Hi and welcome to the Chiari forum.
May I ask ask to y u want the shunt removed?
I know shunts can malfunction and they usually go in and change the setting or place a new one, depending on where the shunt is and how long it has been in place they may not want to remove it and just leave it .
Have u been to Chiari specialists?
I only want to know where I can find a surgeon- not discuss or explain the situation. wh I have more time I will post the reasons- to busy taking care of our daughter right now.
Sorry, sometimes understanding the situation I may have better insight as to where to guide u, at this point all I can tell u is use the Drs list and call a few and ask....
Good luck
Here is a link-
http://www.medhelp.org/posts/Chiari-Malformation/LIST-OF-CHIARI-SPECIALISTS/show/1503562
Be advised this list is not a referral and not all on the list r true chiari specialists....so do research them as u go.
Sorry to hear you are having problems finding someone to listen. I have an LP shunt that I am hoping to have removed, it just makes me miserable. I hope you can find answers and help! -zygy
I know that Duke U has pediatric Chiari specialists.