Is EBV going to kill me ??

[LivingDead101]

14 months of being extremely ill, Dr finally tested me for everything including HIV, it came back positive only for EBV, l have low white cell count, high B12, slightly high pottasium level. I'm not getting better I'm still as sick and the fatuige is horrible ! I'm only exsisting, this is not living! I was so active before this took me out. Please help me understand, is there anything I can do to help myself. Please Help. Am I going to physically Die from this ? Because I am so sick, I feel like it. My life as I knew it has already died.  Its hard to believe there's nothing I can do, as my Drs tell me, except live with it. No I can't just live with this ! It's a nightmare ! If there is help out there please tell me. Someone please talk to me about this. I'm am so isolated, and afraid, I have  no family, no friends since I became ill. I've lost everything, living on SSI now, get meals on wheels, that's it, and aid at sheltering arms picks up my medications for my other Heath issues I've had for years, that I've never had any long term problems with at all. I now ride the medicade bus to get to appointments, thats rough ! It just wares me out. Bassicly I just sit here in this house, alone and sick, not knowing what to do or think  ? Please Help.

[mkh9]

Yes I know what you mean. I am trying to clarify some of the things to make sure what goes out there are correct to the best of my ability too.  Regarding your statement about HIV and having a drug treatment vs. EBV. This is sort of a philosophical question. One is how much money can they make from an HIV drug vs. an EBV drug. Then there is that EBV may just be more elusive and difficult to treat or find a cure for like the common cold there is no cure. It mutates quickly. EBV hides out in cells. They have tried Acyclovir since it is in the Herpes family but it doesn't work.  I don't know how much research has been done on this despite the high numbers of people that have been infected and the chance that you can get cancer from it although it is rare. Right now the pharma companies are not spending much money even on antibiotics despite the many bacteria that are multidrug resistant either because the cost is so high due to the FDA forcing them to have such long clinical trials (which are needed). So, that is part of my answer for now.
mkh9

[mkh9]

From what I have read no. It is from intimate contact with saliva. And, direct saliva exchange. The virus probably dies off quickly on the glass or object. Still I find even though they say to not have any special precautions with other adults in the house for example if someone has a new case of mono. I still wonder about if there was a child in the house . But I know a lot of children already have it too. I would feel odd if it were my child even though I know better.
mkh9

[trader64]

One more question.  

  Can you really get ebv from sharing a drinking glass?

[mkh9]

trader64 it is not an exaggeration that you have antibodies to EBV as an adult. Most people have antibodies to EBV, and oral Herpes type I from kissing etc. they also have antibodies to CMV. These you get from kissing or drinking after someone when they are in the infectious stage. They don't always know this.
mkh9

[mkh9]

But see my message below.
mkh9

[trader64]

Thanks mkh9  but i wrote this comment to raise awareness that the medical community itself may not be giving out all of the info on this virus.  To come out and say that up
to 90% of the population has it sounds very exaggerated.  If this is the case where are the drug makers for some type of relief meds?   Far fewer of the populace has HIV and there is a buffet of meds out there for that disease.  EBV can (from what I have read) cause death by way of cancer, lymhoma, MS, blood diseases, etc.
Cant they come up with something similar to Valtrex for EBV?

[mkh9]

All cases of mono are caused by Epstein Barr virus. But Chronic fatigue can be caused by EBV and also Herpes viruses . I have to check which type it is I think 6. Epstein Barr viruses are in the Herpes family of viruses. I think there still is not 100% known about these viruses but also fibromyalgia can cause chronic fatigue and other things. I don't know if they are turning a blind eye or not but it seems they do that to me with my chronic back pain as well. It seems as  though any chronic problem is swept under the rug. Most cases of mono are when people are children and they are very mild like a cold. So you don't have classic sympotms like you get when you are a teenager or older adult.
hope this helps answer some of your questions.
mkh9

[trader64]

Hello All,

  I want to address an issue that has been bugging me for a while,  We have been given the info that ebv is very common.  I just was diagnosed at age 49

  If the stats are true that 50% of mono cases are ebv caused and I have only heard of maybe 5 cases of mono in my lifetime how prevalent could ebv be?

  I tend to believe that CFS is really MS/lite  and is a continual progression of ebv .
  My next question is why is the medical and science community turning a blind eye on this disease?