My daughter's pain remains intolerable and untreatable

[eagle1996]

My 12 yo daughter had her appendix removed 3 years ago, due to severe abdominal pain in the lower r quad.  Sever abdominal disappeared until 1 year later.  After several ER visits a 4day hosp stay at a local hosp and then a 9 day stay at Children's Natl Med Ctr she was diagnosed with a duodenul ulcer.  She was d/c with oral pain medication and continued to have abdominal pain that often radiated to her r flank.  Several more visits with specialists and PCP she was considered to have somotization disorder.  4 months ago she was hospitalized again for 4 days and her ulcer was rechecked and healed, so she was diagnosed with mesenteric adenitis. She is on 30mg of Lexapro a day.  Protonix twice a day.  She is 5'4" 170 lbs.  She continues to have boughts of this immobilizing pain and we have consulted a hemotologist/oncologist -per our GI's suggestion -  with no answers.  She has missed numerous days of school -which she actually loves and is a straight A student.  I am LOST as to where to turn next.  When she has one of her flair-ups it is excrutiating to watch her but the ER's no longer do anything put give her some morphine and send her home.  I have obviously given up on taking her to the ER.HELP

[CalGal]

If you've checked out every thing you can think of and nothing seems to help, you may want to give exclusion diets a try. One food group would be dairy (not the lactose portion, the casein portion).

An, as screwy as it might sound, if she was tested via the blood test or the biopsy during endoscopy (EGD), a negative result could be a false negative. You might consider giving a gluten-free diet a try. Especially if there are any other small, seemingly insignificant issues occurring, like rashes, extreme fatigue, 'brain fog', variations in bowel habits, etc. The 'mesenteric adenitis' makes me wonder if that diagnosis could be tied into an autoimmune reaction such as is seen in celiac disease. Celiac can 'present' in some very strange ways.

[eagle1996]

Yes, she has been tested for celiac and it was negative.

[CalGal]

Has she been tested for celiac disease? Is there any history of gluten intolerance in your extended family?