pyloric stenosis scartissue(infant)causingproblemsin adult

[lindacarol]

Pyloric stenosis surgery at age 6 weeks. Now, as an adult, (age 42) severe gastro problems. Cramping, vomiting, extreme pain. "Attacks" come anywhere from every 3 or 4 months to 7 or 8 months. are very debiliting, and last several days. This has been going on for at least 15 years. Drs. could not find cause and even removed appendix, until someone thought it might be a result of the pyloric stenosis surgery as an infant and resulting scar tissue.  Is any one else who had this surgery in infancy experiencing these problems? Can anything be done?

[MamaBeaver]

I had pyloric stenosis as an infant at about 6 weeks, had surgery. I am 23 now. My first child (my little girl) was also diagnosed with it and had her surgery at 6 weeks and 3 days. Now that I'm pregnant again and with a little boy this time, I'm wondering if he will also have it. Any insight will be greatly appriciated. Thank you so much!

Also,
My scar gives me problems all the time and until today, thought I was the only one.... Seeing all this has really helped me out personally! Pregnancy is a little tough on my scar the pulling sensation and sharp pains suck to say the least but the little angel in the end makes it all just disappear!

[Bluewaves1988]

I have visited this post many times while searching for answers, I am glad to see I am not alone with this, but maybe someone has been able to find relief with it...I am a 22F and I have spent the last 7 months going to the Dr to not get anywhere with this issue. I had surgery for Pyloric Stenosis in 1988 when I was 6 weeks old, I have a 3 inch vertical scar under my right rib cage, I regularly experience severe stabbing, ripping and burning pain. I have a knot that protrudes over the scar and burns and throbs when you touch it. I had an ultrasound that revealed a 3mm non-specific thickening of the gallbladder wall, a HIDA Scan that came back 1 point under normal, which is not enough to remove it. One Dr has blamed everything on stomach acid so I am now on 40mg of Omzeprazole. I went back about 2 months later still experiencing pain and she still blames it on stomach acid and told me to double my dosage, which seems unreal to me since I am on the 2nd highest dose available currently. I have had pain on and off associated to my scar since I was little, but it just seems to get worse. I also have insanely high ANA's and my Thyroid panels are off...has anyone else had an Autoimmune Disorder related to any of this or found any answers or relief with this?

[mtluongo]

I am 42 and my whole life had digestive problems.  I am male, and had the piloric stynosis operation a few days old.  Only just this week, after thinking I had a gall bladder attack did I finally - after decades of basically being told I am crazy when ever I went in for stomach pain - did a doctor tell me I might have adhesions.  I was actually in the hospital thinking I had a gall bladder attack, but when I explained to the doctor that as long as I remember I have had pains under the scar from the surgery and throughout my intestines...worsening as I got older - did it seem to click.  Still have to see more specialists and determine things....but it is great to finally perhaps have an answer.

[Kaz183]

I am a 36 year old female, with 3 children. I had pyloric stenosis operation in 1974, at 6 weeks old. My scar is now about 5 ins long, a cm wide and has 4 'stitch' marks down either side. It sits off centre to my right side, vertically. And without a doubt is attached to my abdomen at the bottom of the scar! My mum said it was just about two inches long when first done.
Throughout childhood I complained that my 'scar' hurt and was dismissed by GP as part of growing! At 18 I had my first pregnancy, and had a dip in my stomach as it swelled, with a feeling I can only compare to being jabbed with a pin. It wasnt so bad with my second child a year later, although the dip was there as stomach grew.
I had my third and last pregnancy at 33 years old, and my last baby was bigger than first two.
I collapsed with severe pain in middle of right side 2 and half years ago, and initially was diagnosed with kidney stones, but urologist did not think stones were big enough to cause pain I was in. (They were smaller than grain of rice.) I am now awaiting endoscopy with gastroentorologist to see if I may have adhesions.
My scar is definately pulling upwards towards my right ribs and I am rather unhappy that I have had to suffer for this long to get any answers! I have been back and forwards between the specialists 4 times now as neither would pin point pain, but if I were able to 'operate' on myself, I am convinced I could put my finger exactly where my pain is! The pain is at best mild, but can get worse, usually 30-45 mins after eating. It is constant, but I have learnt to recognise ofset and control with painkillers.
I have been lucky that none of my children inherited the pyloric stenosis. I am convinced that my life time of constant stomach problems, cramps, constipation, stabbing pains, nausea, etc etc!! has been a result of this condition, and wouldnt wish it on anyone! Good luck to you all on getting it sorted, and insist on help if your child continues to suffer.

[Vandy459]

You must get your DD seen by your family doctor and if need be a specialist. From what you and others have described, keep in mind possible adhesions from the ps surgery. Check out some of the "Related Discussions" links on this page, like "Intestinal Scar Tissue" and "Stomach Trouble". I hope your problem is something less troublesome because adhesions doing this at your DD's age may be a taste of what she'll have to cope with thru her life.

[mpt82stahlman]

My daughter had pyloric stenosis at weeks old recovered quickly and seemed normal. She is now three years old and for the past six months i would say has had alot of problems. Her problems have mostly occurred during the night will she will awake with severe  abdominal pain and vomitting. The area around her 4-inch abdominal scar will be hard as a rock and she complains of pain right at that spot. This will continue through the night for usually about 3 to 4 days. She is usually fine in the daytime there have only been two instances taking place in the daytime. She was diagnosed with the flu this last time as i took her to the ER due to her abdominal pain being so severe...nothing was found on exrays, blood tests, or the upper GI...she sees her family dr in the morning where I am requesting to see a specialist...I just dont want my baby hurting so badly. help???????????????????????