Doctors don't seem to be on same page...

[rparent312]

What do you do when you are seeing 5 different specialist and each one has there own theory of what it is or could be and what it is not. I am so confused and frustrated. Cardiologist says headaches I am having are not related to my HBP. Before he walked in his nurse told me the opposite. I was told by neurologists to take 3 scripts. 1 for anxiety and the other 2 for headaches. Cardiologist said he don't believe in those meds and to throw them away. 3 doctors told me the cardiologist was wrong.  When I go to the doctors i don't even know which one i should listen to. I think I am at my witts end and feeling a lil depressed myself. So much going on I feel overwhelmed.
Robin

[maggiemag]

I don't want to hijack the OP's thread, but please get another cardiologist who will listen to you!  Even if you have to go out of town, I think it is important to get another opinion now.  You are right in being very concerned!

[momtofourboys]

I have had just the opposite with our nurse that sees my son. she has hit the nail right on the head with his issues. they are now seeing what we have been telling them. she documents everything. I DON'T trust some nurses (like my own mother as well as I don't trust some doctors) my son's cardiologist DOESN'T listen. FINALLY able to prove his issues ARE cardiac. and Chris' nurse ahs been right on for the past 3 years.
It all depends on wach individual person
Michelle

[Barbarella]

You mentioned "the nurse said the opposite".  NEVER pay any attention what a nurse tells you.  Pay attention at the doctors.  I had a nurse one time scare the hell out of me only to find out she was wrong, and the doctor then dealt with her because I went out of the room and called the nurse, I told the nurse to repeat to the doctor what she told me, the doctor was highly ticked at her in front of me.

When I was working at a hospital the nurses were instructed to keep their mouths shut at all times, they could not even give patients "good/normal results" either over the phone or when the patient was present.  Only doctors could do that.  Nurses were not even allowed to comment on peoples BP, "the doctor will discuss it with you" was what they were allowed to say to the patients.

If different doctors confuse you, I know the feeling.  If I were you I would trust a Specialist as in a Cardiologist over a regular doctor.   The neurologist is also a Specialist and I know its confusing who to listen to and what meds to take when both of them have different opinions.

As for the headaches you can have low BP and have headaches.  You can have very high BP and have NO headaches.  I never had headaches, and I had very high BP before meds, never a headache or dizziness, no symptoms whatsoever.  

Anxiety can cause BP to go up.  Maybe that is why the neurologist gave you meds for anxiety.  The Cardiologist probably didn't like it because lots of anxiety meds can be very habit forming.

You need to determine if your BP is caused due to anxiety or not.  I would get a monitor and would take my BP every day for two weeks, right the numbers down, even when you have anxiety, right "anxiety" next to the number if the number is high and you felt anxiety at that time.  Then take this list to a doctor.  I had to do that when I was referred to a Hypertension Specialist.

Good luck!

[rparent312]

Cardiologist is envolved because I have an enlared aorta (root ?) I believe that's what he called it.

[kenkeith]

The doctors' may be focussing on different problems.  High blood pressure does not have symptoms.  The HBP may be secondary to anxiety and medication to reduce anxiety may provide relief to your headache and also reduce bp.

Then there may treatment for depression as well.  I'm not sure, from your post,  why cardiologist is involved?  Find 1 doctor you trust and rely on his/her opinion.

[momtofourboys]

when you have been in this situation, (I am there currently and it has taken me litterally 3 years to get to the point I am at right now.) you have to be firm and consistant. maybe 2nd opinions form a certain specialist. if you feel it is one thing keep pluggin away. I have been fighting with my now 4year olds cardilologist saying something still isn't right with his heart he breathes fast and his hr is too slow and too fast. turns blue at different times things like that (I have posted under the doctors section about it) finally after 3 years I have been to 2 pulmonologist (cardiac doctor says it is asthma they say it is cardiac), ENT and ER and his vistibg nurse however he is getting worse and FINALLY able to prove it is cardiac and now we just have to convince the cardiac doctor he needs help.
so just keep pluggin away and DOCUMENT DOCUMENT and make sure you ahve a copy of ALL of your records so you have them and when you go to a specialist they can take a copy too.
good luck
Michelle