Hello all. I used to post on this thread years ago. Anyone still check in? Any diagnoses or treatments?
I have had success treating this with posture.... which sounds bizarre but I found I had tension in my upper back and neck and that supporting my head on my chest rather than pushing it back reduces occurrence and helps resolve any bright spots (like a camera flash after image) I see in my vision.
The long version:
3.5 years ago I had a stressful weekend doing some charitable work and not getting much sleep, eating poorly mostly sugary snacks, getting angry at lack of progress. I woke up on the Monday morning with a bright spot in one eye. Could just about hide a mouse point in it. Went to optician after 24 hours, couldn't help. Went to ophthalmologist, they couldn't help (though have recently found but not yet been to see one who has said they have at least seen two other people with this symptom).
1.5 years ago, similarly stressful week but for work related reasons and I picked up another one in the other eye. Again noticed upon waking n morning. This was also after a period of high occurrence (>10 bright spots per minute lasting for about 30 seconds in average each and over a period of minutes to days under range of conditions: rested, stressed, relaxed, exercised etc).
1 year ago: had first instance of a transient one lasting for more than a few minutes, in this case about 10 hours, before the vision restoring to normal.
6 months ago I started a new job. A week before starting the job I also saw a good osteopath about a strained neck and whose advice I misunderstood / mis-remembered. I thought the stress of the impending job was causing it but I had good days of no transient spots, mixed with bad days of many transient spots, some of which developed into permanent blind spots (with one being a large arc but quite far out from centre of vision and in one eye only).
After 3 months of this much greater occurrence of transient spots I did a meditation course. I made a lot of progress in making peace and accepting that everything changes, and that at some point I will lose my vision either because I go blind or because I die of something else... this definitely helped but didn't stop them coming back with and indeed occurring even when I was at my deepest point of relaxation and just saying "bring it [blindness] on".
A month ago I went back to osteopath because I wanted to see on the off chance if there was anything he could do to help (he's £75 an hour vs £350 for 20 minutes of no help from a neuroopthalmologist... though they are a highly skilled and wonderful person... they couldn't help in my case). As soon as I stood there again he said: "You haven't remembered what I told you have you" * oops *. Since then every time I notice transient spots I __personally__ 100% of the time realise my back is flat and my neck is crooked.
Pushing my bum out by using my lower back muscles gently maneuvers my chest under my head. I can feel my shoulders relax ever so slightly and move back and down. My breathing comes more from my belly and on breathing in my forehead gently moves up and breathing out moves down. My neck relaxes on the sides and down the back and my head feels more loose on top of it.
Things I tried before:
* relaxing (used all sorts: sleeping, meditating, playing games, socialising, sex with partner, absorbing work, etc): didn't work as would still see transient spots with same occurrence as when in stressful situations.
* bending down to get head lower than heart: worked 100% of time but didn't want to live life like that... also felt uncomfortable doing around coworkers in office even though they were very supportive so would have to do in toilets. Made it quite impractical. Probably worked due to: increased blood pressure in spasming capillaries to help them open again and by relaxing and stretching tightened neck and back muscles.
* taking magnesium: didn't help me though only took 200mg per day... as was scared of the "high strength" magnesium doses some people were recommending... I definitely do not want to suggest the magnesium is not beneficial, just for me at that dose it didn't help prevent or resolve transient ones.
* hydration: difficult to tell but always seems to help though not resolve.
* sleep: most spots developed during sleep and I noticed during the recent period of very high transient spot occurence (sometimes > 30 per minute, but lasting for ~30 seconds and also of more varied shapes) that actually lying down on bed on back made them occur but rolling to side relieved.... again fits with muscle tension in back but perhaps also something about muscles in eye pulling and squeezing eyeball back into socket? Sleep and being well rested is generally a great idea, I notice more transient spots (and that my postures worse) when tired.
