Well after a decent run I've picked up another seemingly permanent spot today. In the left eye just up from center. In that really annoying phase right now where it is extremely noticable. Can't wait until it fades.
Recently I started doing some weight training again. I wonder if that has anything to do with the flare up.
Has anyone tried any blood thinners (on regular basis) for treatment and prevention?
I've been reading this thread for a while and I can relate with most of you. I have temporary scotomas since I was 16 years old (same age when I got migraines with aura). I'm 29 now. I've never noticed any permament scotoma untill last year. Last year I got my first permanent one and since then I got 3 more. The first permament one was because of a cotton wool spot (CWS). The other 3 had no evidence of a CWS on the visual tests. I've done almost all possible tests (blood test, CT scans, MRI, cancer, heart, carotid, etc) and everything came back clear. All the retina specialists say it might be related with migraine.They say I have vasospasms on the retina veins and arteries and it causes the cells to die without proper oxygen.
How many of you have this symptoms and also have some kind of migraine? It would be very interesting to know if most of the people here also have migraine.
Ricardo Lopes (Portugal)
I have been told the same thing. Possible random micro vasospasms in the retina, related to migrains, but not in the traditional sense. I don't get them in my macular as its too densely populated with blood flow. However, outside of it i do. I get both temporary and permanent. To reassure, Im told it won't make me blind and my overall reduced vision wont be significant and they can never see anything wrong on my tests either. Its worse when im tired or have a cold. I have also had cws thought to be caused by a vasospasm (restriction of blood flow), the only evidence i have had of these.
I don't get head aches although i have had slight eye pain before. No know treatment, other than bending over at onset usually stops them. If i get them in my sleep though that can be a real pain. I learn to live with it.. just. Think happy thoughts.
Stupideye did you ever went trought any medication for this? My neurologist first gave me flunarizine for 1 month. It seemed to help a bit but I was still having scotomas everyday and I was having some side effects. After that I'm trying lamotrigine for about 2 weeks but it doesn't seem to be helping since yesterday I got another permanent scotoma. I don't know what else to do. I tried ginkgo biloba, magnesium and other supplements and I don't see any effect.
have any one tried flunarizine (sibelium) .. it is a vasodilator which works specifically on retinal vessels and used for prophylaxis of migraines .. i would like to try it but it isn't available in my country .. please dont try any meds without consulting your doctor
A week ago (4/1/18) i discovered a spot near to the center of my vision. The spot was visible when blinking or squinting and it looked like the kind of spots you see after looking at a lifhtbulb and then close your eyes. Kind of a burned image, or afterimage, that stays in your retina for a few second after you close your eyes.
Except this spot was not disappearing after minutes. The spot was there to stay, it seemed. So, I went to see an optometris 2-3 days later. Meanwhile I had researched what could have been and one of the possibilities was CSR. I had recently started taking Allegra and Flonase for my allergies (which i seem to get once a year). I read that steroids like Flonase could cause CSR.
I saw the optometrist and, sure enough, she saw the boil on my retina (after dilating my pupils). She called in a real doctor, an ophthalmologist, and she also saw the boil. She said it was most lilely CSR (central serous retinopathy) and scanned my retina to make sure, then refered me to a specialist of the retina. She also said that Flonase could cause it in sensitive people as well as PED5 inhibitors like Viagra and Cialis. I do not take those but I had in the past. She was able to see a little scar and she said that something similar maty have happened inthe past.
I have an appointment next week with the specialist and I will post after that.
I rarely hse any drugs but, so I can definitely pinpoint to Flonase which triggered the CSR. If you see this spot in your eyes, call your doctor and ask if you can stop amy steroid you are taking as they could be causing it.
More sensitive seem to be the type A personality and people under a lot of stress (cortisol).
Hope it helps,
I’ll keep you posted.
Wow, this forum has changed. Anyway, I only had a few spots in the past 6 months. I was so happy. But this week has been crazy! Seriously, I've had at least 20 random temporary spots since Monday. I have no idea why but I have these periods when I barely get spots and then I get MANY. I can't figure out why because I don't do anything differently, I'm not sick, nothing has changed. I'm so confused...
