Hello,
I posted on the neurology forum also.
Can somebody please help me I am going crazy. I am a 39 yr old male with tons of symptoms. I am getting worse and believe I may be dieing. Here are my main symptoms:
Face: Extreme TMJ. Lots of facial pain, fatigue, burning. I am a teeth clencher.
Legs: Tight painful legs. Cannot walk more then about 5 minutes before extreme lower back and leg pain.
Feet: Ice cold most of the day. Shooting electrical pain, lots of cramping, burning, itching, feels like a tight band around my arches.
Arm: Diagnosed with carpel tunnel, all those symptoms
Eyes: Lots of floaters in left eye
Head: Tinnitus, fogginess. The loud ringing is driving me crazy!
I have had body wide twitching for 3 years. I am a horrible sleeper, but when I do sleep its just more hours to clench my teeth.
I have had 3 clean emgs, 5 ncv’s, 2 clear mri’s, TONS of blood work, a muscle biopsy(showed mild myopathy), cardio tests, food allergy teats, sleep studies………….. All basically clear.
I take Lyrica, Klonopin, vitamins, phrlosec, and sleep meds daily.
I have been diagnosed with Benign cramp fasciculation syndrome, idiopathic peripheral neuropathy, plus a few other things that were later un-diagnosed.
The doctors say my condition will wax and wane and that anxiety is main contributor.
Please somebody help me. I feel I am losing hope everyday.
2 doctors say I have all the tender points but say no to fibro because the neuropathy. Am I crazy!!????
Thank you
DD