Liver Biopsy Results

[mckansas]

OK, here it is and I'm pretty devastated.

Liver parenchyma showing changes consistent with chronic hepatitis C. Grade 4 (sever activity with marked portal inflammation with piecemeal necrosis, lobular spotting necrosis, and area of confluent necrosis resulting in bridging). Stage 4 (showing bridging fibrosis and nodular regeneration, with liver cirrhosis). Histological grading of iron store is normal (score 0/4+).

No wonder he is making me an appointment with the transplant center.

[mckansas]

Apparently the GI who was going to refer me over a month ago hasn't ever called back, thus my questions again regarding a contact. I do not trust this guy, so I will move forward with this information. The GI told me not to worry, wait until next year for treatment, but I AM worried as my internal organs feel like a package of worms squirming around and striking with poison filled tentacles at various targets in my gut. That's the only way I can explain it. Thanks again to all who gave me some new contacts to call, I truly appreciate it.

[Advocate1955]

Here is the link to the University of Kansas, Transplant Services, Liver Transplant Department:
http://www.kumed.com/medical-services/transplant-services/liver-transplant

Here is the link to the University of Kansas, Gastroenterology & Hepatology Department:
http://www.kumed.com/medical-services/gastroenterology

Here is the link for Dr. Richard K. Gilroy there who specializes in Liver Transplantation:
http://www.kumed.com/find-doctor/gilroy-richard-k

Mckansas, you just can't afford to wait anymore.  If your general practitioner has not made an appointment for you yet, you need to contact either the Hepatology department or the Transplant Services Department right away and get an appointment.  The longer you wait, the longer it will take to get an appointment.
Advocate1955

[orphanedhawk]

My suggestion would be for you to phone the liver treatment center nonsensical posted about.
Not everything is listed on the web ( believe it or not!)

[mckansas]

Thanks for the info. I search docs/hepatologists and nothing ever pops, just GI's.

[gene53]

As nonsensical mentioned, the KU transplant center is probably the closest to you. I also have stage 4 cirrhosis and that is where I go. I am currently seeing Dr. Gilroy there.
Good luck

[nonsensical]

University of Kansas, located in Kansas City has a school of medicine, medical center and teaching hospital which includes gastroenterology and hepatology.  3 hours 6 mins/ Wichita to Kansas City 199.2 mi - I-70 W, I-335 S and I-35 S

Here are the numbers:

Gastroenterology and Hepatology
913-588-6019  

General Hepatology Clinic
913-588-4048  

Liver Treatment Center (Hepatology)
913.588.3294