* trying to relax muscles around eye: I noticed, again on the deep Vipassana meditation course that I seemed to be holding tension around my eyes and that when I could relax it it seemed to help reduce and or resolve the transient spots. I found it *very* challenging to relax eye muscles in a way I found convincing... it's far easier to tell when your neck is crooked or straight but I'm not convinced I really know when my eye muscles are overly tense or relaxed.
* exercise: reduces stress levels but I found on multiple occasions, particularly about 15 minutes in that I started to get spots occuring and sometimes bigger and more persistent. I went for a jog today and realised I get tired due to exercise and my lower back muscles "give up", resulting in poor posture, much more tension in neck muscles etc... though feeling much happier.
* just not observing them / when they happen mentally saying "bring it on, if I'm going blind, fine, I'll face it and I'll cope": This is wonderful for psychological health but did not seem to effect prevalence of bright spots occuring.
Less interesting as most people just want to get better by reducing transient blind spots (even though permanent ones will be with us whole life until medical science advances far enough). As mentioned many times on the forum: probably some kind of capillary spasm. I'd guess it's in optic nerve and maybe in retina as well. For me the spots are usually much larger out to the edges of vision which would make sense as retina / optic nerve does compression of data, therefore if a single capillary closes near edge of optic nerve it will affect the same number of nerve fibers but this will be carrying data from much larger area of peripheral vision.
Apologies for the long post, there's way more to include but salient points are there (I think / hope). Hope it's useful for someone.
Hey guys, did someone with this dark spots ever undergo LASIK? Is it safe? I mean is it safe to go on LASIK when i have this dark spots in both of my eyes too?
Well... today. Very tired haven't slept properly for the last few days, ladt night was really poor, lots of alcohol consumed the past week, esp yest, poor diet the last 4 days. (Esp last night choritzo risotto, lots of butter, oil, choritzo is oily to! With cream). Revently split up with long term girlfriend which has been taking its toll emotionally.
Today, scared the hell out of me. By far the worst episode I have ever had. Both my left and right eyes! Left eye, left to central point of fixation in my paracentral vision, quite near the edge, like a line, almost like a tick with tiny little ones around it. Right eye, slightly highier, different position but also to the left, kinda like a tick as well but with tiny little flashers around it. Has improved through out the day in both but still noticable, bent over multiple times (which usually resolves them). Not bright flashy like others, but noticable. Tested on ms paint and can see through them (maybe certain rods being effected or retina layer). Almost yellow tint in the affected area. No headaches, no other symptoms. I just want to curl up and die at this point.
Hi stupideye. Did your condition improved? Any permanent blindpots?
Very glad to hear that it went away. I have the same issues as the most people here. Multiple scotoms in both eyes, all off center. Also the flashy lights from time to time. Went to the doc with no answer as the most of us. I have also noticed if i close my eyes and open them rapidly looking at a medium bright white wall or monitor my scotoms sparkle or glow for 1 second or so. Have no clue why. Bending over helps sometimes. I also had few times a light spot right in the vision center. Luckily it disappeared. Would really love to know what we are all suffering from.
Hi German eye, yes there are allot of people I have spoken to with the same symptoms. Exactly the same. Some have seen more specialists than me, some less. It is believed to be either, PAMM or a micro vascular constriction of blood flow in the retina, ie.. a retinal migraine of sorts. The difference is, the constriction lasts long enough to cause perm blind spots cutting off the blood supply the affected area. No one has had an official diag as of yet, only possible culprits and causes. Once I was ruled out of systemic problems, my drs started scratching their heads. Apart from multi focal response test everything else comes beck healthy... it's really annoying. Im bring assured it won't significantly impact my eye sight. However, im thinking what if i get another 15 of these. Some people have been looking down flammers syndrome route. Which is vascular issue. No cure or treatment, i haven't seen an eye specialist in two years now. Apologies for the spelling, im dyslexic!