As a follow up I was doing some internet research and found some articles talking about Patent Foramen Ovale (PFO) as a cause for retinal vessel occlusion. PFO it's also related with migraines (almost everyone with this symptoms have migraine). Anyone performed a Transoesophageal echocardiography for diagnosis? After all the tests I've done I think I'm only missing this one...
yesterday a new spot appeared just to the left of the center of vision .. and it is permanent taking the appearance of a crescent .. this is the worst spot ever i had till the day ..now if i tried to read with my right eye it is very difficult as only i can view one letter at a time .. lets say word "crazy"when i look at the center of the word the letter "a" i cannot see the letters to the left "cr" .. now that is disturbing .. thank god i have two eyes and the overlapping fix it a little .. may be it is not noticable in normal life using two eyes .. but now if i used only my right eye and looked at a person's face and centered on the nose i cannot see his right eye .. we cannot say this disease is not disabling it slowly render you disabled and have a toll on your life increasing stress .. what am i saying don't under estimate this f***ing disease .. i used to read books flawlessly with one eye now i can't
did any one here tried oct-a as a diagnostic test instead of the regular oct ?!
the "a" stands for angiography
did some new diagnostic tests such as FA , OCT and OCT-A after my last large spot but all tests were within normal
and whats funny is the nurse giving me the reports said : congrats sir all within normal nothing to worry about
i don't know whether to be happy or mad
Hi everybody. I went through some of the posts and sounds like there hasn't been a clear answer yet. 3 days ago I woke up with a bright after-image in my left eye, close to the natural blind spot. It looked pinkish immediately after closing my eye, and greenish when I looked at darker surfaces. Well, not my first time this is probably the 5th spot I have developed over 10 years. Normally they disappear after a few days, and only one of them turned into a scotoma . But this one has a different story. The day after I developed this, I went to a yoga class and practiced headstands and handstands. I came home went to bed and when I woke up the next day, the the spot had developed a big tail! Just like a comet!! It's been there for three days now and I'm so freaked out that don't even wanna go see a doctor. The comet tail creates sever distortion when I look at "edges".
A lil history here, I've been dealing with a lot of MS-like neurological symptoms and I'm so scared this is a form or optic neuritis. I have a big MS fear and am a hypochondriac. I still don't know if my MS-fear triggers the symptoms or I actually have MS.
does anyone have MS here?
IOP may be an issue for you. Long term IOP usually leads to Glaucoma and Optic Nerve Damage. I am currently dealing with IOP as well in my left eye. The ER doc who took several readings on both eyes said it was over 80, and recommended going to the County Med Center for Laser Hole creation, which allows the fluid in the eye to leak out and reduce pressure that way. Prior to that, Diet and eye drops as per Ophthalmologist recommendation.
Hello All, I have been struggling with this same thing for years, getting scared, going to retinal specialists only to be told everything is fine. until one time I had a spot large enough for it to be seen via a slit lamp examination. I told the dr where to look, he made the light very small and I directed him to move the light until it was right where the spot was, and he was like Ohh... I see it... he said its a "White Dot Syndrome" maybe "PIC" or "MEWDS" he thought probably pic. its an inflammatory response.. kind of a side affect of too much inflammation in our bodies. he recommended I see a rheumatologist, I have not yet seen. it creates for many of us the blinky spots we see when we blink, or pass from light to dark, or fall on a edge of something light and dark. when I get a bad one, it kind of creates a smoke trail at first from the spot that I can see when I look up at the blue sky and blink (only when they are very new spots usually) I hope this helps someone. it has helped me at least understand whats going on. I have not found the overall solution, but I think its just to eliminate as much inflammation I can, which I am in the process of still.
I have the same symptom as you have. I also did a lot of examination and everything is normal. since bending over is working for most of us most of the time, I am skeptical about the blood issue. So I think maybe it's helpful to share my health condition and test results so that we can find a common issue. I appreciate it if you could do the same.
I have blood pressure. Usually, 14.5 / 9.5
I experienced Aura Migarin without headache 4-5 times in 5 years.
My HBB, from blood test, is quite high, 21, which the normal is 17
My testosterone level is higher than normal
Moreover, I tried to find the trigger of this symptom. So whenever a new spot is appeared in my field I try to remember what I did or ate during the day or even the days before and then try to find the common things. So far, what I have found till now are,
- Caffeine may trigger a new spot
- I may have a new spot during or after an intense physical activity such as playing soccer.
If you could find any other trigger, I would appreciate it if you could share it with us.
Sorry for my bad English. :)
well about the trigger no one knows for sure since it is very random but the most common one is eyestrain
about the bending down and whether it eliminates the problem .. it is obvious that we have 2 types of lesions .. one which is temporary and this usually goes away or respond to bending down .. but the other lesion the permanent one in my case do not respond to bending down
and some ppl mistake between the temporary ones and the permanent ones .. as the permanent ones usually subside leaving a smaller permanent scar and lots of ppl dont seem to notice it and mistaken it for the temporary ones but it always leave a permanent residue
So does anybody actually have progress fighting this crap? Nonsteroid eye drops seem to have ho effect.
