Keppra and Irratibility

[momdealingwithkeppra]

my 7 year duaghter has Nocturnal Complex Partial seizures and has been on Keppra liquid for 1 year now.  they just increased her dose to 8 ml in the am and 10 ml in the pm.  she has been extremely grumpy, irritable and very down in the slumps.  Has anybody else experienced this?  the Dr. thinks that she should talk to a Shrink, but I think it all has to do with the medication as she is normally a very happy, loving and caring girl...now she is very pessimistic on EVERYTHING!!!  I don't know what to do and I know that this is not my child's normal behavior...I feel so bad for her and feel guilty for having her to take this medication and feel like this on a day to day basis....any insight from anybody???

[tryingtohelpmydaughter]

My daughter is 16 years old, about 4 years ago she was diagnoes with Occipital Epilepsy. About One year and half ago she began having generalized seizures. About 10-12 now, her mood has severly changed. My daughter was the sweetest, most caring, adorable, loving girl. Now, she is moody, bitchy, anxious, nervous, anxiety ridden, not eating , and bulemic. She takes Keppra and  Zarontin. I have NO idea how to get my daughter back.. I love love love her neurologist..  Does epilepsy lead to eating disorders? Is the medication doing this? Or have we just been blessed with Bulemia, anorexia and Epilepsy and there is no coincidence?  Is her new mood changes leading to her eating disorders? her meds leading us to this?  I am sssooooo panicked about what to do next... panicked. Any advise I  would be eternally grateful for?

[NUATDIS]

i have a neice my mom has custody of her and she is on trilectol liquid and she has been on it for about3or4 yrs. now and we havnt noticed any sideffects like that from her maybe its time for a med change and also my neice went and got her eeg a couple of weeks ago and they didnt see any seizure activity anymore and took her off the meds and i am28 and just been daignosed with seizures and my neuro tried to put me on keppra and i got home and researched on the net and there where to many sideffects that i just couldnt fathem dealing with so i told him i didnt want to take it and then he put me on topamax which i had been on before but for migraine headaches maybe her sideefects will disappear if not maybe its time for a change hope u find a solution and i hope this passes as she gets older by the way my neice is 6 yrs old !

[momdealingwithkeppra]

My daughter has Nocturnal Complex Partial Seizures.  Keppra worked GREAT controlling her seizures, it was just the mood swings, irritability, grumpiness, etc etc that made us take her off if it.  She just was not herself anymore. I hope you find a great Dr....keep trying, it took us 4 Dr.s before we found the one that is amazing! She works great with our daughter  and with us...she will spend 1-2 hours with us in the dr.s office and is not worried about other patients.  We tried the generic Keppra and it did not work either.  Good luck with everything

Iueled09,

I heard some horrible things about Lamictel but that was one of the meds that our Dr. suggested.  So far, I am glad that we are on Trileptal and i hope it continues to work for her.  

Good luck with the meds.  

Happy Holidays to all.

[iueled09]

My daughter is 15 and was diagnosed with Partial Complex seizures when she was about 10.  She began taking Trileptal and it worked well for her for about 4 years and then she began having break thru seizures.  It made her tired, but other than that she did well on it.  She then tried Lamictal which made her feel terrible.  Awful stomach pains.  Now she is on Keppra XR and still on Trileptal as well.  Working through side effects.

Good luck to you and your daughter

[Trice27]

My daughter became a new Person when she started Keppra. She was having Seizures every hour for over 6 months. She had no good babyhood/childhood. She suffered a lot because she wasn't diagnosed and treated until she turned 3 years old. We didn't know she was having seizures. I thought it was reflux problems. But NO they were seizures.

She started talking and living when she started Keppra. She was very slow. She wasn't doing the things a 2 year old is suppose to do at that age. It was like she was still one. Her comprehension was not good at all. It was due to the numerous seizures she was having and the Uneducated DOCTORS around here.

But anyway Keppra was wonderful and then she was switched to the Generic and all hell broke loose. Her Auras kept coming frequently and is still happening.
She's off Keppra now and and on Banzel and Vimpat and that is not helping her at all.

She needs to be put back on Keppra and not that Generic.
I'm doing the best I can.
We are suppose to see the Speech Therapist tommorrw. But with the long wait she started talking better.

We'll see how things go tommorow.

[MelChr]

My granddaughter is 21 months and was having over 100 seizures a day.  She is on Topomax and Keppra with B-6.  She is not the same child. She used to be so sweet, and loving, laughing, happy and smiling all the time. Now she is really agitated and irritable or like a zombie, and still having at least 30 seizures a day. We hate it.  Her neuro doc says she has Lennox Gastaut syndrome, I hate him too by the way.

What was you daughters diagnosis?

We are actually getting reading to try the Ketogenic diet too. Trinity does not eat well so she will need a G-tube, and were pretty freaked out, but nothing else has stopped these seizures
What other meds have you all tried with better success?