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41yo Male 15 stents RCA 100% for the 3rd time

From age 34 to 41 I have received 15 stents. My blockages happen rapidly and severe. My right coronary artery has been completely stented from top to bottom twice and my right coronary artery is 100% blocked again for the 3rd time. My cardiologist informed me that we can not fix it anymore.  I now feel constant chest pain, shortness or breath, no energy.  I can't live this way.  In Vegas I've encountered doctors who say they can help and then throw their hands up. I've gone out of state and have had little success.  I have blockages in my circumflex and LAD. Is it true that there is nothing else to be done with my RCA. Do I have to live without my RCA from now on? Believe me, there is nothing I haven't tried. I even contacted Cleveland Clinic when the study was going on to inject the good cholesterol.  I was not a candidate.  The blockages that should take many years to cause me trouble, end up causing my serious trouble within months.  
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976897 tn?1379167602
Thank you. I just got sick and tired of all the contradictions and nothing made real sense.
If they're not blaming cholesterol they're blaming smoking. If someone has normal cholesterol and doesn't smoke it's quite amusing to see the shocked look on a doctors
face because they have no explanation.
Helpful - 0
906759 tn?1275957620
I just wanted to say i really loved your post!  Very interesting "take" on the deal.  I think you may be on to something.  

Helpful - 0
976897 tn?1379167602
Lipid Apheresis

Personally I think it would be throwing good money after bad. Atherosclerosis is a disease which forms in different stages and the lipids getting used to repair arteries is
just one stage in that process. If there was absolute proof that high cholesterol was the
reason for atherosclerosis, or indeed there was a link between high cholesterol levels and
heart disease, then I would be more optimistic. However, this simply is not the case. There are high volumes of people with normal/low cholesterol who develop heart disease.
Think about it, if cholesterol was the problem, we would all be dead of atheroscerosis by
the age of two or three. We ALL have cholesterol, we would die without it and just because fats are found clogging arteries doesn't mean it is the major cause. In the UK
we have something called the French Paradox. The French population eat far more saturated fats than the english, have higher cholesterol in the average person and yet
suffer far less heart disease. First they blamed the Wine they consume. Nothing found. Then they blamed the grapes/grape skins in the wine, nothing found. Then they decided it must be due to the fresh ingredients they cook with, no proof found. They consume
tons and tons of cheese every year and seem to get away with it.  In the UK it was found that heart disease was more abundant in poorer areas, so it was automatically ASSUMED by the so called experts that the reason is bad diet, because they eat more
take aways and less fresh food because they cannot afford it. I just wish they would wake up and see the real link.
Poorer areas contain people with higher stress levels because every day they have to struggle to survive. They have to find rent money, food money and clothing money. Utility
bills are more problems and most families in poorer areas have more than two young children to care for. We have a welfare system which doesn't pay enough money for those people to survive and so crime rises. Our society is closely related to that in America and other countries are now becoming similar, and guess what, heart disease is
increasing in those countries. Stress is a killer over long periods of time, the body cannot handle it. How many people feel fine and then when suddenly have a stressful
moment have a heart attack? Society needs to change if we want healthier people.
I have hypercholesterolemia and believe me, my cholesterol was very high. I was incredibly fit until the age of 44, people used to say I was like a young lad. As soon as
my wife was diagnosed with cancer and nearly died, B A N G, that was it. All my problems started. She had inensive radio/chemo treatment, and was given the all clear
after three years. I had a triple bypass and felt great. Three months later, she was diagnosed with cancer again and BANG my bypass grafts closed up. Now she is in
the clear again having had it removed with surgery. Stress is the problem believe me.
You can lower your cholesterol as much as you like, the body will always find enough in the blood to start atherosclerosis under those conditions.
Helpful - 0
Avatar universal
Well you have me thinking more about the EECP therapy.  You brought up important facts.  Here is something I have been wondering about.  If there is no blood getting through my right coronary artery, how can blood get to collaterol arteries that branch off of the RCA. As for your question regarding collaterols having the ability to know when a stent/artery is blocking. My cardiologist has informed me that as my arteries block it forces collaterols because the blood has no other place to go.  I wonder if they will eventually block as well.  I've been told that they do not usually block.  However in the 6 years that I have known about my condition, I have never had the "usual" happen to me.  My blockages occur 100 times faster than usual.  My medicated stents blocked within 1 year, that's not the usual. There are many other things we tried and things we expected based on what usually happens and it never is my outcome.  It makes me wonder why after all of this time my doctors still talk to me as if I might have the usual anything.  
Have you heard of Lipid Apheresis? I've looked into that.  It appears to be a non FDA approved treatment that has worked miracles in other people like me.  However, it's not a covered expense with insurance. It's incredibly expensive and must be done every 2 weeks and no longer.  The closest place that offers this is 4 hours away.  
Helpful - 0
976897 tn?1379167602
I wonder if collaterols have the ability to know a stent is blocking the way to anastomose
to a vessel or whether it would still try in vain anyway. EECP does seem like a good
system, I've been following the research for quite some time. It actually doesn't promote
collaterols in everyone, but it is hoped it will highlight the triggering mechanism. However, it does far more than this, it realigns the cells along the artery lining so they
lay in the direction of the blood, making it smoother.
A technology Im still waiting for, one which I believe will be the utopia to all the problems, is a chemical which will break down plaque/fats built up in arteries. The biggest problem will be the extraction of the fats because blood is made up mostly from
water and fat will not dissolve in water. Maybe it will need nanotechnology to have molecule sized machines to grab the fat and never let go, eventually being filtered out through the kidneys into the lavatory.
Helpful - 0
Avatar universal
Thank you for your post.  I know all about EECP.  In fact, I did start that treatment until I had to go out of state to an amazing cardiologist.  The EECP treatment is to help create collateral arteries.  I have been working out which create collateral arteries even faster than EECP. The problem is that as my RCA has closed again, I have a very hard time working out.  I have to stop ALL the time.  I don't believe I can commit to EECP. If I cannot commit to 7days a week for 12weeks (that's what I have been told) then I wont benefit from it.  The location isn't nearby, where I would have to go. I am just shocked that at my age, the cardiologists are okay with me losing my RCA completely.  I just keeep hoping that someone out there knows another option.  They should have done bipass surgery, yet they didn't.  Now what?
Helpful - 0
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