I had just exactly what has been described here by several of you. A large after-image from a bright light that would not go away and that was more visible when I would blink, especially when looking at a bright surface. The spot was only in one eye and was not visible in the dark. My optometrist was able to find a blister-like bump on the inside of my retina, and I was diagnosed with Central Serous Retinopathy. In a nutshell, this most commonly happens in type A men who are under a lot of stress. I am neither a man, nor type A, but do suffer from anxiety. This condition resolves on its own, but tends to be chronic. Mine lasted for about 5 days. The day before it resolved, I had a large glass of freshly squeezed carrot juice (no idea if that helped or not, but carrots are good for your eyes!). In any case, it does go away, so don't panic! Panic will unfortunately probably just make things worse. God bless.
new here. Had retina laser surgery about a year ago. About six months ago I started noticing hat sometimes after I blink I see a small light bulb aftereffect. Dark against phone screen, lighter in other area. Lingers and goes. I do suffer with anxiety as well. Is this what you guys are referring to. My retina doc looked at me like I was nuts. Had full labs done too and everything checked fine
Well after a decent run I've picked up another seemingly permanent spot today. In the left eye just up from center. In that really annoying phase right now where it is extremely noticable. Can't wait until it fades.
Recently I started doing some weight training again. I wonder if that has anything to do with the flare up.
Has anyone tried any blood thinners (on regular basis) for treatment and prevention?
I've been reading this thread for a while and I can relate with most of you. I have temporary scotomas since I was 16 years old (same age when I got migraines with aura). I'm 29 now. I've never noticed any permament scotoma untill last year. Last year I got my first permanent one and since then I got 3 more. The first permament one was because of a cotton wool spot (CWS). The other 3 had no evidence of a CWS on the visual tests. I've done almost all possible tests (blood test, CT scans, MRI, cancer, heart, carotid, etc) and everything came back clear. All the retina specialists say it might be related with migraine.They say I have vasospasms on the retina veins and arteries and it causes the cells to die without proper oxygen.
How many of you have this symptoms and also have some kind of migraine? It would be very interesting to know if most of the people here also have migraine.
Ricardo Lopes (Portugal)
I have been told the same thing. Possible random micro vasospasms in the retina, related to migrains, but not in the traditional sense. I don't get them in my macular as its too densely populated with blood flow. However, outside of it i do. I get both temporary and permanent. To reassure, Im told it won't make me blind and my overall reduced vision wont be significant and they can never see anything wrong on my tests either. Its worse when im tired or have a cold. I have also had cws thought to be caused by a vasospasm (restriction of blood flow), the only evidence i have had of these.
I don't get head aches although i have had slight eye pain before. No know treatment, other than bending over at onset usually stops them. If i get them in my sleep though that can be a real pain. I learn to live with it.. just. Think happy thoughts.
Stupideye did you ever went trought any medication for this? My neurologist first gave me flunarizine for 1 month. It seemed to help a bit but I was still having scotomas everyday and I was having some side effects. After that I'm trying lamotrigine for about 2 weeks but it doesn't seem to be helping since yesterday I got another permanent scotoma. I don't know what else to do. I tried ginkgo biloba, magnesium and other supplements and I don't see any effect.
have any one tried flunarizine (sibelium) .. it is a vasodilator which works specifically on retinal vessels and used for prophylaxis of migraines .. i would like to try it but it isn't available in my country .. please dont try any meds without consulting your doctor
A week ago (4/1/18) i discovered a spot near to the center of my vision. The spot was visible when blinking or squinting and it looked like the kind of spots you see after looking at a lifhtbulb and then close your eyes. Kind of a burned image, or afterimage, that stays in your retina for a few second after you close your eyes.
Except this spot was not disappearing after minutes. The spot was there to stay, it seemed. So, I went to see an optometris 2-3 days later. Meanwhile I had researched what could have been and one of the possibilities was CSR. I had recently started taking Allegra and Flonase for my allergies (which i seem to get once a year). I read that steroids like Flonase could cause CSR.