I seem to have the same problem as you all have. I have it since August last year. What I see is a spot when blinking, but also when squeezing my left eye. It distorts the image and I seem to be able to manipulate it when rubbing my eye. Sometimes it is bright, sometimes darker and when squeezing it seems to be transparant but it distorts the image a bit. It is never permanent and it is always temporary. I went to the doctor and to an eye specialist with the problem but nothing came out. It is situated in the pheripheral part of my left eye. Sometimes I think it has something to do with the eyelid? I tried eye drops, but without any success...
I have had this propblem for almost 4 years. It started one evening when I had huge zig zag like pattern on my vision. After that I have had small spots come and go every now and then. Usually they last only for few minutes. Sometimes I get ones that last for few days. Yesterday I got a small bright spot and waited it to disappear but it's still there next morning. It's really annyoing I wish it could disappear soon. No idea what could have triggered it. Also nothing wrong with my eyes or brain.
Hey, I'm posting here again. I have this page on my bookmarks and check it like once a few months to keep updated. I just wanted to say that I have this problem since 14(the migrained with aura), I am 20 now. I have 3 permanent spots, one appeared when I was 16, in the left eye south-west from the center, I got used with it so much during these 4 years that I don't even notice it anymore. The 2 other spots appeared like 6 months ago, they are in the right eye above the center of my field of vision, they are really small and I already got used to them. I have few questions to clarify whether we really have same **** happening. Q1 : If you push your eye inside using your finger, while keeping the eye open, do you see some blurry black dots in your field of vision that disappear when you stop pushing it? Q2 : Do you see blind spots in both of your eyes, ( Left eye, to the left of the center, Right eye - to the right of the center ). Q3 : If you use your finger do pull down the skin at the bottom of your eye, do you see any blurry black colored contours at the edges of your field of vision? ( the stretch looks something like this https://thumbs.dreamstime.com/b/man-stretching-face-37532594.jpg ). Q4 : Do you have migraine with aura?
Looking forward to your answers. Just to chill you out guys, you're not the only ones having this problem, and knowing how modern technologies are nowadays, I can assure you that there will be a solution to this issue in the future. I'm currently on my exam session, but as soon as I finish, I'm planing on writing a detailed summary on this issue, linking to your descriptions and etc.. and sending it to all the possible research institutions, I will even post it online and paste the link here, so you guys can add the missing stuff and also send it elsewhere. We need to unite and try to slowly approach the right people, because there are a good amount of doctors who are working on researching this kind of unknown diseases. Have a nice day and enjoy your life the way it is, it's not that bad after all, people have much worse problems in the world if you think about it.
Hello guys. I've been taking flunarizine 10mg daily after dinner. I also have been taking chelated magnesium 400mg daily. During the day I notice a reduction of the bright spots. On the other hand I've been waking up with new permanent spots frequently. My first permanent spot was November 2016 but since it happened multiple times. Can't even count them anymore. I'm so distressed that I can't even sleep properly anymore. I wake up every day afraid of having a new spot and I spend like 10 minutes after waking up looking for new spots. I just can't live like this. I feel so bad and sad all the time and I'm so afraid of having a spot on my central vision.
I don't know what else to do. I tried all the things that seemed to help other people in here. I've been to multiple doctors of different specialties and done loads of blood tests and other exams.
My most recent theory is that it might be related to low blood pressure. Bending over helps because we are increasing blood pressure on the eye. I think that we have more sensitive retina cells that when the blood pressure drops our retina veins spasm. That can explain why it happens to me so many times during the sleep. During sleep our blood pressure drops. Whats your opinion about this?
well mrlega : this condition usually associate with some symptoms
1. the bright spots whether temporary or permanent that fades with time to permanent smaller scar with lesser bright spot
2. you become aware of your blind spot and you feel it increasing in size and having finger like extensions
3. you can see moving tiny particles against constant bright colored backgrounds
4. you become aware of centeral weakness of vision in the dark
5. when you look through your eye periphery you some time notice shadows in different sizes mostly big spot or finger like structures and you usually confuse it with a lash
6. you can notice your permanent lesions when you view small thin lines on an lcd screen with different background color as the line will appear interrupted
7. sometimes you can have more than one injury in the same spot and the spot starts turning into black instead of the surrounding color
8. sluggish image recovery response time
9. lots of these symptoms may be to extrasensitivity when you start focusing on your eyes
as to pressure on eye with finger poking this increase pressure on your retina and you will see different effects across individuals some will see bright or dark spot or even confined flashes of light in the periphery
Is anyone trying aspirin? If yes, what dosage?
