hocm

[quinncol]

following a serious of chest pains and dizzy spells i was diagnosed with hocm and fitted with an icd immediately.ther is an extremely serious family history of this problem on my fathers side and a large number of them have died as a result of this includin my father at 31 and an unle at 18.i have been informed recently that my condition is very serious and have been offered a few options for symptom relief which i have turned down as they are not a cure and have high risks involved wuth the procedures.the specialists have informed me that i will more than likely start going into heart failure in the next 10 years and i wonder what exactly lies ahead for me with this prognosis .?

[kevk]

Hi quinncol just want you to know you are not alone. I was dx with HOCM back in 1985 got my first ICD implanted in 1991. I have been in diastolic heart failure for a good many years now. If you want to talk just drop me a email in this site.

[Jerry_NJ]

I just read a summary of HOCM and am very sad to read of this severe heart condition that affects people of all ages.  

You didn't mention a heart transplant.  I know it is very difficult to find an available match plus all the other difficulties, including cost.  Would that be a possible solution?  Here I assume HOCM would not simply be reintroduced into the replacement organ by the receiving body.

My strongest sympathy and hope that something will be discovered to reverse the condition.