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High white count with cortico steriod use?
Hey everyone!!
It's been way to long since I got to get on here. I just got released from a very long hospital stay yesterday. It's been very trying going through this last two weeks. I got the wonderfull bacterial pneumonia and was admitted to my little hospital in Fairview. Low o2 sats, lungs full, fever the whole 9. No fun. After 3 days of IV Rocephin antibiotics and oral Z pack my WBC count was still rising. It was not to high around 13 at that point so doc switched me to IV Zoscyn and added oral Levaquin. My lungs cleared up and sputum samples came back negetive but after 4 more days my WBC count went to 17.1. So my GP sent me to OU hospital in the city. They have no clue on what is making my WBC count so high. I had two teams of doctors looking after me there and no real answers. I no longer have a fever but the fatigue is almost unbearable. The only other symptoms i have is recurring HA ans the slightest bone aches. One of the teams had an Endo as the head doc and she suggusted that the steriod use could be the cause? I know that it can elevate WBC count a little but I've only been on the florinef for 3 weeks and for it to keep climbing that high seems unlikely to me. They have also suggusted leukemia or a lymphomia but have done no testing for either one. I got released on very strick instructions that if I had any fever or any new symptoms that I must call 911 and immediatly return to them and I have to stay close by so if one of the blood work tests come back with anything that I can return promptly. Waiting on MRSA and C diff and blood cultures. I'm sure its not C diff and MRSA seems unlikely. Also the other hospital did blood cultures and came up with no growth. They checked for endocardiitus also and was neg. So after that long story I guess I'm wondering does anyone have expierence with elevated WBC count in association with corticosteriod use and if so was or can it be that high from less than a month of taking it? Or should I be seeking a hemotolgist/ oncologist?
It's been way to long since I got to get on here. I just got released from a very long hospital stay yesterday. It's been very trying going through this last two weeks. I got the wonderfull bacterial pneumonia and was admitted to my little hospital in Fairview. Low o2 sats, lungs full, fever the whole 9. No fun. After 3 days of IV Rocephin antibiotics and oral Z pack my WBC count was still rising. It was not to high around 13 at that point so doc switched me to IV Zoscyn and added oral Levaquin. My lungs cleared up and sputum samples came back negetive but after 4 more days my WBC count went to 17.1. So my GP sent me to OU hospital in the city. They have no clue on what is making my WBC count so high. I had two teams of doctors looking after me there and no real answers. I no longer have a fever but the fatigue is almost unbearable. The only other symptoms i have is recurring HA ans the slightest bone aches. One of the teams had an Endo as the head doc and she suggusted that the steriod use could be the cause? I know that it can elevate WBC count a little but I've only been on the florinef for 3 weeks and for it to keep climbing that high seems unlikely to me. They have also suggusted leukemia or a lymphomia but have done no testing for either one. I got released on very strick instructions that if I had any fever or any new symptoms that I must call 911 and immediatly return to them and I have to stay close by so if one of the blood work tests come back with anything that I can return promptly. Waiting on MRSA and C diff and blood cultures. I'm sure its not C diff and MRSA seems unlikely. Also the other hospital did blood cultures and came up with no growth. They checked for endocardiitus also and was neg. So after that long story I guess I'm wondering does anyone have expierence with elevated WBC count in association with corticosteriod use and if so was or can it be that high from less than a month of taking it? Or should I be seeking a hemotolgist/ oncologist?
Thank you for the info. I found it on dinet. There are actually several postings about a possible link with POTS and lymphoma or leukemia on there if you search lymphoma in the forms. I had no clue there could be a connection. Of course its only one study and nothing solid or proven, but is anyting ever with POTS? lol. I am awaiting the call from the new doctor and I will keep you guys informed if I come up with any new info as much as I can. I'm pretty weak and I only thouhgt I couldn't be more fatigued than a couple of weeks ago. Now I'm wishing I had the energy I did last month. Funny how things go. I'm really hoping that this is just another wrong idea by the doctors. It always seems to be a guessing game, kinda hit and miss. It's still scary though. Thank you guys for your wishes and warm thoughts. I just love you guys!!!!
I want to say that there is at least one other person that is being either tested or monitored for something similar to lymphoma or leukemia that I know of currently. I think I saw the post within the past two weeks ... on DINET I think? I think it may have been one of the POST/MCAD-ers. I'm drained today and don't have the energy to hunt it down but if I have time tomorrow I'll try to get more info for you.
I seem to have suppression of my immune system with the fludrocortisone (or at least it has been coincidental with it ... so hard to say what is decidedly causal), so definitely not elevated WBC counts ... mine don't budge even when I am sick with virus or bacterial infection. I've been on fludrocortisone for years. (2 years? More? Oy, my memory is awful.)
I will keep you in my thoughts for sure! Take good care of yourself, physically and emotionally!
I seem to have suppression of my immune system with the fludrocortisone (or at least it has been coincidental with it ... so hard to say what is decidedly causal), so definitely not elevated WBC counts ... mine don't budge even when I am sick with virus or bacterial infection. I've been on fludrocortisone for years. (2 years? More? Oy, my memory is awful.)
I will keep you in my thoughts for sure! Take good care of yourself, physically and emotionally!
Thank you for your prayers! I will take all I can get. The doc did call and is reffering me to a hemo/oncologist for further testing. So got my fingers crossed that the bone marrow biopsy will be claen.
I don't have any answers but want to tell u I am so.sorry ur going through such a rough time. Ur in my thoughts and prayers.
Hugs to you,
Beema
Hugs to you,
Beema
Also wanted to add that my RBC showed amemia. If anyone was to look up the leukemia or lymphoma. Getting very worried. :(
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