Sorry for my bad english.
What makes you think that the spots are caused by damage to blood vessels? Some people have spots lasting 3-5 days, after which they disappear. Some people wrote that the spots lasted several weeks and then disappeared.
If the cause was damage to the vessels, then we would not have seen the regression of the disease.
It seems that the cause is the fatigue of the visual system. I will describe my thoughts in more detail later. I will also need your help in collecting information (I will do a survey), which my neurologist asked to assemble (he is trying to figure out the problem).
Just wanted to line myself up in this whole dilemma. ;-) I'm a 32 years-old male from Germany and I'm having the same issues/symptoms you guys have. My story follows:
The first spot I remember happened in 2006, so almost 12 years ago. It disappeared rather quickly, but it scared me enough to still remember it today. During that time, I worked at an elementary school (community service), so I suffered from a lot of colds and flus. I can tell you that kids are truly virus and bacteria spreaders. ;-) I don't remember having more spots after that event. Maybe I just ignored them.
A couple of years later, maybe around 2010/2011, I got my first permanent spot. It developed when I had a cold again, not taking any medicine though. It faded into something really small, and I got very used to it. So much that I don't even care.
1-2 years ago, I developed my 2nd permanent spot. I don't remember whether I had a cold again or not. The spot was very noticable for a couple of days, because it got stronger every couple of hours, for a small period of time. Until it faded into something really small again, just like my first spot. Again, I don't care about that one as well. It's just too small.
In April this year, I woke up and had and arc-like thingy, from close my central vision up to the natural blind spot. What I found out fairly late is that the origin of that arc was indeed another spot. But that spot's right at the edge of the natural blind spot. The arc disappeared after 2 days. When I really try hard (blinking, squinny etc.) I can still see a part of that arc. Because the spot is almost entirely in the natural blind spot's area, I don't care much about it.
However, 2-3 weeks later, so like 1 1/2 months ago, I got another permanent spot, again after waking up. It's the first time I got such a spot in my left eye — all other spots developed in the right one. For 1-2 days it was very noticeable, but then developed into something smaller. However it's not as small as the others. Especially when looking at blue or blue-ish things (especially screens), it shortly flashes, and I can hide a small mouse pointer in it.
On a daily basis I have those very subtle white "spots" that disappear within seconds or minutes. Sometimes they are a bit bigger, but usually they are small. Often they are translucent, sometimes they are not.
I went to an ophthalmologist when I got the last permanent spot (never went to one before — kinda crazy, I know, but the small spots just didn't concern me. I even got used to the situation, like when a new spot appeared, I thought "Meh, annoying, but it'll vanish anyway — and if not, it will fade into something small I don't care about"). He took a good look of both of my eyes with a slit lamp and a microscope lense(?) of some sort.
Result: vitreous body detachment. He said it's "normal" when getting older, and that the vitreous "pulls" on the retina. At spots where it's attached very good, small injuries can happen. He said that my spot will most likely heal, and that I don't have to worry about it. When I see flashing (specially in the dark), mostly 90° from the side, I should come back immediately, as that's a sign for little holes or cracks in the retina. But unless that happens, I shall only come back in 1 year, for a routine check.
The thing is: My mind is very focussed on everything happening in my eyes now. I'm blinking a lot to check my spots, and check for new spots. I see stuff I would have never seen before, just because of focus. I guess you guys know that condition, and how that contributes to your daily mood. :-)
My plan is to make an appointment with my general practitioner for doing blood work etc, to see if there's anything wrong. Also I'm thinking about seeing another eye MD for a 2nd opinion, or to pay for an OCR "to make sure". However I usually try to trust the doctors — especially when they seem competent. ;-)
Some facts about my person/health condition:
- 32 years old
- 1-2 times per year, you guess it, migraine with aura
- BMI 32.6 (way too much; my wife is pregnant, what can I do? ;-))
- smoked cigarettes from age 15 to 27
- blood pressure is usually at 120/70, but often lower
- I watch my whole body very closely, not an axious person anymore though (usually I find something, flip out a bit, see a doctor, and get happy again ;-))
- I take no meds
- My fitness is not good at the moment (stopped going to the gym when I had a super heavy tonsillitis followed by an allergic reaction; just didn't find the motivation after that; I never had any spots during workouts though)
- I'm a programmer and entrepreneur, meaning: I look at screens for 80 % every day. I don't feel stressed, but I'm good at suppressing stress, so I don't know whether I really don't have any. :-P
- I'm slightly myopic, around R -1.25 and L -0.25 or something. I have glasses but usually don't wear them.
