I would also add that my bright spot is significantly worse after working at the computer (which I do several hours a day).
I can not see my bright spot in dim/dark conditions. It is aggravated by bright light and light-colored backgrounds.
I would also describe myself as anxious and a worrier
I'm not on any meds
I do clench my teeth and grind them at night
I have a TON of floaters, since I was a kid
I have migraine with aura
I cannot see the spots in the dark, unless I'm watching TV or on the computer etc
They are most noticeable against light backgrounds, the sky and when glancing at anything with contrast. horizontal blinds and lined paper are awful.
does your spot show up on an Amsler grid?
can you see through it or is it a scotoma (blind spot)?
can you see in when you watch TV? on the computer monitor etc? what about when you are reading? are you aware of it then?
Yes, my spot shows up in the Amsler grid. It is in the upper right quadrant. It appears as a whole, with the grid lines becoming slightly distorted as they "fall into" the whole.
Yes, I can see through the spot. It is not a totally blocked scotoma. Sometimes it appears light grey. Other times it is almost pinkish. Sometimes blue. It looks very much like the afterimage of a bright light and goes through the same variations of color. But it is never a black, opaque spot.
Yes, I see the spot when I'm watching TV or at the computer. Mostly, it shows up when I see it cross over the edge of the TV/computer screen.
I can never look directly at the spot as I can do with my big floater in the other eye. This spot is fixed in the same position, and it's not exactly central.
It seems to show up mostly when my eyes are moving and the light/background conditions are changing. Once my eyes are steady and fixed on something, the spot disappears. But if I, say, look up from the computer screen, and then back down at it....the spot appears again.
I do wonder about the clenching, though, because I clench very VERY hard on that side. Sometimes, the side of my face goes numb from clenching. Other times, my ear or eye starts to hurt. It seems reasonable to me that tensing all the muscles on that side of my face might irritate the optic nerve?
But then, I'm no doctor.
I can see through some of my spots a little, others make the grid lines disappear.
Mine don't have color, just range from white like a bright light to gray through to black (interestingly, they are only truly black indoors when I have sunglasses on and am looking at a fluorescent light! not sure what to make of that)
Like you, the spots are most noticeable when they fall on the EDGES of the TV screen, monitor etc.
I can't look directly at them either.
I'm sure if I could sit down with an expert and they took the time to look at all the pieces of the puzzle, a lot might be explained. Unfortunately, in my experience doctors simply don't have the leeway to do that, through no fault of their own
Same with the eye movement too. If i'm busy typing on the computer, I don't really notice them, but if I glance down at the computer screen and back up, they "flare".
I hvae a lot of tension in my neck, shoulders and jaw and wonder if there is a connection also.
I should also add, I got a new spot yesterday afternoon. Now I have two "active" annyoing spots in my right eye at once, which has never happened before. While most of my spots are pemanent, after a few weeks they "fade" to small scotomas and I don't really notice them all the time (like I do with the new ones"). The old ones are visible mainly under the circumstances I mentioned above, unless I got looking for them.
Ok I am curious about all of this.
I have just been diagnosed with AZOOR/AIBSE it is characterized by a blind spot, and flashing lights within that blind spot. It is a retinal disease and affects the rods and cones. They don't know much about it, there is no treatment, it is rare (but perhaps many people aren't being diagnosed right), lots of floaters in the affected eye are common. I actually have it in both eyes but didn't notice the blind spot in my left eye, but it is active in my right.
Have any of you ever had a mfERG this would diagnose if this is actually a retina or optic nerve problem? Ask your opthalmologist about it.
I was misdiagnosed with optic neuritis for 9 months. I don't notice my flashing lights all the time, different light levels either show it as light like a moving fan or black like writhing snakes.
That's interesting. On my last opthalmologist visit I actually asked about MEWDS, AZOOR, enlarged blind spot syndrome etc and all were ruled out. I had no clinical signs. I did have an ERG when all this started and it was negative.
Tell me, do the flashing lights "flash" independent of eye movement or blinking? Mine don't.
New development in my case:
Last week, the Amsler Grid had a "hole" in the upper temporal region due to my "bright spot."
This week, now that the bright spot is diminishing somewhat, the "hole" on the Amsler Grid appears more blurred.....and it seemed to MOVE, drifting downwards.
All of which makes me wonder if this is some kind of giant floater?
Or maybe something fluid related?
I may or may not have similar condition. I have central serous retinopathy in one eye, but a series of smaller "spots" with same pathology - they appear when I blink fast, or look at computer screen then look away. Been to eye hospital and told nothing wrong after slit exam (though no flourscene scan).
It's difficult to tell, but I reckon I have 8 to 10 of these small light sensetive areas. I wouldn;t know I had them if I wasn't continually checking my vision to see the progress of my CSR. They might, of course, be a number of things, my number one suspicion being they are small detatchments of a layer of the retina.
Of course, my retinologist would disagree, which leaves me wondering whether they are what you describe.
I am what you'd call a type 1 personality, and had quite a stressful run up to Christmas with child in hospital, general SAD, and, after the CSR showed up, the fear I was going blind.
The condition, whatever it is, has been stable for a couple of months now, and maybe even on the decline. I'm not on any medication other than lanzoprazil for acid reflux and st. John's Wort.
I have trouble sleeping and sometimes take temazapam, grind my teeth, and have ongoing sinus problems, for which I was using nasal decongestants, until I read that they often have cortisol in them, which can cause CSR, and possibly the other problem.
I've also heard coffee and chocolate can affect CSR.
The reason I mention all this is that the pathology of what you suffer from seems similar to CSR, and as such, the things mentioned may affect it.
Hope that's of help.
That's very interesting. The symptoms you describe fit mine.
From what I understand, CSR is diagnosable on a dilated exam, of which I've had many.
my symptoms have also occurred over a 9-year period, so if it's some chronic recurring form of CSR, you'd think I'd have a diagnosis by now.
I haven't been able to isolate any "triggers" for my spots, which is why my doctors are now suggesting some form of migraine variant.
Do you have migraines with aura?