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Diagnosed with myopic maculopathy, much point in thinking of the future?

Another OCT scan following up my previous posts happened today.
He diagnosed me with the above term in the title. He showed me a couple of cracks in my macula on the scan photos. I was in a bit of shock but I think he said something about the layers of the macula coming apart.
My only symptom is a tiny distorting floater just left to my central vision as described in past posts. On another scan photo which shows the cornea, there is a dark patch on it, he didn't know what this was as it isn't on a macula itself. He said the same dark patch is in the right eye but not quite as big. He didn't seem too concerned so I may seek private care at Moorfields as he didn't fill me with much confidence.
I'm 22 years old, and I hoped to get ICL implants next year. But if that can't be done now and all I have to look forward to in life is future blindness, what is the point? My mother has very high myopia also but has had no problems and she's aged 54, I can't even wear contact lens due to an intolerance to them and an eyelid allergy in my left eye which won't go even after steroid treatment.
Can someone shed some light on this diagnosis as I'm lost
9 Responses
233488 tn?1310693103
MEDICAL PROFESSIONAL
Use the search feature and archives to read about "myopic macular degeneration"   It is not at all likely that you will go blind from this. the quality of your central vision could be threatened however VGEF inhibitors like lucentis and avastin work well for the "wet" form of MMD.

I would suggest seeking second opinion to discuss your fears and prognosis. ALSO ask about ICL and whether you are a good choice given your maculopathy.

JCH MD
Avatar universal
I've not got out of bed since the diagnosis
233488 tn?1310693103
MEDICAL PROFESSIONAL
They you need to see a psychiatrist as  well. You are over-reacting. Get your family and friends and support group involved in dealing with this. Your mental state is more troubling than the eye problem.

JCH MD
233488 tn?1310693103
MEDICAL PROFESSIONAL
"Then you need to see a psychiatrist as well" Correction of first sentence.
Avatar universal
But I'm aged 22 and serious sight threatening problems are developing already
233488 tn?1310693103
MEDICAL PROFESSIONAL
Head over to one of the psychiatric forums on "Depression"

JCH MD
Avatar universal
A psychiatrist won't fix my eyes, I find that quite insulting
233488 tn?1310693103
MEDICAL PROFESSIONAL
-
Avatar universal
I got into severe depression after my vision started worsening and I heard for the1st time about staphylomas etc while  a dark spot was moving towards the center of my vision . I burst into tears before an OCT that would tell me about macular holes, neochoroid development etc. It is hard but eventually will learn how to live with that. Sounds impossible now but will . You will get the occasional ups & downs of course.Don't find it insulting from a doctor's point of you. Doctors are trained to not empathize with patients so  he just offers what can be offered to support you emotionally since physically we have limited options unless they can give us gene therapy tomorrow

Do you have the problem in both eyes? If not you are lucky and "grateful"
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