- I have dyschromatopsia (often not able to distinguish red from green colors, in certain light conditions)
I really hope that the cause of all this can be found, and of course I really hope that none of us will develop a condition that's really difficult to live with. My spots, and I already have quite a few of them, are annoying, but don't influence my life negatively.
The only thing that really makes me kinda mad is the fear of getting more and more spots, and of course, getting one right in the central vision.
Hello guys. My neurologist put me in 60mg of Nimodipine every 8 hours. I've been taking this calcium channel blocker for a week now and it seems to helping in the frequency of the attacks. It seems that now I have less spots per day. On the other hand yesterday I got a new permanent spot in my right eye :(
I'm getting new spots very frequently and I don't know what else to do. They are all appearing during sleep.
If this is a vasospasm shouldn't this medication be working 100%? It's a vasodilator so the spasms shouldn't be as strong as before. I really don't understand the real cause of our spots...
I get a split second bright spot when I blink, especially after I am on my iPhone or computer. I also have recently been diagnosed with PVD which is complicated by the separating membrane being stuck on my macula. I do not have a macular tear or whole. Im under a doctors care and waiting for the PVD to resolve, hoping for the best (no macular holr).
still having new lesions every couple of days .. you get use to it till you get a big one .. i made a group on fb called bright spot when blinking
may we all find a cure soon
Has anyone ever went to a genetic doctor? Someone told me it might be worth a try.
Most of us have this for several years and it's also linked to migraines. Besides going blind my biggest concern is that the ischemia events also happen in the brain.
Guys, how many spots do you have? I have 2 in the left eye and 4 in the right (I'm sick for 2 months).
having a new big spot in rt eye .. thanks god it is not in the centre .. if i look at the centre of the mobile it is just above the home button .. i made a page on fb for easier communication by the name of "bright spot when blinking"
so nothing new ?!
When you have flashes and floaters in your eyes, you should absolutely see an eye Dr. It can be early sign of detachment of the retina. Don’t wait...
My eyes been acting very strange these past few days, had little sleep, drank my fair of beer n wine, lots of sun. Yest I noticed bottom left of left eye a “bright spot” it subsequently went away. Also noticed two lines in peripheral left eye to the right.
Has anyone else got lines before? Got another one today, had some at around lunch time that went away again. Had another for the last 40 mins. Left eye again that seems to be getting smaller so should resolve. In the ten years iv has this “condition” iv never had it as bad as this. Feel absolutely fine other than v tired. Going to go to eye A nd E again this week. Maybe tomorrow. I can’t live like this. I’m thinking, AZOOR, PAMM, or something similar (which I’d be fine with) Of course, worry about the worst. Humph..
About to go to eye A&E, il let you know the results.
What do you guys think about autoimmune? Susac syndrome? Since this is something that happens to us for so long (more than 10 years with me) it kinda makes me think that it can be something autoimmune...
well the large spot i had couple of days ago subsided to a smaller scotoma than flared again ??!!
please all join facebook group "bright spot when blinking"
Friends, yesterday I had scotomas in the center of both eyes. At first they were small, then they became big and colorful. It was a migraine with aura. There was no headache.
I've never had a migraine in my life. The first blind spots appeared three months ago, and now there was a migraine.
Coincidence? Very much I doubt. I do not know what reason you have, but in my case the cause is obvious - it's a migraine.
well i went out driving today without my sunglasses and i had 2 episodes
every episode stayed for like 2 minutes
the 1st one was like multiple bright spots simulating flash after image but in spots pattern and it was so tense that these spots can be visible even with eyes opened
the 2nd one was like lines and zigzags over each other .. also vanished scompletely after 3 minutes
but i failed to notice whether they were seen in both eyes or one eye since the afterimage was too strong and does not fade when you close your eyes
please all join facebook group "bright spot when blinking"
anyone tried electroretinography or any electrodiagnostic tests ?!
please all join facebook group "bright spot when blinking"
I have had these for 4 years. Though unlike most of you, I rarely get long lasting spots. The longest lasting spot I had was 2 days. I get them almost daily, im so used to them I don't really even notice them anymore, unless they are big or stay longer than 2 minutes. My eyes are normal and my brains are normal. Would definetly be interesting to know what the heck can cause these :/ My spots are gray/pink in the bright light and green in dark. I have had zigzag in my vision once, 4 years ago, after it the spots started appear. I guess these could be some kind of migraine symptoms but why would they come daily? Also I have no headache.
