Hello there, i am a 20 year old female (will be 21 in a week :) ).
Exactly a month ago, i had an episode of ventricular fibrilation while in the hospital. I was in the hospital for passing a kidney stone...they gave me some meds, including one i am allergic to (Fentenayl). Also i was give antropine, zofran, and benydryl. I guess they said i started "seizing" and went into cardiac arrest. 10 days later once out of ICU i was told i have Long QT syndrome. There are many arguments into what caused it as well as i had one doctor insist they take me into surgery right away to have and ICD place. Also they argue i had a predisposition to it (genetics) or it was one of the many drugs they gave me.
I have been to several EPs including one at Stanford and have been told i am "borderline" and a decision to get an implanted ICD would be up to me. However, i am waiting for genetic tests to see if i had a predisposition to this. I had an echo and it was normal, i had a cath exam and it was normal, i had a brain wave test, which was normal. So one doctor told me i "convulsed" not "seized"
My questions are, if my genetic test comes back normal, can the acquired Long QT go away?? Also, i am on Propranolol 20 mg 2x a day, and it drops my blood pressure to 62/59...my doctors are scared to take me off of the beta blocker, but having fainting spells and being scared to be alone is getting to me and i am even wearing a life vest (external defibrillator) What should i do?? Would i benefit from and EP Study?? Could ablation be an option?? And should i go to the ER for such a low heart rate, headache, and chest pain?