My daughter is almost 21 and has been JD since she was 7. We have had a long struggle with a lot of tears over the years.
She now is on the pump and it is wonderful. Our only problem is that like your son she does not take care of herself. There is only so much a parent can do when your child is an adult. She has been hospitalized 4 times in the last two years 3 times were in intensive care for "non'compliance" which led to DKA.
Last month she almost died, her BS was 860 when she arrived at the hospital.
She was at a college party and was drinking and took her pump off!
We have always been very active through the years on checking up on tests etc.Now as an adult she just tells me "yeah I took it" and goes to work. At this point I don't know if it's a psychological problem or what. I just checked her tester today and it seems there is a 4 day lapse in testing.She tells me it's on another tester but I have been on this road before and tend not to believe her.
We are all at our wits end here.
If anyone else has a suggestion please let me know.
You and I should keep in touch. Good Luck to your son and your family'
Hi, I am also a 19 year old type 1 diabetic who could probably be descirbed as completely out of control as well. Although my reasons are probably different from that of your son, I can understand his situation, and I know for a fact that punishment will not solve the problem. The more you try to force your way with him (even though you have the best intentions) the more he will push in the wrong direction. I suggest your only choices are to either a) go into complete extremes and hospitalize him, or leave him entirely alone until he reacts on his own. Right now your son is stuck in a REALLY bad habbit that is extremely hard to break, atleast until something bad happens. In addition, when someone has extremely high blood sugars for a long period of time, it messes with the chemicals in their brain causing them to feel moody, depressed, or anxious at times, disabling them from thinking properly or caring about their own well being. Have you considered the idea of an eating disorder? It is becoming more common for teens to abuse their type 1 diabetes by omitting insulin shots, and purposely eating lots of high carb foods in order to lose weight or maintain a lower weight. Poor diabetes control also is behind sugar cravings and uncontrollable appetites which may be a factor in your son's addiction to junk food and pop. Poor blood sugar control is a vicious cycle that is extremely hard to break, not only physically, but psychologically and emotionally as well.
I am not a physician but the mom of a type one diabetic.
I know that having a teenager with diabetes is hard, but I know several teens that have gone thru what you are describing. Unfortunately what has gotten them to change there ways a stint in the hospital. The doctor got fed up with the high A1C and put the teen in the hospital till she could keep her blood sugars gown.
Being on the pump you son can have the junk food, pop and other foods that his friends have he needs to bolus for them.
He also needs to check his blood sugar before he gets behind the wheel of a care. If he does not I would suggest taking the car away. If he has to take a cab or other means make him pay for it with his own money. He will change his ways, when it costs him his own money and takes his freedom to come and go. I he is putting other people at risk getting behind the wheel with out checking. In some states the endocrinologists have the right to notify DMV that the patient should not be behind the driving and his license could be suspended
I would call your local hospital, ort ask you doctor if he/she knows or any support groups. I would also go to www.jdrf.org to find your local chapter they should be able to help you get in touch with other families in your area. Where I live I travel 2upt to 1/2 hour to go to one of our support groups. It is well worth the trip.