Anyone else been diagnosed with sleep apnea? Just wondering if it could be related. I've been previously diagnosed with mild-moderate sleep apnea. As a result I now sleep on my stomach.
I've been sick with 3 colds over the last 6 weeks and have been sleeping poorly due to blocked sinuses. I assume that my apnea has been worse due to not being anlble to breathe through my nose. I've often woken up on my back. I've also been in undated with spots during this time.
I know that sleep apnea is associated with eye troubles and neuropathy. Just wondering if anyone else has it?
Just wondering what people have found effective to combat the depression/anxiety associated with this affliction?
I had been coping reasonably well this year. That was up until this recent spate of spots associated with My recent run of 3 cold/ flu/ infections over the last 6 six weeks and the myriad of spots which occurred and persist as a result. One in particular, which occurred end June, is quite noticeable, fully blind in that area, and really getting me down.
I'm really spiralling down. I can't even bring myself to get out of bed some mornings. I don't want to face the world.
Thanks Kyo, I agree stress is my major trigger. Trouble is that the spots themselves cause the most stress :( and they are so hard to just ignore when they are flashing all over the place.
Sleep apnea is a definite trigger in my case also. I woke up with a new spot this morning, after a night with a blocked nose and waking up multiple times. I can deal with the sleep apnea most times with my mouth splint, but when I am sick it appears ineffectual as it wort of locks my jaw forward and closed and encourages nose breathing. I usually wake up often with my mouth stuck shut because of the splint. Might be time to switch to a CPAP machine. Annoying as my sleep apnea is only 'mild' according to my sleep study, except when I am sick it seems.
These days I am actually scared to go to sleep for fear of a new spot.
Also, really annoyingly my spot I got a few weeks ago is really flaring today. F**n annoying.
How long do peoples 'flare ups' of old spots last? Do the spots ever get worse after a flare up permanently?
Anyone found a trigger for flare ups?
Hey everyone! Its been a long time since I've been on this board and I thought I'd come back to share my positive news about the big improvements I've been experiencing. To quickly recap I'm female, white, 33 nearly 34 and in good health. In 2014 I developed a mild visual snow after experiencing my first ever migraine with aura. I am not on any medications and have been off the birth control pill for a year. I developed the bright spot when blinking in my right eye in March 2017 and shortly after a few in my left eye so have had this condition for 1 year and 5 months. I like some of you have both the permanent spots which are very bright when they first appear and fade to scotomas and the transient bright spots which last minutes to hours and can be removed by bending over and allowing blood rush to the head. Since October of 2017 I've seen such an improvement with this condition and my visual snow that I forget that I have them and only remember when the odd bright spot pops up which is becoming increasingly rare! The very first bright spot I got has faded/healed so much that I no longer see it in everyday life and I have to really look for it when passing my eye over high contrast areas eg blinds, edge of the computer screen. The other spots in my left eye are on the mend as well and the transient spots have all but stopped! On average I see 1 transient spot every few months which only lasts a few minutes. So how did I see such a big improvement? I radically changed my diet, but not for this condition for yet another condition I experienced alopecia areata. In October 2017 after yet another heavy cold I went to the bathroom and caught a glance of myself in the mirror and there right on my hair line was a perfectly round smooth shiny bald spot about the size of a 5p (British currency) Which hadn't been there 2 hours before. I went to my GP who wasn't concerned about it and said it would grow back but if it didn't she wanted to test my blood for iron deficiency and to see what my thyroid was doing. Unsatisfied I went to the Belgravia hair loss clinic in London where a trichologist confirmed that it was alopecia areata and informed me it was my bodys immune system attacking my healthy cells. I asked if it could have been due to the heavy cold I just had and she said yes alopeica areata sometimes has a trigger like a virus. She said she thought it would grow back so did not offer me any treatment like topicals or injections. I went home and started researching for hours about auto immune diseases and people who had successfully treated them with out medication. This when I discovered the Auto Immune Protocol, Dr Wahls and her Wahls protocol for putting multiple sclerosis into remission and the ancestral health movement. Some of you have probably heard it being called the Paleo diet. I put myself on the Auto Immune Protocol Diet which has permanently changed the way I eat. The Auto Immune Protocol is about healing and sealing the gut which is where 80% of your immune system comes from and getting rid of inflammation in the body. I'm not going to