Aa
What to expect if treatment does not work
I some times wounder what to expect if treatment does not work this time. I have heard of a number of people who have not done the treatment and died. Would that hold true to someone who is not responsive to treatment? I don't want to over react to this or jump the gun or anything like that but I do have to wonder.
Daniel
Daniel
a lot depends on your state of disease, age, other health issues and how well you continue to care for yourself.
it is not one size fits all, to be sure.
Given my age, 57 and health (not super) and stage of disease 3/4 the doctor still told me I could live another 15 to 20 years. That may be optomistic, but I know that one can slow and even reverse the progress of fibrosis by good diet and supplements, avoiding harmful chemicals/foods/drugs.
Meanwhile there are antifibrotics (natural) vailable now, and antifibrotic drugs on the horizon as well as new HCV drugs soon to come.
So if for some reason you could not treat, I would still be hopeful as this disease has a slow progression....30 to 40 years from exposure to end stage liver disease.
I would really take the time though to learn about what things help and hurt the liver if that were the case.
Go read at the link I'll post below to learn more about antifibrotics.
take care...MB
it is not one size fits all, to be sure.
Given my age, 57 and health (not super) and stage of disease 3/4 the doctor still told me I could live another 15 to 20 years. That may be optomistic, but I know that one can slow and even reverse the progress of fibrosis by good diet and supplements, avoiding harmful chemicals/foods/drugs.
Meanwhile there are antifibrotics (natural) vailable now, and antifibrotic drugs on the horizon as well as new HCV drugs soon to come.
So if for some reason you could not treat, I would still be hopeful as this disease has a slow progression....30 to 40 years from exposure to end stage liver disease.
I would really take the time though to learn about what things help and hurt the liver if that were the case.
Go read at the link I'll post below to learn more about antifibrotics.
take care...MB
Hey Daniel.
Don't worry man. I know it get tough at times. Just try to remember that little light of strength and life that lies within you. Even through the darkest of times.
You do respond to treatment right? In your previous treatment you dropped more than 2 log? Did you become undetectable? Maybe you relapsed? If you did any of these you can always retreatment and try to be more successful. Remember progress with this disease is being made ever day.
For me current treatment doesn't work. Interferon doesn't work in my body. After 12 weeks my viral load only dropped one log. I knew what was happening week by week. But I gave it my best shot. Now I know where I stand. For me it is better than wondering if this if that...
We do what we can do. We can't control how our body is going to react or not react. So for me until a non interferon treatment comes out, my options are minimal. But not hopeless. Maybe I can stay healthy enough for long enough to be able to wait for that new non interferon treatment. Or I'm gonna learn alot about Liver Transplants! Oh boy lucky me! At least I have the option of a transplant.15-20 years ago there was no transplant option. Talk about a horrible way to die. I'm thankful for all the progress that has been made. And that is being made everyday. Maybe it can't help me or some others but we see people on this forum clearing the virus. And that is a great thing.
Somehow it will work out. It can always be worst. Every time I go to the Liver Transplant Center to see my Hepatologist I come back saying I got it made, I feel good now (with my cirrhosis, enlarged spleen, portal hypertension) I can still walk around and do the things I want to do and I can persue my career options. I can enjoy listening to music or looking at a beautiful woman. Somethings make me laugh somethings make me cry. Hey, we are alive! We got life. Right now. Right here. Who has anything greater??? To be alive and conscious that you are alive. Where they is life there is hope. Try to enjoy every moment you can. Don't force it. But let it come to you. Think about the great fun things you've done in your life. The people you have loved. The people you are close to. Enjoy every day the sun comes out. And even the days it doesn't come out! Think about all the people out there taking it for granted. Sleep walking though life. We're not. In some ways we are luckier than them. The complainers always thinking the world's against them. The haters everyone else has a problem but them. The self destructive ones hiding in their drug/addiction of choice. Isn't it clear now that all that is a waste of time and energy? If we gain anything from this disease I think some wisdom has to get through to us. Otherwise why don't we give up? Even people suffering the Dante like hell of End Stage Liver Disease don't give up. They hold one for one more second of love, connection, inner peace, of life!