I saw the optometrist and, sure enough, she saw the boil on my retina (after dilating my pupils). She called in a real doctor, an ophthalmologist, and she also saw the boil. She said it was most lilely CSR (central serous retinopathy) and scanned my retina to make sure, then refered me to a specialist of the retina. She also said that Flonase could cause it in sensitive people as well as PED5 inhibitors like Viagra and Cialis. I do not take those but I had in the past. She was able to see a little scar and she said that something similar maty have happened inthe past.
I have an appointment next week with the specialist and I will post after that.
I rarely hse any drugs but, so I can definitely pinpoint to Flonase which triggered the CSR. If you see this spot in your eyes, call your doctor and ask if you can stop amy steroid you are taking as they could be causing it.
More sensitive seem to be the type A personality and people under a lot of stress (cortisol).
Hope it helps,
I’ll keep you posted.
Wow, this forum has changed. Anyway, I only had a few spots in the past 6 months. I was so happy. But this week has been crazy! Seriously, I've had at least 20 random temporary spots since Monday. I have no idea why but I have these periods when I barely get spots and then I get MANY. I can't figure out why because I don't do anything differently, I'm not sick, nothing has changed. I'm so confused...
As a follow up I was doing some internet research and found some articles talking about Patent Foramen Ovale (PFO) as a cause for retinal vessel occlusion. PFO it's also related with migraines (almost everyone with this symptoms have migraine). Anyone performed a Transoesophageal echocardiography for diagnosis? After all the tests I've done I think I'm only missing this one...
yesterday a new spot appeared just to the left of the center of vision .. and it is permanent taking the appearance of a crescent .. this is the worst spot ever i had till the day ..now if i tried to read with my right eye it is very difficult as only i can view one letter at a time .. lets say word "crazy"when i look at the center of the word the letter "a" i cannot see the letters to the left "cr" .. now that is disturbing .. thank god i have two eyes and the overlapping fix it a little .. may be it is not noticable in normal life using two eyes .. but now if i used only my right eye and looked at a person's face and centered on the nose i cannot see his right eye .. we cannot say this disease is not disabling it slowly render you disabled and have a toll on your life increasing stress .. what am i saying don't under estimate this f***ing disease .. i used to read books flawlessly with one eye now i can't
did any one here tried oct-a as a diagnostic test instead of the regular oct ?!
the "a" stands for angiography
did some new diagnostic tests such as FA , OCT and OCT-A after my last large spot but all tests were within normal
and whats funny is the nurse giving me the reports said : congrats sir all within normal nothing to worry about
i don't know whether to be happy or mad
Hi everybody. I went through some of the posts and sounds like there hasn't been a clear answer yet. 3 days ago I woke up with a bright after-image in my left eye, close to the natural blind spot. It looked pinkish immediately after closing my eye, and greenish when I looked at darker surfaces. Well, not my first time this is probably the 5th spot I have developed over 10 years. Normally they disappear after a few days, and only one of them turned into a scotoma . But this one has a different story. The day after I developed this, I went to a yoga class and practiced headstands and handstands. I came home went to bed and when I woke up the next day, the the spot had developed a big tail! Just like a comet!! It's been there for three days now and I'm so freaked out that don't even wanna go see a doctor. The comet tail creates sever distortion when I look at "edges".
A lil history here, I've been dealing with a lot of MS-like neurological symptoms and I'm so scared this is a form or optic neuritis. I have a big MS fear and am a hypochondriac. I still don't know if my MS-fear triggers the symptoms or I actually have MS.
does anyone have MS here?
IOP may be an issue for you. Long term IOP usually leads to Glaucoma and Optic Nerve Damage. I am currently dealing with IOP as well in my left eye. The ER doc who took several readings on both eyes said it was over 80, and recommended going to the County Med Center for Laser Hole creation, which allows the fluid in the eye to leak out and reduce pressure that way. Prior to that, Diet and eye drops as per Ophthalmologist recommendation.
