I think the reasons for saying not to use milk thistle while on treatment are as simple as there is not enough information on whether milk thistle helps or inhibits the treatment process, make side effects better or worse and better to play it safe than sorry and go with knowns while on treatment medications. That's also why alot of herb products are not to be taken while on treatment either. There are a number of herb products that are safe to take while managing HCV outside of treatment and that seem to help control the impact of HCV on our physiology - but during treatment is a whole other animal. I had my hepatologist approve mushroom compound while I was on treatment .. I did my research, they did theirs and said I could go ahead. That was entirely situational based on my overall circumstances at the time. On the whole, when you enter treatment, they figure best not to introduce unknowns into the environment.
As for being a guinea pig on a clinical trial .. well, there are a whole lotta guinea pigs on this forum and some of us owe our cures to that process. It's a balancing act.
I know fully well that it does nothing to cure hepatitis but just help to clear toxins out of your liver. This is my point i am trying to figure out!
According to Hepatologists replies
1: It helps (Clear Toxins out of your Liver)
2: It does nothing for you
3: It can damage your Liver during course of treatment.
If it does damage your liver during course of treatment, why are there some Hepatologist stating yes it is OK ? This is wrong!
It is like going through a clinical trial being used as a Guinea pig.
I have been using milk thistle since 1992. I do not use it while on treatment, but having failed two other rounds of treatment, I do know that when I am using it,my liver numbers are lower. It does not cure Hep C, but it has been shown to help with liver damage. my docs have all recommended that i not take it while on treatment, when i asked my current study doc why, he told me that they do not really understand how it will react to the SOC and since they do not have a clear picture on this, why take it - it might help, it might do nothing or it might interfer - I thought this was a great answer.
Study coordinator suggested I take it after I relapsed on my 4 week. I have yet to do it, but you guys reminded me! It supposedly reduces inflammation. On a weird note, my mother's cat takes it, prescribed by the vet.
yes, looking back my Hepatologist was starting my Tx when I posed the question about Milk Thistle.
As we can see a big difference in opinions originally coming from different Hepatologists and Doctors.
Not everyone is RIGHT!
Been diagnosed with Hepatitis C and Genotype 1, your treatment only provides you with a 50% chance of success!
I would DOUBLE CHECK with all Doctors and Hepatologist who is right and who is wrong?
Taking Milk Thistle could make a Big difference and be the reason why some patients do not cross the border of 50% chance in which to succeed our treatment!
My doctor has no problem with milk thistle on or off tx. And a friend's recommended it during tx.
Apparently it's beneficial to the liver but it isn't going to get rid of HCV.
In Germany they synthesize the active ingredient, silymarin, and use it for liver ailments.
Not related, but my horse used to love to eat the flowers. She'd curl back her lips and bite off the purple petals.
It seems very strange to all the different stories going around, some doctors state YES some say NO! who is right and who is wrong?
My Fiance's friend stated you can ask her doctor to check on her medical records and through the course of treatment Milk Thistle helped her considerably!
May be it is just another way of making money out of us just like getting you to buy Ultra Thistle which is far more expensive!
You can safely take milk thistle BEFORE treatment but not DURING treatment. Vitamins are fine but do not take vitamin A or K too much extra (they are stored in the liver and you do not need extra) and definitely take a pill WITHOUT IRON. Most men's multivitamins are safe as they don't contain extra iron.
Herbal remedies CAN cause traumatic liver cell death and that is the last thing that any of us need. Plus they won't cure you and even the concept of "lowering your viral load" makes no sense because that is not what causes the damage to your liver...so don't believe any hype as it won't do anything most likely except drain your wallet - not your hep.
Good luck!
im very surprised your hep dr advised against it, my doctor is all for it, they are doing clnical trials for it, and the only time iwas told not to take it was while on TX
it wont cure the hep but it will help your liver functions...
Both of my Hepatologists advised against.it