Aa
where can I go?
I had a spontaneous cerebral spinal fluid leak about a year and a half ago. I have had many MRI's of my brain and spinal cord. I was very sick for about nine months.
Brief History: I sneezed twice and my nose ran like a faucet for about five to ten minutes and then it stopped. After that I felt very tired and rested for about an hour being that I was at a relatives house. When I left, I started to feel pain up and down my spine and it spread all over my body. It was like my whole body went into spasms of pain. After that I felt like I was running fevers off and on, I felt sick to my stomach and tried to vomit but couldn't, I was dizzy and I was in excruciating pain from my neck, shoulders and head. The pain seemed to shift on both sides of my head I had tinnitus, like I was listening to a sea shell. It spontaneously resolved itself according to MRI's, but I have numbness on the left side of my head, nausea, dizzyiness, irregular heart beat and I am getting weaker. I cannot even walk for more than twenty minutes before I become weak and feel ill. I walked for two hours a day only three months ago. My blood tests are within normal limits, however an ultrasound showed a slightly enlarged thyroid gland. I think I might have a clot in my brain or something in my spinal cord because I get a lot of head rushes, like I am not getting enough oxygen/blood to my brain. My heart is also acting strange. I also have a herniated disk in my cervical spine and two cysts in cervical spine, possibly from the leak. I am really scared, I feel like the MRI's missed something. One neurologist told me I was having TIA's but not to worry. I am very worried and scared.
Brief History: I sneezed twice and my nose ran like a faucet for about five to ten minutes and then it stopped. After that I felt very tired and rested for about an hour being that I was at a relatives house. When I left, I started to feel pain up and down my spine and it spread all over my body. It was like my whole body went into spasms of pain. After that I felt like I was running fevers off and on, I felt sick to my stomach and tried to vomit but couldn't, I was dizzy and I was in excruciating pain from my neck, shoulders and head. The pain seemed to shift on both sides of my head I had tinnitus, like I was listening to a sea shell. It spontaneously resolved itself according to MRI's, but I have numbness on the left side of my head, nausea, dizzyiness, irregular heart beat and I am getting weaker. I cannot even walk for more than twenty minutes before I become weak and feel ill. I walked for two hours a day only three months ago. My blood tests are within normal limits, however an ultrasound showed a slightly enlarged thyroid gland. I think I might have a clot in my brain or something in my spinal cord because I get a lot of head rushes, like I am not getting enough oxygen/blood to my brain. My heart is also acting strange. I also have a herniated disk in my cervical spine and two cysts in cervical spine, possibly from the leak. I am really scared, I feel like the MRI's missed something. One neurologist told me I was having TIA's but not to worry. I am very worried and scared.
Thank you. I will look into John Hopkins.
Red60
Red60
get to john hopkins they have a great neuro dept,
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Nelson, New Zealand
Queensland, Australia
AL
way off the beaten track!, BC
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