Severe folliculitis in my scalp

[bigtronix]

I have had this painful problem for years (9 years and 6 month to be exact). I am 40 years old, male, from Canada. Here's how the problem started. Tiny red bumps and they endup with the white thing on it  on top of the scalp back in around 1999, they got very itchy and they blood and white things will be discharge from the pinples. After a few months, I went to a dermatologist, he prescribed me with antiboitic and shampoo and cream and lotion . i used them for 3 month and after i stoppped few one month after I had them back on my scalp and face.I called my dermotologist booked an apt and i saw him and said i should take accutane 40mg daily and antibiotic for 6 month and keep on using the stieprox shampoo for fungus , so i did that and i my scalp and face they got better , so after 6 month i was done my medication course went back for finale visit and he said that i am done .
after  5  to 6 month after the treatment  same issue is back i went and i saw my family Dr and he said to go back and see my dermotologist so i called book an apt , i went for my apt and same thing he want me to be back on accutane for 4 month this time and the stieprox shampoo and other shampoo brand i can't recall . so i did that and after 3 weeks my scalp face look better and after 4 month everything was cleared  saw my dermotologist and he was satisfied with the result again , so he said to stop treatment and i did.
after 4 to 5 month same issue i endup with than made me think more , went to my family Dr we talked and he recommend to see a another dermotologist than the one  i was seeing so i agree and we went through  that
same treatment for 6 month  and i did it   and after 5 to 6 month same issue i changed over 10 dermotologist  and on off on antibiotic and accutane and shamppo and lotions dalacin ....and till today's day no luck  same issue and all this dermotologist did culture and was negative result and they did alergy test negative tooo, few weeks ago as per oct 24 2009  a saw a new dermotologist she did a culture and the result endup with Citrobacter koseri  in my scalp and she said that the cause was from the antibiotic however i am still taken till now antibiotics , and she want to reffere me to another specialist who deal with the bacteria issue's so now i am waiting for my apt . honestly after all those yrs i had the worse time in my life , and i can't beleive that some dermotologist didnt care less for my situtation , i am loosing sleep and is effecting my daily life  and i am looking for a solution please helppppppp.
PS i did tryed all kind of prescription shampoo ,lotion,cream,antibiotic,accutane ,cureacne , i spend over 12000 dollars and no luck  , and i endup a one  year ago with a damaged lazy  liver i had to stop accutane and take other medication to get my liver back to normal situtation  please helpppppppppppppppppppppp

now i am under antibiotic but however not doing the job at all  and all it's doing is controlling the bumps a little. Like 1 week of the month, I will have 70% clear scalp. The other 3 weeks, I'll have 30-40 spots .
These spots are extremely painful, sometimes I can't sleep right since the scalp pushes against the pillow. I have to wait upto 3 weeks before scalp is somewhat clear so I can get a haircut, even the past few month i don't go to a barber anymore i cut mine with number one hair  cliper  

From all my research, this seems like extreme stubborn case of folliculitis, but I don't even know anymore what to do. Please, anyone out there, help me. I'm willing to pay you if you can help solve this problem


This discussion is related to Severe Scalp Folliculitis (Seen 4 Dermatologist already).

[kdk95]

my son has the same condition. we have been to so many dermatologists and general doctors and even an infectious disease doctor. no one had any clue how to get rid of theses tumor-like pimples that were extremely painful. we decided to try a gluten free diet and the pimples degreased dramatically in both size and number within a week. we are trying to discover more food that he might be allergic to and eliminate them in hopes of eliminating all of the pimples ( which are very small now)
don't know if it'll help everyone as everyone is different, but it could be a dietary allergy for some

[Tigerclaw]

The new products the doctor has prescribed have made the symptoms worse. Soon I will go back to the kitiki and try their shampoo as well. I will re post afterwards. They want me to try to stay away from triggers, but coffee, stress and once in a while a hat is part of life.

[Tigerclaw]

I guess everyone's skin is different. I have continued to use the regular Kitikiti and it has done a great job on the the sides of my scalp and top. The back however is still problematic. I did have a couple more flare ups. With about 5 at a time, but I was really stressed. My pillow cases are almost free of blood and staying fairly clean. So the product is working for me. I did try their stronger version. It was ok but had less of a cooling effect. Also it was greassier. I prefer the regular strength. Soon I will start Acne-d, a pill recommended by the doctor and a topical Finacea that they want me to apply in the am. They also gave me prescription Nizarol for shampoo. I will post if I find successful.

[magicalrhino]

I've had to discontinue the KitiKiti after 2 days as I had a severe flare up of painful inflamed white heads which I'm still recovering from.  I'll have to give it a another try later to rule out a coincidence.  If it's the KitiKiti's fault indeed, my theory would be to blame "clogged pores" as the texture is quite thick.  

Just did an IPL test patch yesterday which went well.  I'm planning to remove the hair at the back of my neck which I always shave anyway.  This is to see if the condition improves in areas without any hair.  Just a theory...

[Tigerclaw]

For me it got much better quickly. Within one week to a week and a half it was 50% better. I apply it fairly generously.

[magicalrhino]

Interesting.. I also suffer from acne & suspected rosacea, so I'm very interested in how you do with these new treatments.  I'm in a terrible state at the moment.

Does it get worse before it gets better with the KitiKiti?  I've had quite a bad flare up in the areas where I've applied it after 2 days.  As usual, not sure whether I can blame the KitiKiti, thus the question.