Hep C and Fibroscan

[Livelife777]

Hello friends.   Since being diagnosed with Hep C and Cirrhosis I have been on a mission to reverse the damage done by the virus.  I was treated with Sovaldi/Ribavirin 12 weeks for genotype 2 and fortunately was cured.  It has
now been over a year since being declared SVR 24 and am doing my best to reverse the Cirrhosis thru healthy
living.   Recently had a Fibroscan (MRE) at Mayo Clinic and my # came back at 11.0 K. I'm wondering if anyone has info related to what that score indicates.  Some grafts say F4 (Cirrhosis) while others F3 (Fibrosis).  Any thoughts or responses would be welcomed.   Tnx
.....Kim

[ppmguy]

   I think you will find this interesting...

      i had cirrhosis in 2012 when i cleared the virus.

    on march 5th, 2015 i had a fibroscan

   result was 4.5 kpa  =  f 0 to f 1   NORMAL

    yesterday i had a ultrasound to cross referrence the fibroscan.

    result  was;    echogenicity was normal
                          liver surface is smooth
                         liver appears normal

    my hepatologist wasnt surprised. she stated that if the liver is cirrhotic,
    but fully functioning, the liver can heal itself.  

    It can and does happen
    barry

[48weeks]

When I was on Telaprevir two years ago, my platelets got that low. The lab also included phrasing that said my platelets clump.  Once I got off Telaprevir, they returned to the normal range with no mention of clumping.  If yours clump and your concerned, as you should be at that count, you may want to see a blood specialist to get an accurate count, I forget what they're called.  79 is very low.

[Stronglady14]

I would truly love a forum with that subject. I too am cured but my fibroscan was 9.9. I would love to find ways to help cure my liver. I know mine has a rough time due to me having to take pain meds. I have improved my ways of eating but wonder if that is enough. My platelets where 79 last time I was tested not even really sure had bad that is. All the info we can get from each other would be awesome.

[48weeks]

...I guess I would be considered a fibrotic, that's a weird word. I have just recently attained SVR, and I think a group like this would be great.  I would like to see evidence of a healing liver too.  So many on here are so good at eating right etc...I work out, and drink lots of water, and sort of try to eat well, but I am not one that just eats a "liver friendly" diet. I hope I'm not doing too much damage.

[Livelife777]

So, are we all on board?  It's really important for all of us to keep tabs on what lies ahead, and also on eachother.  I think it will give many of us an opportunity to share our recipes for success as well as stumbling blocks that we may encounter along the way.  Kinda like a support group for after the fact.
There have been many instances where we get to know one another while sharing out treatment journey and then once they are SVR it's "Poof", where did that person go?  At least this way we could encourage others and ourselves to stay with the program and move forward with healthy positive living.  Not doom and gloom.
Personally the most challenging aspect of this experience is the "Now what".
Are we going to get better if Cirrhotic?  Are there any new treatments on the horizon?  What foods should I eat to jump start my liver?  I could go on and on.  I just had an MRE and still can't find any info on what my # really means.
Am I getting better, worse, will I see improvement?  If we could all share our After the fact, then we would not be left with such uncertainty.  Keep in mind we have Cirrhotics, Firbrotics, and Post Transplant friends that have initiated and completed treatment also wondering what's next.
Let's throw out some suggestions and if anyone knows the moderators see if this idea can be included in conjunction with the other topics.  We really do need a safe non judgemental forum to exchange thoughts and give continued
support.
.....Kim

[patra_]

That's why it was a question.  I do like the comcept here, though.  Would it be aimed only at cirrhotics?

How about seeing if MedHelp is interested in a community called, maybe, 'PostTreatment, Second and Third Generation' ?  thought about a new Community because I agree with Hepcandme both the Cirrhosis and regular post treatment really don't fit what this is about.