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specialist of meningioma

Greetings, I have had 3 MRI's from 2 different DR.s and each one has stated i have an meningioma.
My eyes get pressure in the back , then i see a rainbow effect, and it flutters, then they get distorted in my vision, then it goes into a migrain.  Then they tell me, well you can take a pain med for the headache. keep your eyes closed until it goes away.
I would like to get the opinion from a nerologist that specializes in meningioma, in the Metro area of Kansas.
Thank you for your time.
Mercy.
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233488 tn?1310693103
MEDICAL PROFESSIONAL
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Avatar universal
As an alternative treatment you might consider this. My recent MRI scan result after 2 years on mifepristone (RU486) shows a slight decrease in the size of my tumour.
ALSO some clincial trials using the drug have resulted in improvements to vision in some patients. The optic nerve runs through the cavernous sinus and surgery in that area generally results in permanent deficits to eyesight. This article refers to surgery in cavernous sinus meninigoma:

A PROSPECTIVE STUDY OF CAVERNOUS SINUS SURGERY FOR MENINGIOMAS AND RESULTANT COMMON OPHTHALMIC COMPLICATIONS (AN AMERICAN OPHTHLAMOLOGICAL SOCIETY THESIS)

http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=2258114

“Patients undergoing cavernous sinus surgery can usually expect new ophthalmic complications together with an exacerbation of preexisting neuro-ophthalmic deficits. Although improvement in function can be achieved, it is distinctly uncommon. Worsening of ophthalmoplegia postoperatively appears to be the rule rather than the exception. Transient postoperative ocular motor palsy may improve especially if incomplete in the immediate postoperative phase. Aberrant regeneration of the third nerve is not uncommon, resulting in persistent motility problems. Worsening of optic nerve function may be underappreciated, especially if quantitative assessment is not performed. Trigeminal dysfunction may have a significant effect on visual function, especially if complete, as an anesthetic cornea is at high risk for development of neurotrophic keratitis.”
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233488 tn?1310693103
MEDICAL PROFESSIONAL
For a meningeoma you need a neuroSurgeon.  I suggest KU Dept of neurosurgery or Steve Reintjes MD.

JCH MD
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177275 tn?1511755244
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