Update-- Meeting with specialist tomorrow!

[EmmyJN]

My name is Emily, I'm 16, and this will be my first meeting EVER with someone who can help me with this issue!

I'm kind of excited, to be honest. Terrified, but excited. This is the closest I've come to knowing exactly what happening with my body. Of course, we probably won't know at the end of this meeting tomorrow, but its a little closer than I've ever been.

We're going to be meeting with a nurse practitioner first tomorrow, who will decide if I need to keep going to AHS or if I should go up to Endo instead. The nurse is also going to do all the basic stuff---medical history, full physical work-up, discussing what the doctor "might do". If tests need to be ran, I've been told we'll meet with a doctor who can send me down for labs or ultrasound, whatever they want to do. This doctor may or may not end up actually being my AHS doctor, we don't know yet.

The ony thing that frustrates me is all the hoops we have to keep jumping thorugh to get to a diagnosis. But Dr. T (GI) said that he can't order any more labs beyond the hormone tests for PCOS because he's not an endo or anything like that, and obviously hormones can't tell us everything. All the hormone level tests can do is point us in the general direction of what could be going on.

I also know for sure there will be SOME kind of testing, I just don't know what kind of testing that's going to be just yet. They won't be done tomorrow unless the nurse really thinks there's a need for it, but I don't think the doctors think it's quite that serious, or they wouldn't have made me wait almost two weeks to get in to see someone. What Dr. T said is that they want to figure out how long I've had PCOS, or something like that. They also have to verify that, for sure, this is PCOS, and not something else.

So tomorrow, I'm taking off school to spend another fun-filled day in Milwaukee at Children's. I've got all my homework from my teachers for tomorrow, and I've got dates set to make up the two quizzes I'll be missing. (Thank God they're not really worth that much in comparison to my whole grade!) I'll be hauling all that down to the hospital with me so I can do homework in the waiting room.

I'll keep everyone posted after I know things tomorrow!

[EmmyJN]

Thanks :)

Everything went well, better than I expected. We caught it early, so hopefully I'll be able to get it under control while I'm still in my teens.

I've posted a full update on this board as to what the doctor said and my medications.

~ Em

[patient915]

Great, I hope everything goes okay for you tomorrow!