Actually, I take that back, above, especially in light of the ER trip. Labs have to be ordered. If a person has cirrhosis and with low platelets, then it is not safe to do a standard biopsy,(with-out proper blood clotting ability) and a special and more complicated method is used.
The Encephalothopy is one of many many upsetting symptoms. Myheart goes out to all on here, who have experienced this kind of loss of memory/mental function. To lose control like that must feel terrifying.
Much respect to Nighthawk, for staying organized, in the face of what just happened, they are very brave <3
It does sound like encephalopathy, OH.
I hope Nighthawk gets it figured out asap, because there are good meds for that, the lactulose~
But it sounded very dangerous, and a liver biopsy is still the gold standard. If the OP cant afford it, then SSI can be applied for (if it is cirrhosis, more easy, so the old labs should be fished up as well)
I thought that fibrosis was when the liver begins to change form becoming fibrous.
And scarring was cirrhosis.
However while doing a search, it's somewhat confusing as to whether scarring always means cirrhosis or simply fibrosis.
Having had advanced cirrhosis and encephalopathy as well as ascites, I'm concerned that she may indeed have decompensated cirrhosis, one because of the ER incident and the other is the sudden weight gain.
The bottom line is Nighthawk, either did not get a proper diagnosis or can't remember. We can not assume she received good advice from her doctor.
http://hepatitiscnewdrugresearch.com/fibrosis.html
Fibrosis
Fibrosis is an accumulation of fibrous tissue resulting from an imbalance between several types of liver cells. As liver cell structures change, the function of the liver is altered. Fibrosis is common to several chronic liver diseases, as it is a sign of hepatic injury. A diagnosis of fibrosis is usually determined with a liver biopsy or noninvasive tests .
There is a spectrum of liver injury seen. Necrosis indicates that liver cells have been damaged and died. If there is substantial damage one may see scar tissue forming to replace the dead liver cells. The term for this finding is fibrosis. If there is really a lot of liver damage, these scars may alter the structure of the liver forming nodules. This severe form of fibrosis is called
cirrhosis.
Cirrhosis
When the liver becomes permanently injured and scarred, the condition is called cirrhosis. This chronic (long-term) disease results from slow deterioration of the liver. Damage to the structure of the liver causes the flow of blood to be blocked and slows liver function so that the liver cannot regulate the content of the blood and process nutrients, hormones, drugs, and toxins (harmful substances) as well as it normally would.
Thank you so much for your post. I certainly will do as you suggested. Liz
Scarring is called Fibrosis, if your biopsy had shown cirrhosis, it would read "Stage 4 cirrhosis", and if you had that, it would have been time to treat.
Generally, scarring (fibrosis) is seen in Stage 2 (what I had) and Stage 3.
Once you get ahold of your labs, then take note of what your 'platelets" are, this would be in a CBC panel, on your labs.
Generally, once a person has cirrhosis, the platelets drop alot lower than the normal range. Take a good look at your labs, (I make copies of all of mine, and put in my Hep C Folder) and note what is out of range. Other impotant things are Albumin and Bilirubin.
Once you know what is out of range, you can ask your Doctor about it, but I also google how to read labs, and also come on here, to ask the Old-Timers. Us people with Hep, or who have had Hep, have a vested interest, in knowing these facts...to save our own lives!
I'd like to suggest you also post on the cirrhosis forum. Although it is not as active as this one, the people on it are more aware of the effects of cirrhosis.