I don't remember your exact situation but I'm sure you have options. Educate yourself about this disease and choose the best options for you. And you will never have any regrets because you have done the best you could. That is all any of us can do.
Best of luck to you.
Hang in there. It is okay to doubt and worry. It is all part of dealing with this disease.
Hector
Don't worry man. I know it get tough at times. Just try to remember that little light of strength and life that lies within you. Even through the darkest of times.
You do respond to treatment right? In your previous treatment you dropped more than 2 log? Did you become undetectable? Maybe you relapsed? If you did any of these you can always retreatment and try to be more successful. Remember progress with this disease is being made ever day.
For me current treatment doesn't work. Interferon doesn't work in my body. After 12 weeks my viral load only dropped one log. I knew what was happening week by week. But I gave it my best shot. Now I know where I stand. For me it is better than wondering if this if that...
We do what we can do. We can't control how our body is going to react or not react. So for me until a non interferon treatment comes out, my options are minimal. But not hopeless. Maybe I can stay healthy enough for long enough to be able to wait for that new non interferon treatment. Or I'm gonna learn alot about Liver Transplants! Oh boy lucky me! At least I have the option of a transplant.15-20 years ago there was no transplant option. Talk about a horrible way to die. I'm thankful for all the progress that has been made. And that is being made everyday. Maybe it can't help me or some others but we see people on this forum clearing the virus. And that is a great thing.
Somehow it will work out. It can always be worst. Every time I go to the Liver Transplant Center to see my Hepatologist I come back saying I got it made, I feel good now (with my cirrhosis, enlarged spleen, portal hypertension) I can still walk around and do the things I want to do and I can persue my career options. I can enjoy listening to music or looking at a beautiful woman. Somethings make me laugh somethings make me cry. Hey, we are alive! We got life. Right now. Right here. Who has anything greater??? To be alive and conscious that you are alive. Where they is life there is hope. Try to enjoy every moment you can. Don't force it. But let it come to you. Think about the great fun things you've done in your life. The people you have loved. The people you are close to. Enjoy every day the sun comes out. And even the days it doesn't come out! Think about all the people out there taking it for granted. Sleep walking though life. We're not. In some ways we are luckier than them. The complainers always thinking the world's against them. The haters everyone else has a problem but them. The self destructive ones hiding in their drug/addiction of choice. Isn't it clear now that all that is a waste of time and energy? If we gain anything from this disease I think some wisdom has to get through to us. Otherwise why don't we give up? Even people suffering the Dante like hell of End Stage Liver Disease don't give up. They hold one for one more second of love, connection, inner peace, of life!
I don't remember your exact situation but I'm sure you have options. Educate yourself about this disease and choose the best options for you. And you will never have any regrets because you have done the best you could. That is all any of us can do.
Best of luck to you.
Hang in there. It is okay to doubt and worry. It is all part of dealing with this disease.
Hector
Great post, Hector. You may not yet have beat the virus physically, but it's clear you've got it beat emotionally, mentally, and spiritually.
Your words are a reminder of all the good things in life -- thanks for such inspiring and encouraging words.
You're obviously a man who's mastered the art of making lemonade.
Cheers :)
Your words are a reminder of all the good things in life -- thanks for such inspiring and encouraging words.
You're obviously a man who's mastered the art of making lemonade.
Cheers :)
Hector, I don't know if Daniel2u benifited from that post, but it did me good.
Thanks!
Daniel2u, I feel like you some days...I chalk it up to the meds and move forward. It will pass.
Thanks!
Daniel2u, I feel like you some days...I chalk it up to the meds and move forward. It will pass.
Thanks everyone for your comments and support. I just needed a a boost of support. HectorSF I appreciate you taking the time to give such a long post it is helpful and and thank you Merrybe for the link http://www.medhelp.org/posts/show/346752 it read the post and they were helpful as well. I need the support from this forum because I have only told a couple of people that I had to go back on treatment so without this forum I would have to internalize concerns and feelings. I really should county my blessings. I really don't get the side effects like many others do. I get a little agitation and hyper fatigue but not really anything that I can't handle. Thanks again everyone
Pax
Daniel
Pax
Daniel
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