Hello All, I have been struggling with this same thing for years, getting scared, going to retinal specialists only to be told everything is fine. until one time I had a spot large enough for it to be seen via a slit lamp examination. I told the dr where to look, he made the light very small and I directed him to move the light until it was right where the spot was, and he was like Ohh... I see it... he said its a "White Dot Syndrome" maybe "PIC" or "MEWDS" he thought probably pic. its an inflammatory response.. kind of a side affect of too much inflammation in our bodies. he recommended I see a rheumatologist, I have not yet seen. it creates for many of us the blinky spots we see when we blink, or pass from light to dark, or fall on a edge of something light and dark. when I get a bad one, it kind of creates a smoke trail at first from the spot that I can see when I look up at the blue sky and blink (only when they are very new spots usually) I hope this helps someone. it has helped me at least understand whats going on. I have not found the overall solution, but I think its just to eliminate as much inflammation I can, which I am in the process of still.
I have the same symptom as you have. I also did a lot of examination and everything is normal. since bending over is working for most of us most of the time, I am skeptical about the blood issue. So I think maybe it's helpful to share my health condition and test results so that we can find a common issue. I appreciate it if you could do the same.
I have blood pressure. Usually, 14.5 / 9.5
I experienced Aura Migarin without headache 4-5 times in 5 years.
My HBB, from blood test, is quite high, 21, which the normal is 17
My testosterone level is higher than normal
Moreover, I tried to find the trigger of this symptom. So whenever a new spot is appeared in my field I try to remember what I did or ate during the day or even the days before and then try to find the common things. So far, what I have found till now are,
- Caffeine may trigger a new spot
- I may have a new spot during or after an intense physical activity such as playing soccer.
If you could find any other trigger, I would appreciate it if you could share it with us.
Sorry for my bad English. :)
well about the trigger no one knows for sure since it is very random but the most common one is eyestrain
about the bending down and whether it eliminates the problem .. it is obvious that we have 2 types of lesions .. one which is temporary and this usually goes away or respond to bending down .. but the other lesion the permanent one in my case do not respond to bending down
and some ppl mistake between the temporary ones and the permanent ones .. as the permanent ones usually subside leaving a smaller permanent scar and lots of ppl dont seem to notice it and mistaken it for the temporary ones but it always leave a permanent residue
So does anybody actually have progress fighting this crap? Nonsteroid eye drops seem to have ho effect.
I seem to have the same problem as you all have. I have it since August last year. What I see is a spot when blinking, but also when squeezing my left eye. It distorts the image and I seem to be able to manipulate it when rubbing my eye. Sometimes it is bright, sometimes darker and when squeezing it seems to be transparant but it distorts the image a bit. It is never permanent and it is always temporary. I went to the doctor and to an eye specialist with the problem but nothing came out. It is situated in the pheripheral part of my left eye. Sometimes I think it has something to do with the eyelid? I tried eye drops, but without any success...
I have had this propblem for almost 4 years. It started one evening when I had huge zig zag like pattern on my vision. After that I have had small spots come and go every now and then. Usually they last only for few minutes. Sometimes I get ones that last for few days. Yesterday I got a small bright spot and waited it to disappear but it's still there next morning. It's really annyoing I wish it could disappear soon. No idea what could have triggered it. Also nothing wrong with my eyes or brain.