go into great detail here but in a nut shell you remove all know food allergens and once you have seen improvement in your condition slowly reintroduce foods back into your diet. After completing the protocol I have switched to a Paleo diet and have never returned to my original eating habits. The health benefits I've seen are astonishing, In a month I lost 1st and my weight has remained stable ever since, I have never experienced effortless weight loss which stayed off in my life. After a while I started to realize hey I'm not seeing as many spots as I used too, I've even come off the very high doses of Magnesium I was taking orally and via Epsom Salts and now only use magnesium spray a couple of times a week. I am so pleased with what I have experienced I wanted to come back and share this with you because maybe it will help someone else. This has really got me thinking about all my weird conditions and if they could all be related in some way? Could migraine with Aura, visual snow and alopecia areata all be linked to inflammation in the body and to an over reacting immune system damaging healthy cells. I really hope so and I really hope that by using this diet I have put my bright spots into remission. If you are unconvinced about how powerful this way of eating is I want you to go to youtube and put in Minding your mitochondria | Dr. Terry Wahls | TEDxIowaCity and watch how this amazing woman reversed her sever multiple sclerosis. I am happy to answer any questions anyone has for me about my diet and how it has improved my life, the best thing is is feeling like I have taken back control of my body and all my anxiety about all my conditions has gone which is liberating. I really hope this will help some of you out there that are feeling down about this. There is hope xxx
Hi! it has been some time scince I last visited here. For those who don't know, I got my first spots at winter 2015, earlier that autumn I had a zigzag aura on my eyes and haven't had zigzag scince then. But after that the spots started. My spots are bit different than the ones you guys have, I get them daily and they last about 2min at max, then disappear. I have gotten long lasting spots only twice and they have lasted for 2 days. I also have many visual snow symptoms, for example I have really intense afterimages and my eyes are quite sensitive to light. I start to see "stars" when I look at pure white screen. I have been at MRI january 2017 and nothing out of ordinary. I was at eye doctor last month and my eyes are completely normal. I have epilepsy though a really mild one scince my only symptoms ever were "deja vu" feelings which also stopped after I got medication for it. I have had huge, well spots... no more like uuhh... smudge (? is that a word) looking spots on my eyes 3 times, almost blinding my vision fully on one eye. Yeah I forgot to mention that, my spots seem to only come for one eye at the time, which would mean that the problem is not in the brain but in the eyes... So weird. Im going to neurologist again hopefully soon cause im starting to get annyoed at these spots, there must be something that causes them and like I said sometimes they can be really big and scare me so I would really like to know what causes them. Sorry for bad english I post again when (or more like if let's see if doctors actually believe me) I get to the neurologist. My guess for these would be that they are somehow migraine related, seeing how mine started after I got the zigzag aura.
I posted on Nov 19, 2017: https://www.medhelp.org/posts/Eye-Care/For-those-with-the-bright-spot-when-blinking-symptom/show/437885?page=63
Most people have the following symptoms:
* bright spot(s) in one of the eye(s)
* fades over days to match colour of background
* though brighter on dark background
* darker on bright background
* and which is much more easily seen when it passes over a high contrast edge or when blinking or quickly waving finger in front of eye.
* scotomas usually shrink in the first couple of weeks and either disappear entirely or if they remain then do not change after this initial 2 week period.
* most scotoma appear and disappear entirely in seconds, minutes, hours, days. A much smaller number remain permanently.
* if a scotoma is first observed upon waking, then it is more likely to be remain and become permanent.
Anecdotal (I think only I have reported this so far):
* have observed scotomas are larger towards the periphery of their vision.
* have on at least two occasions, quickly (violently?) moved eyes to extreme to look to side or behind me and instantly (within a second) observed a bright scotoma that then fades very quickly.
Most people posting here report find the following:
* bending over will help a scotoma that's recently appeared to return to normal vision.
* bending over will not help resolve a spot that's appeared a while ago (usually those first observed upon waking).
My current hypothesis:
(though some people clearly have other conditions such as migraine with aura)
Excessive muscle tension in the muscles for moving the eye (https://www.aapos.org/terms/conditions/22) results in compression of the optic nerve by the annulus of Zinn (https://en.wikipedia.org/wiki/Annulus_of_Zinn). This results in temporary collapse/constriction of blood vessels.
