to have upset u on a bad day.

A syrinx or chiari neither is an easy condition to accept...who would want either...no one...so I understand completely.

And there r more experts than the 2 u mentioned...there is Dr Rosner in NC, and Dr Henderson in Bethesda, MD.....and many others.....

  Trust me, if neone is going to understand how u feel , I do as do the other members here....I just saw my PCP yesterday to up my meds for pain....

Just know it is safe to blow ur stack here and no 1 will be ofened : )

  "selma"

[pm64]

Just want to apologize for that last one, im just very frustrated over this whole thing. And obviously I have not accepted this, whether it be a syrinx or fibro. Hope you have a great day and again im sorry for taking a bad day out on you.    Peggy

[pm64]

   I am NOT looking for something that is not there. I just know what ive been told by 3 other doctors and ive read the radiologists report on the mri. I also know what im feeling and it is not normal. Ive been told go to this doctor, no go to this one, no go to this one and on and on. Its a vicious cycle that ive been on. Ive done tons of reading on this stuff as well. From what ive read theres only 2 real experts in this and that is in new york and denver (aurora). Maybe the new mri will tell us more, dont know, just know im tired of bs answers and tired of feeling like this. I would give anything to just have one day pain free, as im sure alot of others are to. And finding a doctor that cares would be great to.

[pm64]

Thanks for your concern. I guess all I can do is wait for the mri to be done and go from there. I also have chest  pain if I do to much, and many of the same symptoms that you do. He said all of it could just be the fibro.  I will definately go for another opinion before I give up, just sick of going to doctors that dont care. This one didnt say a word about my symptoms either. It would be great if I dont have the syrinx, but for  peace of mind I want another opinion. Ive seen the report on my mri from last july and it says a syrinx, just dont get how a trained radiologist could be wrong but I suppose anything is possible.

[STL5]

Hi!

I am sorry to hear that things did not go well.  It is discouraging when you have these symptoms and the DR is unable to validate why.  In my own circumstances, when the Dr said "I believe you" I was so relieved.  I have a syrinx as well as chiari.  The DR was not as much concerned with the size as he was with my symptoms and how they were progressing.  I have/had problems with left side numbness, right hand numbness, cold hand/feet, balance issues, dropping items, pain on left side- especially around shoulder/chest area, severe head pain when cough, when I did too much my chest would get very tight and painful and I would have to stop what I was doing because it was hard to breath...well you get the idea.

Keep searching for a DR that is able to help!  I would always have a copy of any MRI so that they have something to compare to.  Someimes they may not like how the original MRI was done.  I am just sorry to hear that you have to go through this.

[selmaS]

  Many time there r artifacts on MRI's...and they mean nothing....so, do not look for something that is not there...just a thought...and a possibility.

Dr Oro is very good....and would be an ideal person to get another opinion from.

  Hang in there : )

  "selma"