Central Nervous System Causing Heart Trouble?

[lucyluu]

Well guys Im back.  I had a nice long run this time although Im sure my heart issues this time are due to stress and anxiety.  My heart has been mellow for a long time now only kicking up here and there but Ive had new symptoms.  I have had burning at different points all over my body, weird tightning of my lower legs, and my hand getting stuck in the shape of a claw.  Symptoms seem to come and go all the time.

I saw a great Neuro today.  I have a condition called Lupus Anticoagulant that I already knew about.  This is a blood clotting disorder but that has comes and goes too.  He said that my symptoms could be that or CNS damage.  He immediately ordered an MRI due to the results of a CT scan that I posted about last month.  I love how my regular doc told me not to worry about this result and then the Neuro tells me that I am losing brain tissue.

I know there are many ways for you CNS to become damaged but is there anyway to repair it?  I see nothing online.  I know Im jumping the gun but I want to be ready for what ever comes out of the MRI results.  I just wanted to share so that if anyone is going through the same thing it might help.  I cant believe Im going to say this but now I miss the days when I just had my PVC symptoms.

Lucy

[lucyluu]

Im sorry for all that you have been through but you spirit still sounds strong.  Lupus Anticoagulant is a blood clotting disorder.  I found lots of info on the web years back when I was first diagnosed.  Upon receiving the positive results I was immediately put on an asprin a day to keep my blood thin.  The asprin has done my stomach in so now I have to figure something else out but I did take it on an empty stomach a lot so it could be my own fault.  Lupus Anticoagulant turns into Lupus 50% of the time so just because you have it doesnt mean that you have Lupus.  The Neuro said today that Lup Antcoag can mimic MS and people get diagnosed with MS all the time who have Lupus.  

I have been doing a healing Yoga class over the past few months that has really helped my symptoms especially my gastritis.

[P_DeV_7]

hi there Lucy,  im new 2 all of this im 1 of them kinda people who leave everything 2 the last minute r thinking im wasting the doc's time, well that was up 2 now not anymore, i do hope u dnt mind me responding 2 u its just ive been reading a few peaples storys of there illness & like yr self getting no where with g.p's, this is the 1st time ive ever posted a comment a short time ago regarding wats been going on with myself & some of yr symptoms r the same as mine, i was sent right 2 hospital by my g.p with a letter stating urgent in cap's it scared me they done a heart trace & took bloods & 1 scan of my lungs i have a few illness & have had them 4 sum yrs now but the nite b4 i saw my g.p i thought i was aving an asthma attack untill next morning i saw the g.p she said she was  "totally gobsmacked", that my heart & pulse rate was 120bpm  i didnt feel half as bad at morning as i had dun the nite b4 she cudnt get over it when my hubby left the letter frm the hospital in 2 her wen i got out i was in 4 6 days no doc hardley came near me 2 me i didnt feel totally awfull r anything, but anyways sorry 4 going on lol it ended up a junior doc who was the only doc i ever saw in hospital told me they thought i ad a clot in my lung area, cut long story short he came bk 2 me told me i had a chest infection & i could now go home,its now near 4 weeks on & ive been unable 2 do anything i dnt even get dressed my heart is racing all the time,breathless pain coming an going in my chest an back but the back is worse now omg im in so much pain with it, pain dwn my left arm i get all swaety,shakey, & my hand gors just like yrs i have this almost every day not the same amount of pain each day, lower part of my leg an entire foot swells away out goes all shiny an its at tight an the redness varies in different places but its so sore, im totally drained no energy,dizzyness, the heart rate jumping up an dwn at doing the slightest thing, the heart rate thing is new 2 me & getting worse but 4 a long time ive had the other symptoms, im really sorry ive taken up way 2 much of yr time, but may i ask u plz if u get the time ats if u dnt mind & dnt think me being forward could u plz tell me about wat the lupas condition is u have so mybe i could them read up on it i would b ever so gr8 full, i avnt saw my g.p as of yet waiting on her returning bk 2 work in 2 weeks my family r not a bit pleased with me waiting just 2 c her as the size of the lower part of my leg is massive at the minute, once again thx so very,very much 4 yr time as ive taken a lot of it up ya think i was writing a book, just wanted 2 add i will keep u in my prayers & thoughts on waiting on yr results
all the very best 2 u
4 ever thankfull
paula.