Aa
New Fibroscan
I just got back from LA where I had my second fibroscan. Both were done by HR. The first scan, done six months ago, showed an average of 11.5 kpascal for a high F3 fibrosis staging. A week later I started doing HepTech products. Six months later, today's fibroscan showed an average of 8.7 kpascal for a F2-F3 staging. Pretty decent drop in six months.
I am geno 1a, infected 35 years ago. Six years ago a biopsy also showed high F3, followed by a failed course of SOC. After failed tx I had a VL of 7 million, high enzymes, chronic fatigue and a destroyed immune system. Now I have great energy, low VL and normal enzymes and decreasing fibrosis. I am very happy that my way is clear: keep doing the same things and look for more reduction of fibrosis.
My protocol is 4.5 mg low dose naltrexone, Zhang herbs and HepTech products. Based on my readings, I will not change my protocol and will re-scan in another six months. At that time I hope to see another drop in fibrosis
Next week I will also do labs to check enzymes and viral load. My last labs showed a VL of 58 thousand and normal enzymes. I am hoping for close to the same results this time. I will post the lab results when I get them.
Not a cure, but I believe I am turning back the clock on my liver's lifeline. Severe side effects derailed my first tx attempts after 12 weeks. Accordingly I believe that another course of tx would have the same results. So I, like many hep c patients, needed an alternative strategy to forestall what looked like the inevitable. I'm happy to be making progress and, at the same time, to have great quality of life.
I am geno 1a, infected 35 years ago. Six years ago a biopsy also showed high F3, followed by a failed course of SOC. After failed tx I had a VL of 7 million, high enzymes, chronic fatigue and a destroyed immune system. Now I have great energy, low VL and normal enzymes and decreasing fibrosis. I am very happy that my way is clear: keep doing the same things and look for more reduction of fibrosis.
My protocol is 4.5 mg low dose naltrexone, Zhang herbs and HepTech products. Based on my readings, I will not change my protocol and will re-scan in another six months. At that time I hope to see another drop in fibrosis
Next week I will also do labs to check enzymes and viral load. My last labs showed a VL of 58 thousand and normal enzymes. I am hoping for close to the same results this time. I will post the lab results when I get them.
Not a cure, but I believe I am turning back the clock on my liver's lifeline. Severe side effects derailed my first tx attempts after 12 weeks. Accordingly I believe that another course of tx would have the same results. So I, like many hep c patients, needed an alternative strategy to forestall what looked like the inevitable. I'm happy to be making progress and, at the same time, to have great quality of life.
IS IT STILL JUSTIFIED TO CONSIDER LIVER BIOPSY AS THE GOLD STANDARD?
http://www1.uegw10.uegf.org/guest/ID14c5615c480c19/AbstractView?ABSID=10961
in italy this thing is not big news among researchers and most expert doctors from a couple of years and fibroscans are availabe in every region free by healthcare or in private hospitals.
i had 2 biopsies, my mother 2, my sister one: me and my mother we had one wrong because it was seeing much less damage.
of course if fibroscan is not available everywhere like in europe biopsy is still required to measure fibrosis but since 2005 we are not using them anymore for fibrosis, you should push your helthcare for updated labs/machines
http://www1.uegw10.uegf.org/guest/ID14c5615c480c19/AbstractView?ABSID=10961
in italy this thing is not big news among researchers and most expert doctors from a couple of years and fibroscans are availabe in every region free by healthcare or in private hospitals.
i had 2 biopsies, my mother 2, my sister one: me and my mother we had one wrong because it was seeing much less damage.
of course if fibroscan is not available everywhere like in europe biopsy is still required to measure fibrosis but since 2005 we are not using them anymore for fibrosis, you should push your helthcare for updated labs/machines
Still would like to know where the machine is in LA.?
I've never had 2 stars before and I need to go back to just one right away because I'm exhausted for work and my house is looking seedy. :>(
I will be much quieter tomorrow. :>)
I will be much quieter tomorrow. :>)
That is great!