Hey, I'm posting here again. I have this page on my bookmarks and check it like once a few months to keep updated. I just wanted to say that I have this problem since 14(the migrained with aura), I am 20 now. I have 3 permanent spots, one appeared when I was 16, in the left eye south-west from the center, I got used with it so much during these 4 years that I don't even notice it anymore. The 2 other spots appeared like 6 months ago, they are in the right eye above the center of my field of vision, they are really small and I already got used to them. I have few questions to clarify whether we really have same **** happening. Q1 : If you push your eye inside using your finger, while keeping the eye open, do you see some blurry black dots in your field of vision that disappear when you stop pushing it? Q2 : Do you see blind spots in both of your eyes, ( Left eye, to the left of the center, Right eye - to the right of the center ). Q3 : If you use your finger do pull down the skin at the bottom of your eye, do you see any blurry black colored contours at the edges of your field of vision? ( the stretch looks something like this https://thumbs.dreamstime.com/b/man-stretching-face-37532594.jpg ). Q4 : Do you have migraine with aura?
Looking forward to your answers. Just to chill you out guys, you're not the only ones having this problem, and knowing how modern technologies are nowadays, I can assure you that there will be a solution to this issue in the future. I'm currently on my exam session, but as soon as I finish, I'm planing on writing a detailed summary on this issue, linking to your descriptions and etc.. and sending it to all the possible research institutions, I will even post it online and paste the link here, so you guys can add the missing stuff and also send it elsewhere. We need to unite and try to slowly approach the right people, because there are a good amount of doctors who are working on researching this kind of unknown diseases. Have a nice day and enjoy your life the way it is, it's not that bad after all, people have much worse problems in the world if you think about it.
Hello guys. I've been taking flunarizine 10mg daily after dinner. I also have been taking chelated magnesium 400mg daily. During the day I notice a reduction of the bright spots. On the other hand I've been waking up with new permanent spots frequently. My first permanent spot was November 2016 but since it happened multiple times. Can't even count them anymore. I'm so distressed that I can't even sleep properly anymore. I wake up every day afraid of having a new spot and I spend like 10 minutes after waking up looking for new spots. I just can't live like this. I feel so bad and sad all the time and I'm so afraid of having a spot on my central vision.
I don't know what else to do. I tried all the things that seemed to help other people in here. I've been to multiple doctors of different specialties and done loads of blood tests and other exams.
My most recent theory is that it might be related to low blood pressure. Bending over helps because we are increasing blood pressure on the eye. I think that we have more sensitive retina cells that when the blood pressure drops our retina veins spasm. That can explain why it happens to me so many times during the sleep. During sleep our blood pressure drops. Whats your opinion about this?
well mrlega : this condition usually associate with some symptoms
1. the bright spots whether temporary or permanent that fades with time to permanent smaller scar with lesser bright spot
2. you become aware of your blind spot and you feel it increasing in size and having finger like extensions
3. you can see moving tiny particles against constant bright colored backgrounds
4. you become aware of centeral weakness of vision in the dark
5. when you look through your eye periphery you some time notice shadows in different sizes mostly big spot or finger like structures and you usually confuse it with a lash
6. you can notice your permanent lesions when you view small thin lines on an lcd screen with different background color as the line will appear interrupted
7. sometimes you can have more than one injury in the same spot and the spot starts turning into black instead of the surrounding color
8. sluggish image recovery response time
9. lots of these symptoms may be to extrasensitivity when you start focusing on your eyes
as to pressure on eye with finger poking this increase pressure on your retina and you will see different effects across individuals some will see bright or dark spot or even confined flashes of light in the periphery
Is anyone trying aspirin? If yes, what dosage?
Sorry for my bad english.
What makes you think that the spots are caused by damage to blood vessels? Some people have spots lasting 3-5 days, after which they disappear. Some people wrote that the spots lasted several weeks and then disappeared.
If the cause was damage to the vessels, then we would not have seen the regression of the disease.
It seems that the cause is the fatigue of the visual system. I will describe my thoughts in more detail later. I will also need your help in collecting information (I will do a survey), which my neurologist asked to assemble (he is trying to figure out the problem).