This would match with:
* bending down resolving recent scotomas (due to increases blood pressure in the head aiding the blood vessels to open)
* bending down not resolving older scotomas including those first observed upon waking (due to the nerves being permanent damaged / dead)
* correcting posture, relaxing and bending down making it less likely (due to decreased constriction of optic nerve and it's blood supply from releasing some muscle tension in back, neck, scalp, face and eyes)
* stress making it more likely (due perhaps to increased muscles tension, and secondarily from dehydration, tiredness)
* desk work and modern life style (due directly to eye strain and it's associated muscle tension and from bad posture)
This would match with anecdotal evidence:
* scotomas increasing in size towards periphery of vision (due to data compression meaning that a blood vessel near edge of optic nerve would affect a large area of vision near periphery vs one nearer the centre only affecting a smaller area of vision).
* moving eyes quickly (due to bending of optic nerve and reduction in blood supply as it is pushed against annulus of Zinn / some other structure).
Not sure how:
* illness makes it more likely (due to ?? )
* exercise makes it more likely (due to ? dehydration, ? lower blood oxygen so if there was a shortage in your optic nerve it's now "pushed over the edge", tiredness of muscles resulting in poor posture such as crooked neck.)
Test this theory yourself:
DO THIS WITH CAUTION - MAY RESULT IN PERMANENT BLINDNESS
Try to tense the eye muscles by looking as far left / right / up / down as you can.
To get decrease blood pressure then stand up whilst you are doing this.
To get extra tension you can move your head slightly in opposite direction to the one you are looking.
When I am experiencing many temporary (a few seconds) scotomas, if I hold that position, within a few seconds I start seeing many more scotomas appearing and staying. Upon releasing the tension the scotomas resolve. On one occasion I had to aid it resolving by bending down. DO NOT MAINTAIN THIS POSITION FOR LONGER THAN A FEW SECONDS - MAY RESULT IN PERMANENT BLINDNESS.
Problems with theory:
I personally feel the tension around my eyes but also below them in my face... which does not fit directly with the annulus of Zinn theory unless there are longer range muscles / tendons / face structures that result in reducing blood supply to optic nerve / retina.
I'm very happy to say that although I have about 10 permanent (monocular) scotomas that my incident of permanent and temporary scotomas has decreased a lot. Over the few months, per day I see between 0 to 1000 temporary, lasting from 1 to 30 seconds. This is down from a max of 10 per second (or about 800,000 per day if you do that math).
I haven't changed diet, I haven't drunk less, I'm exercising about the same amount, I'm about as stressed, I get about as many colds etc, I'm as hydrated, I'm not taking any medication.
I am however a lot more aware of tension in and around my eyes (and the rest of my body).
I am more able to relax my face and eye muscles.
I am more aware of posture and correct posture can significantly aid relaxing.
I always try to relax before getting into bed, and whilst in bed, make my head angled slightly more towards my chest as this feels like it releases tension in my face around my eyes.
I am much more relaxed and content about going blind.
I aim to set up a small scale clinical trial in 2019 to measure with much high resolution, the electrical performance of the optic nerve and retina. I already have a proof of concept. I will post back here with an invitation of those in or who can get to London (UK) to join. Or feel free to message me via this site in the mean time.
Well unfortunantly i've continued to get a bucket load of spots since my last post. I've never had a year like this one. I have so many new spots it isn't funny. Disheartingly I have got one recently in my left eye which overlaps with one in my right. Just below center in the vertical axis. Makes life extremely frustrating as now i see one or the other everwhere there is a vertical line.
I've continued to get sick every few weeks without fail (10 times since the end of June). Each time i get new spots.
Every day i give myself eye aches from checking the spots. I know it doesn't make a difference, but i can't help it!! Hopefully eye strain is not causing more damage ...
One of my other random theories is that perhaps the rapid transit elevator in my building is contributing somewhat. I've been working on level 30, and go up and down multiple times a day, always feeling pressure behind my ears and eyes on the trip up and down.
It is funny how this disease has sapped all my lustre and joy for life this last 7 years. To be honest, if I could go back in time and choose to never be born, i probably would.
Been perusing this thread for some time. I may have something similar but maybe not. When I first get up in the morning and look outside or at bright objects, I get a pea sized simmer/flicker just to the right of my central vision. Its not a flash, more like a distortion that rapidly pulses. I have had it long before a vitrectomy in that eye a year ago. It goes away after about 15 minutes. I have noticed it on occassion after taking off my sunglasses on a bright sunny day. Eye MD can't see anything causing this. Thinks it may be my blood pressure being lower i the mornings and I can confirm that my BP is low in mornings. So, I don't know. Its annoying but hasn't gotten any worse and some days I don't experience it. Certainly not as bad as some of you folks have reported. Regards, Jim