hi, then that seems to say that everything is caused by some mystery nerve dysfunction, right? that must be very frustrating
have you tried fasting? IIRC the beta hydroxybutyrate which is created in the liver during fasts can help nerve function, and fasting was used as therapy (for epilepsy) in years past. It might be worth a try, even though a long shot.
or what about Lyme?
Pheochromocytoma and Cushings have both been ruled out and fasting glucose testing showed that I am 'normal'.
I do have unexplained nueropathy in both arms and hands, I woke up one morning in 2003 unable to use either arm and with the left side of my face paralized, the facial troubles was ruled to be Bells Palsey but no reason for the neuropathy in my arms was ever found. I have regained most function in my arms and hands, but only about 65% strength and 40% sensation... much of the time I cannot feel my fingers at all. The best bet is MS, but with no plaques one Dr says it is and another says it isn't. (To me a title is not as important as being able to use my hands again)
I can tell you that I do not tolerate heat at all... anything over 70 degrees (F) and over 40% humidity will turn me beat red, make it hard to breath and send my BP into rises and crashes that leave me feeling like I am going to pass out, it also triggers idiopathic ventricular tachycardia.
hi, my guess is that you'd try to discover some situation in which your central nervous system causes a spike in adrenalin - yet it's not because of anxiety
a pheochromocytoma seems ruled out because your BP dropped with the clonidine, but adrenalin seems possibly ruled in, for the same reason
btw, giving gender, height, weight, age, etc can be helpful for anyone posing a question. also any drugs being taken, and any medical conditions such as diabetes etc
so what can provoke adrenalin besides emotions/anxiety? I don't know, but how's your blood glucose? do you ever have reactive or fasting hypoglycemia? low BG can result in a spike in adrenalin, which raises BG via action in the liver (glycolysis and gluconeogenesis, IIRC - but I don't know what exactly mediates the adrenalin release, though glucagon is also involved)
no one has any information?