Padro46

[ginak]

Padro,

I pray that this is the case for you and me. If this is the case, I would make sure that you are going to someone who is really familiar with Chronic Fatigue Syndrome. This way, you know that you will be receiving the best care possible. I will keep you in my thoughts and prayers. I hope that we both find the answers that we are looking for very soon.

[ginak]

Hey,

I sent you some info through IM as well. I really hope that my endo is willing to acknowledge my "low normal" results. The rheumy that I am going to see may be more interested in this more so than the endo, but I can only hope that they will look at all of the results. I also think the endo should run another cortisol.

[PlateletGal]

Hi Gina,

I just pulled out some of my labwork and the normal range on this lab report for a TSH is 0.45-4.50 nU/L. I found another lab report with a different normal range... but nearly the same as the previous one. I guess it depends on which methodology the laboratory is using. Now you have me curious... and I'm going to have to call my Endo and find out what my last result was (I think was 1.0) and was the normal ranges are !

I just found this link on this (I like prohealth and co-cure for my information.... they are the best two resources on info on CFS... IMO):

http://www.prohealth.com/library/showarticle.cfm?id=4903&t=CFIDS_FM

What I like is the article says, that people who have autoimmune thyroid disease may present with ME/CFS-like symptoms. For some reason, it seems like more and more women are having thyroid problems... and treating our thyroid can make a huge difference for people with autoimmune thyroid disease.

I'm sending you something via PM... so check your inbox when you get a chance. It may be helpful.

[ginak]

Hello Plateletgal,

My TSH is 0.58 and the normal limit is 0.34-5.60, but I have seen conflicting reports that state anything below 1 is abnormal. The other thyroid test that he ordered was a TPO(thyroid peroxidase) AB. My level was <10 and normal limits is 0-34. I looked this test up but was not able to find out much about it.

[PlateletGal]

Hey... I was a medical mystery too !  And a word that I frequently saw in my medical records was "puzzling symptoms". LOL ! You wouldn't believe me if I told you how long it took me to get a diagnosis. I pretty much at one point diagnosed myself. I cried after reading about CFS on the internet... I knew I had it and yet it was a very difficult diagnosis to accept.

Your low, but within normal range thyroid, doesn't surprise me at all. I have the same... think my TSH is 1.0 and if it were lower, then it would be abnormal. The truth is, people with fibro and CFS have thyroid problems, but guess what ? The standard thyroid tests will NOT pick it up.

You can read about it here and read which thyroid treatments work better for CFS patients. I say "CFS" but you haven't been diagnosed with that.... but you do have EBV problems and so this information will probably apply to you (it certainly can't hurt):

http://www.medhelp.org/health_pages/Fibromyalgia/Diagnostic--Blood-Tests-to-Help-Diagnose-CFS/show/376?cid=39

Health Pages for Fibro & CFS... TONS of info and regularly updated:

http://www.medhelp.org/health_pages/list?cid=39






,

[ginak]

Just left the dr's office and was told I was a medical mystery. I told her that I did not think this at all, but instead, I feel as if they are just not diagnosing me correctly and are too busy looking for MS. I received my TSH level and it was on the low levels of normal. The neuro ran some other thyroid panel on me, but it was a weird name. My results are in the car and I am at work. Would this low level normal be a red flag for CFS/ME/Epstein Barr stuff?

[PlateletGal]

That's one of the reasons why I chose my nic, "PlateletGal" ---- platelets stick together ! We are together in this fight !!!

[ginak]

I wouldn't think of going anywhere! LOL!!! You two have really helped me so much. I feel better knowing that I am not going crazy and losing my mind. I have gained so much knowledge on this forum. Thanks for all that the both of you do. I will be here and not going anywhere! Together, we can fight this thing together! Thanks for all of your help!

[PlateletGal]

You bet ! This disease (I refuse to call it a "syndrome") is getting more attention... but most physicians aren't aware of the research. There is new research on CFS that is coming out on the daily basis. So please stay with us. I post a lot of this information on the fibro / CFS board and I'm always here for you:

http://www.medhelp.org/health_pages/list?cid=39

[Padro46]

Stay with us PlateletGal has been here for me for months we will be here for you.

[PlateletGal]

One more.... click on "CANCEL" when it asks you for your username/password:


http://www.immed.org/fatigue_illness_research_files/ME_CFSAust[1].MeetingRev._99.rtf

[PlateletGal]

An excellent (in my opinion) article written for physicians on how to diagnose a patient with CFS.


Most patients with CFS usually have 2 or 3 of the following abnormalities:

Elevated IgM/IgG coxsackievirus B titer
Elevated IgM/IgG HHV-6 titer
Elevated IgM/IgG C pneumoniae titer
Decreased NK cells, either the percentage or their activity

http://emedicine.medscape.com/article/235980-diagnosis

[PlateletGal]

Here is a link to the health pages for the fibro / CFS forum, including tests that can help your physician diagnose you with CFS. Two tests in particular.... the sed rate (we have a very low sed rate) and heart holter testing I would suggest. They may have already checked your sed rates. I forgot the reason why our sed rates are so low (around 1-3), but there is an interesting reason behind it.

http://www.medhelp.org/health_pages/list?cid=39

[Padro46]

Thanks G

I hope this not just a way to get me to go away.  C.F.S.