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Severe folliculitis in my scalp

I have had this painful problem for years (9 years and 6 month to be exact). I am 40 years old, male, from Canada. Here's how the problem started. Tiny red bumps and they endup with the white thing on it  on top of the scalp back in around 1999, they got very itchy and they blood and white things will be discharge from the pinples. After a few months, I went to a dermatologist, he prescribed me with antiboitic and shampoo and cream and lotion . i used them for 3 month and after i stoppped few one month after I had them back on my scalp and face.I called my dermotologist booked an apt and i saw him and said i should take accutane 40mg daily and antibiotic for 6 month and keep on using the stieprox shampoo for fungus , so i did that and i my scalp and face they got better , so after 6 month i was done my medication course went back for finale visit and he said that i am done .
after  5  to 6 month after the treatment  same issue is back i went and i saw my family Dr and he said to go back and see my dermotologist so i called book an apt , i went for my apt and same thing he want me to be back on accutane for 4 month this time and the stieprox shampoo and other shampoo brand i can't recall . so i did that and after 3 weeks my scalp face look better and after 4 month everything was cleared  saw my dermotologist and he was satisfied with the result again , so he said to stop treatment and i did.
after 4 to 5 month same issue i endup with than made me think more , went to my family Dr we talked and he recommend to see a another dermotologist than the one  i was seeing so i agree and we went through  that
same treatment for 6 month  and i did it   and after 5 to 6 month same issue i changed over 10 dermotologist  and on off on antibiotic and accutane and shamppo and lotions dalacin ....and till today's day no luck  same issue and all this dermotologist did culture and was negative result and they did alergy test negative tooo, few weeks ago as per oct 24 2009  a saw a new dermotologist she did a culture and the result endup with Citrobacter koseri  in my scalp and she said that the cause was from the antibiotic however i am still taken till now antibiotics , and she want to reffere me to another specialist who deal with the bacteria issue's so now i am waiting for my apt . honestly after all those yrs i had the worse time in my life , and i can't beleive that some dermotologist didnt care less for my situtation , i am loosing sleep and is effecting my daily life  and i am looking for a solution please helppppppp.
PS i did tryed all kind of prescription shampoo ,lotion,cream,antibiotic,accutane ,cureacne , i spend over 12000 dollars and no luck  , and i endup a one  year ago with a damaged lazy  liver i had to stop accutane and take other medication to get my liver back to normal situtation  please helpppppppppppppppppppppp

now i am under antibiotic but however not doing the job at all  and all it's doing is controlling the bumps a little. Like 1 week of the month, I will have 70% clear scalp. The other 3 weeks, I'll have 30-40 spots .
These spots are extremely painful, sometimes I can't sleep right since the scalp pushes against the pillow. I have to wait upto 3 weeks before scalp is somewhat clear so I can get a haircut, even the past few month i don't go to a barber anymore i cut mine with number one hair  cliper  

From all my research, this seems like extreme stubborn case of folliculitis, but I don't even know anymore what to do. Please, anyone out there, help me. I'm willing to pay you if you can help solve this problem


This discussion is related to Severe Scalp Folliculitis (Seen 4 Dermatologist already).
80 Responses
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13361073 tn?1431873940
Went to a new dermatologist today. One I know a bit better than others in the past. She thought it was more like rosacea. She wants me to try finacea applied to the scalp in the morning after a shower, apply KitiKiti at night, and then take either nicadan or acne-d (available from Amazon) one pill a day. She also prescribed prescription strength Nizarol. Right now with KitiKiti alone it has been the best it has been in a while. She did say it will never completely be cured, only controlled. She recommended avoiding triggers like stress, hats, hot coffee, etc..
Helpful - 0
13361073 tn?1431873940
The KitiKiti has been working well. Some nights I reapply a second time of needed. It controls the itching, makes the scalp less oily and with the scalp being less oily my face cleared up a bit. I do still get a larger bump once in a while and just apply extra product to them after alleviating if possible. I am scheduled to visit the dermatologist soon and I will get a hair cut again soon. I will post results. I am out of the antibiotic and do not intend to refill it. KitiKiti has been working well for me.
Helpful - 0
Avatar universal
You were right... the ACV didn't help at all.  Probably made it worse.  Although with our condition it's hard to blame anything due to its random nature.  How are you getting along?  Still going well with the KitiKiti?
Helpful - 0
13361073 tn?1431873940
Late last year and earlier this year I tried to dry mine out. I used a scalp wash that I left in for 5 minutes prior to showering and a special shampoo. I also took aragano oil pills a probiotic and turmeric. It made the situation worse. I thought drying it out was the solution. Be careful with the acv. The product was Thera rx anti bacterial scalp and skin wash, then a tea tree scalp shampoo and the vitamins. Drying it out was not the solution at all.
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Avatar universal
I posted photos of my current situation.  It feels more terrible than it looks, and it doesn't look any good at all.  Still haven't received the Kitikiti.  I'm trying apple cider vinegar in the meantime..  the areas I've dabbed so far seem to be calming down, but maybe it's just healing by time as usual, until the next flare up.  We'll see..
Helpful - 0
13361073 tn?1431873940
I have not fully finished the first bottle. Once I do I am going to try the maximum strength one. I will post as well if it is better.
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