Just wanted to line myself up in this whole dilemma. ;-) I'm a 32 years-old male from Germany and I'm having the same issues/symptoms you guys have. My story follows:
The first spot I remember happened in 2006, so almost 12 years ago. It disappeared rather quickly, but it scared me enough to still remember it today. During that time, I worked at an elementary school (community service), so I suffered from a lot of colds and flus. I can tell you that kids are truly virus and bacteria spreaders. ;-) I don't remember having more spots after that event. Maybe I just ignored them.
A couple of years later, maybe around 2010/2011, I got my first permanent spot. It developed when I had a cold again, not taking any medicine though. It faded into something really small, and I got very used to it. So much that I don't even care.
1-2 years ago, I developed my 2nd permanent spot. I don't remember whether I had a cold again or not. The spot was very noticable for a couple of days, because it got stronger every couple of hours, for a small period of time. Until it faded into something really small again, just like my first spot. Again, I don't care about that one as well. It's just too small.
In April this year, I woke up and had and arc-like thingy, from close my central vision up to the natural blind spot. What I found out fairly late is that the origin of that arc was indeed another spot. But that spot's right at the edge of the natural blind spot. The arc disappeared after 2 days. When I really try hard (blinking, squinny etc.) I can still see a part of that arc. Because the spot is almost entirely in the natural blind spot's area, I don't care much about it.
However, 2-3 weeks later, so like 1 1/2 months ago, I got another permanent spot, again after waking up. It's the first time I got such a spot in my left eye — all other spots developed in the right one. For 1-2 days it was very noticeable, but then developed into something smaller. However it's not as small as the others. Especially when looking at blue or blue-ish things (especially screens), it shortly flashes, and I can hide a small mouse pointer in it.
On a daily basis I have those very subtle white "spots" that disappear within seconds or minutes. Sometimes they are a bit bigger, but usually they are small. Often they are translucent, sometimes they are not.
I went to an ophthalmologist when I got the last permanent spot (never went to one before — kinda crazy, I know, but the small spots just didn't concern me. I even got used to the situation, like when a new spot appeared, I thought "Meh, annoying, but it'll vanish anyway — and if not, it will fade into something small I don't care about"). He took a good look of both of my eyes with a slit lamp and a microscope lense(?) of some sort.
Result: vitreous body detachment. He said it's "normal" when getting older, and that the vitreous "pulls" on the retina. At spots where it's attached very good, small injuries can happen. He said that my spot will most likely heal, and that I don't have to worry about it. When I see flashing (specially in the dark), mostly 90° from the side, I should come back immediately, as that's a sign for little holes or cracks in the retina. But unless that happens, I shall only come back in 1 year, for a routine check.
The thing is: My mind is very focussed on everything happening in my eyes now. I'm blinking a lot to check my spots, and check for new spots. I see stuff I would have never seen before, just because of focus. I guess you guys know that condition, and how that contributes to your daily mood. :-)
My plan is to make an appointment with my general practitioner for doing blood work etc, to see if there's anything wrong. Also I'm thinking about seeing another eye MD for a 2nd opinion, or to pay for an OCR "to make sure". However I usually try to trust the doctors — especially when they seem competent. ;-)
Some facts about my person/health condition:
- 32 years old
- 1-2 times per year, you guess it, migraine with aura
- BMI 32.6 (way too much; my wife is pregnant, what can I do? ;-))
- smoked cigarettes from age 15 to 27
- blood pressure is usually at 120/70, but often lower
- I watch my whole body very closely, not an axious person anymore though (usually I find something, flip out a bit, see a doctor, and get happy again ;-))
- I take no meds
- My fitness is not good at the moment (stopped going to the gym when I had a super heavy tonsillitis followed by an allergic reaction; just didn't find the motivation after that; I never had any spots during workouts though)
- I'm a programmer and entrepreneur, meaning: I look at screens for 80 % every day. I don't feel stressed, but I'm good at suppressing stress, so I don't know whether I really don't have any. :-P
- I'm slightly myopic, around R -1.25 and L -0.25 or something. I have glasses but usually don't wear them.
