Boceprevir Trial Started

[Rockerforlife]

Hi all,just did my first shot and and 3 Ribas in the Doctors office about 3 hours ago...juts waiting for the "shake rattle and roll" to hit me...BTW i like the palm pilot they give you to keep track of the the meds ...once a day you log on the machine and enter your data....make sit easier to NOT miss your meds...good thinking by someone out there in big pharma land...this thing is even wireless and has a camera and a key board...looks jus like a black berry...pretty wild...anywho...i do 3 more shots and then i go in for the BOC meds and pray i get the real deal...have a beautiful weekend to you all

r.s

[Trish77]

I just wanted to say "bon voyage" to all on the good ship Phase III Boceprevir.  

Here's rooting for all of you and for everyone hoping for good results from this trial.  It does look promising.  Good luck navigating the waters of the trial, hoping it's smooth sailing for everyone.

Trish

[SeiserL]

Thanks for the update. Sounds good for you.

And me. Liver biopsy scheduled 11/19, then into a phase 3 Boceprevir trial.

Been lurking and reading. Very helpful. Thanks for that.

Until again,
Lynn

[portann]

You sure make those berries sound great. I've never had them or even seen them. If I went out today, where should I head to find them?

Any reason at all not to take them? Are they dried and therefore very high in sugar, for example? Could they in that case affect your  your insulin?

Thanks and good luck.

[susan400]

No worries, I'm not a gun owner!  I could never have the ability to shoot anything living.  I did go to the gun range once with my husband to shoot his Glock and every time I pulled the trigger, I CLOSED MY EYES!  My husband was laughing at me and told me that I might actually hit the target if I kept my eyes open!  I was wearing the safety goggles and still got started by the kick back of the shells.  Once I forced myself to open my eyes, I did finally hit the target but, it was a paper target in the diagram of a man and not a real human, or a live animal.  

Susan400

[Rockerforlife]

All joking aside...the besdt brand of coconut oil is DME    the rest is not good...its all processed even tho it says its organic virgin...DME is the ONLY one thats not processed..its taken directy from the tree and cold presed on bottled on the spot....i take a table spoon with my riba ...you can go with a teaspoon if you like...you dont need much

[Rockerforlife]

If a click from a piece of plastic makes you jump like that...DO NOT   go hunting moose with a 12  gauge shot gun...you may end up on your a.ss with that kick

[Rockerforlife]

ITs a thing called a spoon...not sure of the year it was invented.its about 6 inches long with a small bowl shaped receptacle at the end of a handle..anyway..you just dip it into the jar of oil and lift to mouth and swallow..do not swallow spoon..may cause some dicomfort

[HATCHJO]

Susan
They will not accept you in this trial. I was in the same Vertex trial as you Arm C.....I applied in Michigan as well as Toronto and was turned down because of the vertex experience. Sorry
Joanne

[R Glass]

May the Force be with You

[susan400]

Nothing's stopping me!  I inquired at 2 of the trial sites that I've been involved with and neither one of them is doing Boceprevir and don't intend to do it.  They also told me that they have no upcoming trials for which I will qualify for..., for non-responders.  One of these 2 trial sites told me, "you will not be accepted into any of the trials for protease inhibitors".  Which I thought was rather negative in my opinion.  I mean how does she know if another trial would not consider me for Boceprevir, when A.) they are not even doing that trial and B.) I've never been exposed to Boceprevir so, how could I be resistant to it?  Anyhow, I sent my records off to yet, another trial site, which is doing the Boc. trial and I have yet to hear back from them.  Before I sent them, I was told that if I was even considered, that I would not be able to start until the next group after the first of the year - which is fine with me, if they will just accept me.  I asked about the Pen thing because I've never used them.  When I was the Peg-Intron in the past, I never used the pen, I always used the other method of Peg-Intron (a vial or Prefilled syringe - don't remember which it was).  It's been a few years since the Peg-Intron for me.  One time, I had this Pen-like device for another medication - not an interferon drug and I did not do well with it.  I was a device where you pushed it up against your skin and pushed a button and the drug was dispensed with a 'click' sound..., it made me jump, sort-of and when I got startled, I ended up moving my hand and squirting the medicine out away from my skin and basically wasted the med.  I had no problem with the prefilled syringes that Pegasys is used with.  I had no problem with a syringe and a vial.  For some reason that clicking mechanism makes me jump, jerk or whatever.  I'm sure that with practice and instruction on the first few shots that I could learn it and get past that.  I have the same knee-jerk reaction with closing my eyes on a flash picture.  

Susan400

[sunqueen]

Good luck Rocker!  Now go kick some buggggger butttttttt!

[virgocharm]

i bought the coconut oil. how do you take it.

[Rockerforlife]

BTW...the palm pilot is programed to just record the treatment...camera and phone are disabled

[Rockerforlife]

IM supposed to make the gogi berries last one month...a small hand full...bout  1/4 cup is all ya need a day,make sure they are organic...they spray them a lot if there not...i tried the non-organic ones...gross tasting...there are supposed to help with fatty liver....i cant see these berries conflicting with treatmet drugs....its just a  berry..its food

[fretboard]

Glad to hear you started, hope you're doing well.  I go in on Thursday, I'm looking forward to the palm pilot thing.  Oh UND at 4wks would be nice too.  lol  Oh and the real pills too, and lets not forget SVR for all.  Anyways, hope you're feeling well and I hope y'all have a good week.

fret

[Isobella]

About your new palm pilot thingy.................are you sure you didn't pick up the  nurse's i-phone by mistake and she is home trying to answer a pill alarm, LOL!!!  

Hope you have a good weekend =)

Izzy

[Xenigma]

I hope this time it's smooth sailing with
favorable results!

[Marcia2202]

That sure is a lot of crunchy delicious antioxidant superfood! Go for it!

[Rockerforlife]

20 BUCKS A POUND...i am worth every penny

[Rockerforlife]

The company Schering Plow only uses the redi-pen   its their trade mark...i call it the MAGIC MARKER....looks just like one....whats stopping you from the up coming BOC trials?....im sure there are coming protcols in you favour....ill ask my doc


Thank you Marcia....the lady from the Brady Bunch


i have problem with them berries...i cannot stop eating them,,,i went tru 4 pounds in one month

[susan400]

Do you HAVE to use the Redipen, or do you just prefer it?  Do they give you a choice?  Just curious.  Not that I'll even be able to get into a Boceprevir trial..., I am just asking for my own knowledge is all.

Susan400

[Marcia2202]

BADSS Bro', you kick a§§ big time!

I'm so happy you finally started! I'll be right here if you need me.

I think I'll get a bowl of goji berries and put them nest to my bed to nibble on them.


Hugs, Marcia

[Fl_Gator]

Welcome to the club...I hope all goes well for you. Please keep us posted.

I did shot # 22 this morning. I should have waited another hour or two...I'm starting to feel it now and it's too early...the kids are coming over...I'm not cooking...they're getting pizza...dam'it....not cooking.  

[can-do-man]

I will be getting that palm thingy next week, after tx do we get to keep them or do we have to steal them??? :)