Aa
1b or 1a
Can anyone tell me which is worse,1a or 1b.I was told I have 1a.
you have no reason to suspect that you aren't winning this battle. In fact feeling bad is very good believe it or not....it's a battle scar we all have to share but believe me when you are cured you will proudly say "it sucked but I did it, I am cured".
The only thing I can suggest is that you make sure you are taking the riba with your breakfast and dinner meals to help with the stomach stuff. Gingerale and crackers which I always thought was a huge wives tale does in fact help for a lot of people.
The being tired.........not too much that can be done about that. I doubt you are having the hemolytic anemia yet but your hemo could be dropping down from the riba and that would definitely and positively make you feel more lethargic. Once you get your blood work back from the doctor (ALWAYS get a copy right away - usually a CBC takes about a day to get back) some and post up the numbers in here and folks will help you learn how to read it and see if there are any clues in there that could help you.
Hang in there - you can make it!!!!!!!!!!!
The only thing I can suggest is that you make sure you are taking the riba with your breakfast and dinner meals to help with the stomach stuff. Gingerale and crackers which I always thought was a huge wives tale does in fact help for a lot of people.
The being tired.........not too much that can be done about that. I doubt you are having the hemolytic anemia yet but your hemo could be dropping down from the riba and that would definitely and positively make you feel more lethargic. Once you get your blood work back from the doctor (ALWAYS get a copy right away - usually a CBC takes about a day to get back) some and post up the numbers in here and folks will help you learn how to read it and see if there are any clues in there that could help you.
Hang in there - you can make it!!!!!!!!!!!
Sorry to hear you're not feeling good! I really hope on Thursday you get some good news from the doctor, and maybe s/he can give you some help with your side effects.
Hi,I am having nausea atleast once a day,and I am starting to feel very tired and weak.All of that would be alot easier to take if I knew this treatment was working.I guess sometimes I worry to much.I have an appointment with the doctor Thursday,maybe I will find out more then.I have my fingers crossed.
I hope you aren't getting the placebo either but remember there are loads of us in here who have cleared and been cured who never got anything other than regular old interferon and ribavirin - so there is plenty of hope for you anyway :)
You said you just started to feel bad. Bad like how? tired and lethargic or feverish or something? As time goes by things like anemia can pop up - depending on your trial (and I'm sorry I am naive about such things mostly since I didn't do one and because I think it goes different for them all) if you do develop hemolytic anemia you can ask the doc if you are allowed to take procrit. It's a med that will help your bone marrow begin to grow more red blood cells again (having less oxygen in your blood REALLY is difficult) but as you are only 3 weeks in that shouldn't be happening quite yet.
If you let us know what you mean maybe we can help give you some suggestions to help you feel better.
You said you just started to feel bad. Bad like how? tired and lethargic or feverish or something? As time goes by things like anemia can pop up - depending on your trial (and I'm sorry I am naive about such things mostly since I didn't do one and because I think it goes different for them all) if you do develop hemolytic anemia you can ask the doc if you are allowed to take procrit. It's a med that will help your bone marrow begin to grow more red blood cells again (having less oxygen in your blood REALLY is difficult) but as you are only 3 weeks in that shouldn't be happening quite yet.
If you let us know what you mean maybe we can help give you some suggestions to help you feel better.
Thank you for your response.I wasn`t told if I would go UND by week 4 if I can stop at 24 weeks.That would be great if that was the case.What you said about the trial I am in is very encourging.I just hope I am not taking the placebo.However when I get any results I will post them.Thank you again and take care.
NYGirl7 was asking if you know when your viral load went down to undetectable (UND). But you are only in week 2 and the trial you are in is double-blind, so you couldn't possibly know that now.
However, I looked at your trial protocol and it seems that if you get RVR (i.e. they determine that your viral load is UND by week 4) you will get to stop at 24 weeks -- is that right? It really sounds like a good trial to me. Many people clear on these trials, you've got a great shot. Just try to keep positive and realize you can beat this. Sorry you're getting some side effects, but they might go away again, you can never tell. Keep up the good work, and good luck!
However, I looked at your trial protocol and it seems that if you get RVR (i.e. they determine that your viral load is UND by week 4) you will get to stop at 24 weeks -- is that right? It really sounds like a good trial to me. Many people clear on these trials, you've got a great shot. Just try to keep positive and realize you can beat this. Sorry you're getting some side effects, but they might go away again, you can never tell. Keep up the good work, and good luck!
Hi,I am happy to hear you cleared,that is good news.I hope I can clear too.I am in my 2nd week.I take my 3rd injection Thursday.I wasn`t experiencing any sides until last night.I felt bad and it isn`t that great today either.But I am determined to see this through.I had blood drawn last Thursday but didn`t get any results yet.I am not quite sure what you mean by when I got to UND.
I had them both and beat them with regular old SOC (and extending) so I think you have a great great chance with the R on board too!
What week are you in? Do you know yet when you got to UND?
What week are you in? Do you know yet when you got to UND?
Thank you to everyone who responded,I feel a little better now.And Writeltdown,you are right I am in the r05024048 trial.I have my fingers crossed that I am being given the new drug.And good luck to you Steve,I hope you get Svr.
Same. Every time some scientific study imagines that one is somehow worse than the other, it turns out to be a poor study.
Besides the patient's viral genotype I'm thinking that response is also determined by the patient's genetic makeup, which determines how one responds to interferon. People will be able to screen for that before much longer, but till then, you won't know till you try interferon and see what happens. Adding a third drug can only help, in most cases.
Besides the patient's viral genotype I'm thinking that response is also determined by the patient's genetic makeup, which determines how one responds to interferon. People will be able to screen for that before much longer, but till then, you won't know till you try interferon and see what happens. Adding a third drug can only help, in most cases.
Can I just say this to you terca, I think that alot of the factors involved with beating the Hep-C dragon has to do with being totaly focused on the goal & being very optermistic you will win .... Like it was said the figures we read about are years old & I'm sure they must be better than a flip of a coin nowadays (with geno 1a & 1b) Good Luck to you I'm geno 3a but on my 2nd Tx 4 weeks away from the finish line 48wks Arrggghhhh yeehaa .... Steve ....
If I'm not mistaken you're on a trial of R05024048 (aka R7128), correct? This drug has been getting very good results. I would think if you luck out and are not in the placebo arm, you have a very good chance of clearing. My feeling is you're doing the right thing, getting in on this trial, and you may very well get SVR. So don't be discouraged by the statistics for Genotype 1. Those are the OLD statistics for SOC. On your trial you will have a much better shot. Hope it works for you!
I think they are both the same, too. I'm also a 1a and have one failed treatment under my belt so far. The new drugs are improving the odds for geno 1s though. Less of a carpshoot.
Thank you,I know the odds aren`t that great for a cure with having geno 1,I just didn`t know if one was harder to cure than the other.
They are both the same, I think. You can read people claiming that one or the other is harder to treat, but nothing I've read really seems to support it.
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