- I have dyschromatopsia (often not able to distinguish red from green colors, in certain light conditions)
I really hope that the cause of all this can be found, and of course I really hope that none of us will develop a condition that's really difficult to live with. My spots, and I already have quite a few of them, are annoying, but don't influence my life negatively.
The only thing that really makes me kinda mad is the fear of getting more and more spots, and of course, getting one right in the central vision.
Hello guys. My neurologist put me in 60mg of Nimodipine every 8 hours. I've been taking this calcium channel blocker for a week now and it seems to helping in the frequency of the attacks. It seems that now I have less spots per day. On the other hand yesterday I got a new permanent spot in my right eye :(
I'm getting new spots very frequently and I don't know what else to do. They are all appearing during sleep.
If this is a vasospasm shouldn't this medication be working 100%? It's a vasodilator so the spasms shouldn't be as strong as before. I really don't understand the real cause of our spots...
I get a split second bright spot when I blink, especially after I am on my iPhone or computer. I also have recently been diagnosed with PVD which is complicated by the separating membrane being stuck on my macula. I do not have a macular tear or whole. Im under a doctors care and waiting for the PVD to resolve, hoping for the best (no macular holr).
still having new lesions every couple of days .. you get use to it till you get a big one .. i made a group on fb called bright spot when blinking
may we all find a cure soon
Has anyone ever went to a genetic doctor? Someone told me it might be worth a try.
Most of us have this for several years and it's also linked to migraines. Besides going blind my biggest concern is that the ischemia events also happen in the brain.
Guys, how many spots do you have? I have 2 in the left eye and 4 in the right (I'm sick for 2 months).
having a new big spot in rt eye .. thanks god it is not in the centre .. if i look at the centre of the mobile it is just above the home button .. i made a page on fb for easier communication by the name of "bright spot when blinking"
so nothing new ?!
When you have flashes and floaters in your eyes, you should absolutely see an eye Dr. It can be early sign of detachment of the retina. Don’t wait...
My eyes been acting very strange these past few days, had little sleep, drank my fair of beer n wine, lots of sun. Yest I noticed bottom left of left eye a “bright spot” it subsequently went away. Also noticed two lines in peripheral left eye to the right.
Has anyone else got lines before? Got another one today, had some at around lunch time that went away again. Had another for the last 40 mins. Left eye again that seems to be getting smaller so should resolve. In the ten years iv has this “condition” iv never had it as bad as this. Feel absolutely fine other than v tired. Going to go to eye A nd E again this week. Maybe tomorrow. I can’t live like this. I’m thinking, AZOOR, PAMM, or something similar (which I’d be fine with) Of course, worry about the worst. Humph..
About to go to eye A&E, il let you know the results.
What do you guys think about autoimmune? Susac syndrome? Since this is something that happens to us for so long (more than 10 years with me) it kinda makes me think that it can be something autoimmune...
well the large spot i had couple of days ago subsided to a smaller scotoma than flared again ??!!
please all join facebook group "bright spot when blinking"
Friends, yesterday I had scotomas in the center of both eyes. At first they were small, then they became big and colorful. It was a migraine with aura. There was no headache.
I've never had a migraine in my life. The first blind spots appeared three months ago, and now there was a migraine.
Coincidence? Very much I doubt. I do not know what reason you have, but in my case the cause is obvious - it's a migraine.
well i went out driving today without my sunglasses and i had 2 episodes
every episode stayed for like 2 minutes
the 1st one was like multiple bright spots simulating flash after image but in spots pattern and it was so tense that these spots can be visible even with eyes opened
the 2nd one was like lines and zigzags over each other .. also vanished scompletely after 3 minutes
but i failed to notice whether they were seen in both eyes or one eye since the afterimage was too strong and does not fade when you close your eyes
please all join facebook group "bright spot when blinking"
anyone tried electroretinography or any electrodiagnostic tests ?!
please all join facebook group "bright spot when blinking"