My doughter is starting Telaprevir Phase III tx 6/17

[roostermom]

When I started my TX, I didn't get for the first or second treatment, and then it hit me like a brick. The trial nurse recommended she take rest of the day off after her first treatment because up to 30% of people get sick with the first tx. Any thoughts on this. This really starting to hit home to her and to me, who gave it to her somehow. Feeling low and anxious for her.

[roostermom]

thanks for that advise - she has a shore house this summer so I will push the sunscreen issue hard.

[susan400]

She's starting on my B-Day, good luck to her!   If I might offer one little bit of advice, based on my own personal experience w/Telaprevir - have her stay out of the direct sunlight!  Trust me in this.  It is not the kind of drug that takes too kindly to the sun.  I would suggest wearing at the very least a SPF #15 before going outside into the sun, while on this drug.  

Susan

[Trish77]

From a mental point of view, I would suggest she take the time off if she can, around that first injection.  Rather than worrying about if she'll be able to handle work, the inevitable anxiety that comes with the first injection and the start of tx is enough to handle.  That would be my suggestion.  If it doesn't hit her, all the better.  

It went the same way for me...I was good about the first two - three weeks and then *wham* .. the anemia set in.

Good luck to her.

Trish

[roostermom]

thanks so much - will keep you posted.

[roostermom]

sorry typo, meant to say didn' get sick for first two weeks