Joe's latest scan showed his spleen is still enlarged but who knows, maybe next time that too will improve. I'm glad you have been feeling better and having more energy. That in itself is worth a lot. Life won't just stop for you because you feel bad. HCV is impossible to explain to others and if you look OK, they think you must be faking. :>) Well, Joe was so sick on TX, he looked horrible and people could at least tell that something was wrong. He is beginning to look un-sick now. He is still building stamina.
I only have vague understandings of glutathione but at least I know it is good. :>) I knew my life was too short to totally study the deep science of it all, besides I had a toddler wreaking havoc while I was on the computer just trying to figure out the bottom line...what do I do to save my husband.
Joe has had some advantages in having a supplement researcher, purchaser, and organizer...me. All he has to do is swallow...as you know, that is a lot of swallowing!
I wish you well,
Ev
Joe's latest scan showed his spleen is still enlarged but who knows, maybe next time that too will improve. I'm glad you have been feeling better and having more energy. That in itself is worth a lot. Life won't just stop for you because you feel bad. HCV is impossible to explain to others and if you look OK, they think you must be faking. :>) Well, Joe was so sick on TX, he looked horrible and people could at least tell that something was wrong. He is beginning to look un-sick now. He is still building stamina.
I only have vague understandings of glutathione but at least I know it is good. :>) I knew my life was too short to totally study the deep science of it all, besides I had a toddler wreaking havoc while I was on the computer just trying to figure out the bottom line...what do I do to save my husband.
Joe has had some advantages in having a supplement researcher, purchaser, and organizer...me. All he has to do is swallow...as you know, that is a lot of swallowing!
I wish you well,
Ev
dear Ev,
it is wonderful to hear that Joe is well enough to build a chicken coop. i love chickens - they are delicious!
i have used most of HRs recommended supplements over the past 3 years. - though not all at the same time. my mouth is not big enough! three years ago the radiologist wrote that my spleen was 15.5cm and the GI doc said it was easy to palpate. Now the speen is about 13cm and just today the same Gi doc said that he did not think it was enlarged. i still have high enzymes and platelets are around 120. Like Joe i also have much more energy since taking the supplements.
when you do a search on pubmed for glutathione and hepatitis c you come up with something like 600 articles. many of these peer reviewed articles state that glutathione is below normal in hepatitis c patients. as you probably know many of HR's recommendations are designed to raise increase glutathione.
eric
it is wonderful to hear that Joe is well enough to build a chicken coop. i love chickens - they are delicious!
i have used most of HRs recommended supplements over the past 3 years. - though not all at the same time. my mouth is not big enough! three years ago the radiologist wrote that my spleen was 15.5cm and the GI doc said it was easy to palpate. Now the speen is about 13cm and just today the same Gi doc said that he did not think it was enlarged. i still have high enzymes and platelets are around 120. Like Joe i also have much more energy since taking the supplements.
when you do a search on pubmed for glutathione and hepatitis c you come up with something like 600 articles. many of these peer reviewed articles state that glutathione is below normal in hepatitis c patients. as you probably know many of HR's recommendations are designed to raise increase glutathione.
eric
Mike,
You sure have had some close shaves. I'm glad you made it through them all.
Joe never had a bleed for which I'm glad. Besides being very life threatening, I always worried for our kids at home to see something that traumatic happen to their dad. It isn't like he is cured at this point and I don't know what we will face in the future. For today, we are enjoying the calm.
Glad your around to tell your story,
Ev
You sure have had some close shaves. I'm glad you made it through them all.
Joe never had a bleed for which I'm glad. Besides being very life threatening, I always worried for our kids at home to see something that traumatic happen to their dad. It isn't like he is cured at this point and I don't know what we will face in the future. For today, we are enjoying the calm.
Glad your around to tell your story,
Ev
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